Looking for clinical trials (medical research) about a particular disease? Here’s a window to start searching for trials that might work for you. After you answer a few basic questions about disease, age, location etc, it will take you to the Antidote search site to dig deeper.
Note: many thousands of trials are registered with Antidote, but not all the trials in the world, so when you enter a disease, you may not find any. Just follow the prompts and see what you get. See also background information below.
About Antidote and my work with them
In addition to being a public speaker and evangelist, I also work as an advisor to selected companies whose work is aligned with the cause of helping healthcare be “anchored on patient needs and perspectives,” as the Institute of Medicine said in Best Care at Lower Cost.
My most prominent client (and most impactful to date) has been Antidote (formerly TrialReach), the innovative search engine to help patients find clinical trials that best fit their needs. This is a big deal, because the practical reality of being a patient in a trial can be demanding (e.g. getting to where the research is being done), not to mention all the biological / medical rules that are buried in the fine print of the massive clinical trial documents. (For instance, you may want to be in a trial, but it may not be approved for people with some other conditions.)
The awareness problem
As I’ve often said, many different kinds of work are required to bring every possible resource to the point of patient need. In addition to the substantial artificial intelligence work of digesting all the data in the clinical trials documents and turning it into user-friendly questions, there’s the completely different question of whether the public even knows they might want to look into a trial. That’s a completely separate, additional problem, more like marketing or sociology. After all, if someone knows they can seek trials, they can come to the Antidote site and search. But what if they don’t?
Enter The Widget
That’d be a great band name.
The modern way to spread awareness and engage people in something is a widget, which can be placed on anyone’s website. Theirs is at the top of this page. Why not just use a link? They could, but this saves you the trip if those first few questions don’t provide an answer.
This page is an example of my work with them: I’m providing additional clarification about the widget, so the patient experience is smoother. Feedback? Let me know your thoughts, in a comment, or just email me per the Contact page.