Part of creating culture change is to publish documents, professional and mass-market, that spread the word about the new view. In addition to my speeches and videos, I do this through articles and books.
For more information, visit the Books page.
- Let Patients Help: A Patient Engagement Handbook with Dr. Danny Sands; introduction by Eric Topol MD; now in nine languages
- Laugh, Sing, and Eat Like a Pig: How an empowered patient beat Stage IV kidney cancer – my cancer diary on CaringBridge (excerpts), and later blog posts that explain what I didn’t realize I was doing: being an e-patient
- Facing Death – With Hope. An excerpt from Laugh, Sing, and Eat Like a Pig, which the Mayo Clinic Healing Words program asked me to read from when I was Visiting Professor in 2015. Video here.
Book chapters and co-authored
- Foreword: “The Unfolding Science of Patient Engagement,” in The State of Healthcare – From Challenges to Opportunities published by DNV GL and Sustainia. April 2015.
- Booklet (co-author): Reinventing Health Care: Barriers to Innovation. Aspen Institute, 2012.
Articles in peer reviewed journals
- “I want to know everything”: a qualitative study of perspectives from patients with chronic diseases on sharing health information during hospitalization. BMC Health Services Research: (2017) 17:529
- The paradigm of patient must evolve: Why a false sense of limited capacity can subvert all attempts at patient involvement. Patient Experience Journal: Vol. 4 : Iss. 2 , Article 2.
- Open Visit Notes: A Patient’s Perspective and Expanding National Experience, with Jan Walker, RN, MBA. Journal of Oncology Practice. May 2015. doi:10.1200/JOP.2015.004366
- From patient centred to people powered: autonomy on the rise. Invited essay, BMJ Patient-Centred Care Spotlight, February 2015.
- How the e-Patient Community Helped Save My Life. Invited essay, British Medical Journal, April 2013. [BMJ 2013;346:f1990]
- Paper: West HJ, deBronkart D, & G Demetri. A New Model: Physician-Patient Collaboration in Online Communities and the Clinical Practice of Oncology. In: Govindan R, ed. 2012 ASCO Educational Book. Alexandria, VA: American Society of Clinical Oncology; 2012;475-479.
Articles in health-related publications and blogs
- What patients need – and healthcare doesn’t deliver. athena insight, June 2017
- The engaged patient is an anomaly. Let’s fix the paradigm. EngagingPatients.org, April 2017
- The value of sharing data: What healthcare can learn from oncology. Future Health Index, March 2017
- Lessons from Seinfeld: Empower Patients to Look in Their Chart. Health eCareers, December 2016
- Could data make you live longer? Future Health Index (Philips), August 2016
- Cover story: The Patient’s Perspective: Medicine’s New True North. PLAID Journal (People Living with And Inspired by Diabetes), Spring 2016.
- Cover story: Beyond Empowerment: Patients, Paradigms, and Social Movements. Patient Safety & Quality Healthcare magazine. March/April 2016.
- Knowledge is Power. Power to the People! Guest post for Philips Healthcare, 2/5/2016
- Patient commentary: Empowered patients aren’t belittled by doctors’ titles. Essay in the BMJ. 11/25/2015
- “My Health: Upgraded” is a clear vision from a young futurist. BMJ Blog, 9/16/2015
- “Precision medicine” needs patient partnership, with Dr. Zachary Sholom Berger. BMJ Blog, 3/20/2015
- Essay: Social Media is the Profound Change Fueling the e-Patient World. Mayo Clinic Social Media Health Network, 3/20/2015
- Patient Participation: Let Patients Help With Medical Record Quality, Completeness. Invited guest column, iHealthBeat Perspective, Sept 2013.
- The Multidimensional Role of Social Media in Healthcare. ACM Interactions magazine (Association for Computing Machinery), July-August, 2011. (Co-author)
- How Patient-Provider Engagement Can Transform Patient Safety. Patient Safety & Quality Healthcare magazine, November 19, 2010.
See also the Media page for interviews and articles in mainstream media (Washington Post, USA Today, Time, etc) covering my thoughts on contemporary topics.