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September 6, 2015 By Casey Quinlan Leave a Comment

Writings and upcoming events – September

Open a medical record spigot imageContinuing this monthly series: here’s this month’s update on travels, new bookings, and writings.

Access to our families’ health records:
The time for action is coming 

The best in healthcare of course depends on access to all useful information, but HHS has reported to Congress that certain parties are “knowingly interfering” with the flow of families’ health records. Two posts:

  • Take action: We need a Federal policy change – perhaps even a law – so I wrote a call to action: Open a Big DaM Spigot – Data About Me! As the post says, “All change starts with people asking.”
    • See the post for some simple immediate actions.
    • Talk about it with friends, too – it’s getting to be “Paul Revere” time. Don’t wait til it’s your family member who’s in a crisis.
  • Over on Medium, I commented on a post by entrepreneur Steve Kiernan about this issue, saying:
    “Who out there wants to present an argument why families should be kept apart from their people’s health data? … Is there any ethical or moral argument for no spigots?”

New bookings:

[Read more…]

Filed Under: Business of Patient Engagement, Digests, Events, public speaking Tagged With: #gmdd, epatient, patient engagement Leave a Comment

August 10, 2015 By Casey Quinlan Leave a Comment

Writings and upcoming events – August (corrected)

Click to visit "#HIT99" results post on EMR & HIPAA blog
Click to visit “#HIT99” results post on EMR & HIPAA blog

Some email subscribers got an unfinished draft earlier today. Sorry for any inconvenience!

Continuing this monthly series: here’s this month’s update on travels, events, and writings.

Social Media Recognition: ranked #17 on the “#HIT99” Health IT social media influencers list

Upcoming travels: 

  • August 13-14 D.C.: RWJF National Leader Summit on Integration of Behavioral Health & Primary Care. Participant.
  • August 30-Sept. 02, Nijmegen, Netherlands (Radboud University Medical Center):
    • REshape Hacking Health 2015 hackathon. Judge
    • “Grand Inaugural Rounds” at RadboudUMC Medical School. Speaker.
  • September 10, Lancaster PA: Hospital & Healthsystem Association of Pennsylvania, 2015 Patient Safety & Quality Symposium. Speaker.
  • September 11-19: speaking tour of Alaska! Multiple events in Anchorage and Soldotna
  • September 23-27, Palo Alto: Medicine X | Ed. Speaker at Medicine X | Ed; attending the whole conference.

New confirmed travel plans:

  • October 29-30, Boston: Connected Health Symposium. Attending as SPM partner.
  • March 14, San Antonio: 2016 Parenteral Drug Association Annual  Meeting. Keynote.

Media mentions:

  • The Center for Public Integrity published Obamacare research institute plans to spend $3.5 billion, but critics question its worth
  • ComputerWeekly picked up my “don’t tell patients not to Google” message in a piece by Claire McDonald titled “Stop telling patients not to Google – one man’s quest for joined-up healthcare” – McDonald also talks about the NHS’s efforts to give patients better digital access to their data as part of an ongoing engagement effort. The idea is spreading!
  • British Journal of Healthcare Computing (HIMSS Europe) Vox Pop posted a conversation with input from me, and from Rosamund Snow, Patient Editor at the BMJ, about the value that patients bring healthcare, and the ongoing efforts to build a sustainable framework for patient engagement.

 

Filed Under: Business of Patient Engagement, Digests, Events, public speaking Tagged With: #gmdd, epatient, patient engagement Leave a Comment

July 15, 2015 By Casey Quinlan Leave a Comment

Writings and upcoming events – July 2015

Like last month, here’s this month’s update on travels, events, and articles (including a first for me!).

In my travels if you’re in the area and want to connect, contact me.

Writings:

  • Big news: my first article as lead author in a medical journal (right)! (In the world of medical journals, being listed as the first author is a big deal.) Open Visit Notes: A Patient’s Perspective and Expanding National Experience, in the Journal of Oncology Practice, with Jan Walker RN MBA. Thank you to the OpenNotes team for managing this!
  • Do you use online symptom checkers? Go for it but be wise: Last Friday I was interviewed by the Boston Globe (see below) to comment on a new BMJ article. It was such a stimulating topic I wrote a much-mentioned post about it on e-patients.net, and I hope to be writing more
  • Amazing Ginny’s amazing knee surgery: my post last week has been updated with amazing new videos of her moving around.
    • That post has traveled: it got modified and posted on the much-read Glass Hospital blog, which was in turned picked up by the more-read MedPage Today update, and in turn caused a post about patient engagement on the Christ Church Charlotte nurse ministry blog.

