There’s a shift in the wind, and you may want to join what I think is an important conference this Thursday and Friday. The National Quality Forum, an independent organization that defines quality measures for industry to use, is having its annual conference and membership meeting.
As regular readers know, I’ve often said that medicine is the only industry I know where quality isn’t defined by the customer, the patient, the ultimate stakeholder. That’s starting to change: NQF is now actively engaged in shifting to make patient point of view a core part of the process. Continue reading →
(Some activated consumers hate the term “patient” and some activated patients hate the term “consumers.” My own views are in the glossary of Let Patients Help. Here I want focus on what you get when you mix the best of both – because that’s what they’re after on this site.)
It’s got three things I’ve never seen combined: shopping tools, self-assessment tools, and community activist tools. How’s that for a toolbox to create change? (Again, I wish I were bragging about my own work, but I never heard of them until they launched.) Specifically:
Note to email subscribers: I’m not sure which of today’s posts you’ll get first. If you haven’t seen today’s other post, about my July Blue Button speech, please see it below. It’s an important declaration about the future of health IT. _______
Last weekend I started something I hope to continue: a weekly post summarizing things I’ve written on other blogs. I’m doing this to keep in touch with subscribers here, as I reach out through other channels. Continue reading →
Last month I blogged that a “lost speech” had finally surfaced. It was my closing speech at an event last July, and said why this moment (this year, this series of conferences) is an essential turning point:
“The event was a conference conducted by our Department of Health & Human Services to educate and encourage software developers about the “Blue Button Plus” initiative. … which is really important for the future of health IT, and not just in America; this innovation initiative will change what patients and families are capable of.”
In November I posted about how fun my opening keynote was at AMIA, the American Medical Informatics Association. See that post for tweets from the event and discussion. It was great fun – a conference of 2,000 information science geeks – people who understand data, especially what it’s for and why data quality is important! Boy does it save time when you start from a common view.
This week AMIA’s Jeff Williamson got me the video of the speech. Here it is, with Dr Danny Sands introducing me. (He’s one of the revered figures in the association; they’re also the ones who published his 1998 article on doctor-patient email.) See notes below about what makes this talk different from others.
This is the latest in the Speaker Academy series, which started here. The series is addressed to patients and advocates who basically know how to give a speech but want to make a business out of it. I’ll try to be clear to all readers, but parts may assume you’ve read earlier entries.
This post is about cash flow – an important part of being responsible for ourselves financially. In earlier posts we discussed getting agreement from your client on the value of your message and the need to get paid: Ratty Boxers, A turning point for patient voices, and Speaker Academy #15: The Contract. This post is about managing how the cash actually gets to you, because many hearts have been broken along that road.
1. For a small business, cash is king
One of the most common causes of small business failure is running out of cash. So if you want to build a business, even a small one, it’s your responsibility to be businesslike about cash flow. On About.com, Scott Allan put it this way:
Cash (Flow) Really Is King
One of the most important lessons entrepreneurs have to learn, often painfully, is that cash really is king. I’m not talking about paper money — I’m talking about cash flow. Simply put, it doesn’t matter how much money is coming in the future if you don’t have enough money to get from here to there.
The first link in this post was wrong. Fixed. Thanks, astute reader!
For ages I’ve thought that when I write something elsewhere I should at least notify my subscribers here. (Plus, ahem, it may help my forgetful self remember WHERE I wrote about something…)
On my Forbes.com blog, This 15 Year Old Absolutely Nails What ‘Patient Centered’ Is – And Isn’t is about a two minute video by a young patient, recorded ad hoc Wednesday morning by her mom, Amy Gleason, a member of the Society for Participatory Medicine. The discussion on Twitter has gone nuts, there are more than 15,000 views on the blog post so far, and 2½ days later it’s still bouncing around in the top 25 Most Popular list for all of Forbes.com.(!) Check it out.
I spoke last month at a health price transparency conference in Washington, sponsored in part by Robert Wood Johnson Foundation. In a side session we saw presentations by the winners of the Health 2.0 Developer Challengefor shopping tools. Consumer Reports won first place for shopping apps for their Hospital Advisor: Hip & Knee app. (The link has their demo video.) It’s a fabulous tool for comparing prices and quality for hip and knee replacements.
Now they’re expanding the data behind the app, so they want information from us. Team member Chris Baily sent this request – feel free to share widely:
A good friend overseas writes that due to a fracture and other conditions she’s on Xarelto, a drug to prevent blood clots. (Here’s the drug’s page from the EMA, “the European FDA.”) The drug is causing serious issues with her blood and liver enzyme numbers and may be discontinued next week. Meanwhile she seeks e-patient advice in addition to everything she’s already found.
Are there any reports of adverse events from patients on the drug?
Is there anywhere online to discuss the drug with patients who are on it?
Update two hours later: this is fixed. See the resolution and further thoughts in the comments.
This seems to me to be a great example of a process that wasn’t designed reliably, so all kinds of things could be done per the plan yet the result still didn’t work. I’d like to work with them to define a better process. (We need to have the same approach to system failures in healthcare!) _________
By the end of this weekend things should be back to normal, but right now links to this site’s pages are broken. The site is mangled due to a bad migration of my site to web hosting company BlueHost.com. (I’m naming them because every step I took was as directed by them, and because their techs assured me this wouldn’t happen.)
Specifically, the home page URL www.epatientdave.com is working, but the links to pages within the site are broken. So, for instance: Continue reading →