“What if technically minded patients had access to their data from hospitals, labs, and apps? What if they could collect the data themselves and massage and format it however they like?”
I am so in love with this. Those are the opening words of this event’s web page. It’s the next step after November’s news about the first edition of FHIR’s Patient Innovator Track … the only such track I know of at any IT conference in the world. YAY!
The full announcement is here including how to apply for the Patient Innovator competition. Four finalists will be flown to DevDays (including travel expenses) to present to the judges and attend the whole conference if they want!
Regular readers know that for the past 16 months I’ve been blogging about HL7® FHIR®, the free, non-commercial, open-source software standard that’s been in development for 6-7 years and which is finally emerging. As I’ve said, FHIR itself isn’t a thing you would buy; it’s more like the HTTP that drives every website: FHIR is a software standard that’s starting to make it feasible to get our health data.
DevDays is a semi-annual conference for health data programmers working with FHIR: creating FHIR workflows, growing the standard, etc. The Patient Innovator Track recognizes that it’s time for patient innovators to be a recognized part of the community.
HL7’s vision is “A world in which everyone can securely access and use the right health data when and where they need it.” They’re making it real; last summer I blogged “HL7 makes it official: FHIR exists to serve patient needs.” Continuing from the event page:
The Patient Innovator Track provides a stage to patients and family caregivers who are taking control of their health using data about their disease and their treatment. We invite patients to show the unimagined things people can do with data when their health is at stake. The goal of the track is to inspire the DevDays audience and to share the values that underpin FHIR.
US DevDays 2020 is in Cleveland in June. FHIR DevDays happens every November in Amsterdam and June in the US. This will be the first Patient Innovator Track in the US.
To apply, you don’t have to use FHIR – just health data.
It’s significant that to participate in this, you don’t have to be using FHIR; you just have to be doing something useful with health data. Read about what was done by the Amsterdam winner, John Keyes (right), one of the four finalists who were brought to Amsterdam last fall. Note in the photo caption: “to track the numbers that matter to him.” Truly patient centered design, because he did with the data what he found valuable.
Spread the word – and apply, if it’s for you!
And if you’re a developer who’s excited by this important shift, here’s the link to register for DevDays as a regular attendee.