“Let Patients Help”: a patient engagement handbook

Book cover

With Dr. Danny Sands
Introduction by Eric Topol MD

A concise, action-oriented handbook on how to do what medicine calls “patient engagement” – an activated, empowering partnership between patients and their medical professionals.

“I am a better doctor for having read this book. It is clear, concise, and practical. It contains powerful truths that will help both patients and providers (and all the organizations that support them) work together towards what really matters.”

– Laith Bustani, MD, Kingston (Ontario) General Hospital

For more praise, see below.

Where to buy (in seven languages!):

1. English:

  • Amazon (in English; print edition $10 or Kindle $6): Amazon USUKFranceDeutschland
  • CreateSpace self-publishing site (slower delivery than Amazon, but you can ask me for quantity discounts)
  • eBook, $6 on Smashwords (ePub for iBook, PDF, Kindle, etc)

2. Spanish (Feb. 2014): “¡Dejad que los pacientes ayuden!”

3. Dutch (Nov. 2013):

  • eBook - email for information

4. Greek (Nov 2013): “Οι ασθενείς µπορούν να βοηθήσουν!”

5. Hungarian (Nov 2013): “Engedjük a beteget segíteni!”

  • Download instructions to come by August 15, 2014

6. German (June 2014): “Lasst Patienten mithelfen”

7. French (2014): “Laissez les patients aider!”

  • Email for information

_________________________

From the book’s sale page:

Concise reasons, tips & methods for making patient engagement effective.

The third book by e-Patient Dave, cancer beater, blogger, internationally known keynote speaker and advocate for patient engagement; co-founder and past co-chair of the Society for Participatory Medicine.

It’s concise – less than 100 pages, takes 60-90 minutes to read – because I want people to READ it all. And DO IT.  And if there’s one thing I’ve learned about medicine in recent years, it’s this rhyme:

Useful advice
is often concise.

It’s a book of lists:

  • Part 1: Ten Fundamental Truths
  • Part 2: Ten Ways to Let Patients Help
  • Part 3: Tip Sheets

As the subtitle suggests, this book is about partnership between patients and professionals. It tells why it’s valid and important for medicine to listen to patients, with specific how-to’s on making it a reality. A patient engagement handbook.

In keeping with that spirit, I managed to talk some slick doctors into contributing:

“With Dr. Danny Sands”

My famous primary physician, Dr. Danny Sands, is not only on the cover, he’s in the pages: he wrote some of them. In part 3 (Tip Sheets) he wrote:

  • Ten Things Clinicians Say That Encourage Patient Engagement
  • Ten Things Clinicians Say (or do) That Discourage Patient Engagement
  • For Patients: Collaborating Effectively with Your Clinicians
  • Dr. Danny Sands’ Rules for Smart Web Use

Regular readers will know that Dr. Sands has been a pioneer of patient engagement since the 1990s. Way back then he…

  • co-created the first medical record system and patient portal at our hospital, Beth Israel Deaconess
  • co-authored the first published guidelines on how to do doctor-patient email successfully
  • became a friend and colleague of “Doc Tom” Ferguson, founder of the e-patient movement.

(Why does Danny Sands not have a Wikipedia page??)

Introduction by Eric J. Topol, M.D.

I’m really thrilled to be honored that the amazing Eric Topol wrote the introduction. Read the full text of it here: “This book will unquestionably help many individuals become more active and fully engaged in their health care.”

If you don’t know Dr. Topol’s name, here are a few glimpses:

Praise for Let Patients Help!

“I am a better doctor for having read this book. It is clear, concise, and practical. It contains powerful truths that will help both patients and providers (and all the organizations that support them) work together towards what really matters.

“Dave’s story is a testament to the power of people working together to accomplish amazing things against all odds. That’s what we need to do. This is how to start doing it.”

– Laith Bustani, MD, Kingston (Ontario) General Hospital

_____________

“If you’re interested in getting up to speed fast on patient engagement, Let Patients Help is your passport.”

– Susannah Fox, Pew Internet and American Life Project (blog post here)
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“Simply, bravo! … The Ten Fundamental Truths About Health and Care not only confronts the license we all have to be engaged in our own care but also comfortably helps us use it for a collective good.”

–Jim Conway (see blog post), senior quality and safety leader (former senior VP at IHI ; former EVP and COO at Dana Farber Cancer Institute)
_____________

“Will unquestionably help many individuals become more active and fully engaged in their health care.”

From the introduction by Eric J. Topol, MD
_____________

“There’s not a doctor or patient in the land who won’t benefit from reading this clear, concise manual which sets out how each can contribute and collaborate to get better and safer healthcare.”

Dr. Tessa Richards, Analysis Editor, British Medical Journal
_____________

“The culture change that will cure medicine.”

A must read – a clarion call for the culture change that will cure medicine. If enough people – patients, clinicians, researchers – read this book and act on its wisdom, health and care will be changed, forever, for the better.

Michael Seid, PhD, Professor, Cincinnati Children’s Hospital Medical Center; Co-Principal Investigator, C3N Project
_____________

“Every medical student must read your book.
How shall we achieve that?

Bertalan @Berci Meskó, MD, PhD, medical innovator, Webicina.com, author of the award-winning Scienceroll.com
_____________

Questions about the book

  • Why just $8?
    Because I want a gazillion people to buy and read this. I want the decision to be a no-brainer: if you’re at all interested, buy it and read it. And heck, get one for someone else.
  • Volume discounts? I want one for everyone at my conference.
    What, you want discounts off EIGHT BUCKS?? Okay; write to me – dave at epatientdave.com

More questions? Ask in comments below, or email me.

Thank you to everyone who’s supported my work for the past three years, to get to the point where this book is not just possible, but a reality.

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