Media mentions:
[Read more…]

Filed Under: Business of Patient Engagement, Digests, Events, public speaking Tagged With: #gmdd, epatient, participatory medicine, patient engagement, Society for Participatory Medicine, update Leave a Comment

February 20, 2015 By Casey Quinlan Leave a Comment

Daily Digest: Open data, lone rangers, and more

Open data, sort of: In a post on the Health Affairs blog, some big brains from Brookings talk about how open data can help end over-treatment and high-cost treatment when science doesn’t support either one. In my opinion (which I shared in a comment on the post) they left somebody out in the data-share: patients. “How Open Data Can Reveal and Correct the Faults in Our Health System”

That which does not kill you … might still kill you: Dr. Aaron Carroll takes up the question of what are called the social determinants of health on his Healthcare Triage YouTube channel. Here’s a link to a post on The Incidental Economist with that video, and some other perspective on the topic. “How Long Are You Going to Live?”

Overwhelmed by over-treatment: One of our friends, Shannon Brownlee, is a globally known thought leader on ending medical overtreatment and shared decision making. From her view on the leadership team of the Lown Institute, she’s seen all the science on why overtreatment is still a pernicious issue in US healthcare. Her op-ed on the subject from DrKevinMD: “Fixing overtreatment: Lone rangers need not apply”

“Let Patients Help” – hospital board edition: In a piece on the NY Times Upshot blog, Austin Frakt says that hospital boards need to have more clinical expertise on them, so that treatment guidelines in the facility don’t wander off the evidence-based/quality-outcome reservation. We think he left out an important consideration: *patients* on hospital boards. “In Hospitals, Board Rooms Are as Important as Operating Rooms”

It’s not your funny bone, it’s your funny brain: It turns out that the old bromide about laughter being the best medicine might actually be true, at least in preventing age-related cognitive impairment. From Medical News Today:  “Laughter may be the best medicine for age-related memory loss“

Filed Under: Digests Tagged With: Aaron Carroll, Austin Frakt, Brookings, DrKevinMD.com, Health Affairs, Lown Institute, Medical News Today, NY Times, open data, over-treatment, Shannon Brownlee, The Incidental Economist, Upshot Leave a Comment

February 19, 2015 By Casey Quinlan Leave a Comment

Daily Digest: The West Wing, lab coats, and more

West Wing replay: Surgeon General Vivek Murthy said something recently that had Aaron Carroll reflect on the West Wing over on The Incidental Economist blog. “When real life imitates ‘The West Wing,’ Surgeon General edition”

Less is more, health IT edition: On the HL7 Standards blog, Michelle Ronan Noteboom looks at the idea that too much is way too much when it comes to several things, including portals and medical treatment. “When Less Is More in Health IT”

You can get it at Lowe’s: Not hardware, although they do certainly have plenty of that. In this piece on the Health Affairs blog, Bob Ihrie and Alan Spiro take a look at how Lowe’s retooled their employee health insurance coverage with an eye on behavioral economics, trust, and relationship dynamics. “Engaging Health Care Consumers: the Lowe’s Experience”

Tattoo you: I (Casey) have been making the health IT event rounds lately as a patient voice on panels about health tech and patient engagement. Since I took a very out-there step related to my own health data, my appearance in the room can start some interesting conversations. An example, by Jim Tate in the HITECH Answers blog: “Patient Engagement: I Tattoo, Therefore I Am”

Lab coats – yes or no? A meta-analysis of the study data available on patient satisfaction scores and physician attire shows that patients are likely to rate a doctor who’s dressed professionally higher than one who isn’t. What’s your thinking there – would you prefer a tie (which can be an infection vector), or are scrubs OK with you? From Lena Weiner in HealthLeaders Media: “Physicians’ Attire Linked to Patient Satisfaction Rates”

From the This Will Never Get Old desk: A film director and his wife took to YouTube back in 2010 to illustrate the user experience when you’re a patient booking healthcare, setting that illustration in the context of air travel booking. The results were, and are, hilarious. The New Altons on YouTube: “If air travel worked like healthcare“

Filed Under: Digests Tagged With: Aaron Carroll, Alan Spiro, Bob Ihrie, Health Affairs, health IT, healthcare user experience, HealthLeaders Media, HITECH Answers, HL7 Standards blog, Jim Tate, Lab coats, Lena Weiner, patient engagement, The Incidental Economist, The New Altons, The West Wing, Vivek Murthy Leave a Comment

February 18, 2015 By Casey Quinlan Leave a Comment

Daily Digest: Sugar high, CEO hackathons, and more

3% is not enough: According to this piece from Modern Healthcare, the security threat revealed by the Anthem breach might not be enough to increase spending on cybersecurity, for healthcare or for anyone else. “Experts doubt Anthem breach will boost security spending”

Sugar high: Dr. Abigail James, a neuroscientist and educator who’s known globally for her thinking on the science of learning, points out the results of a Yale study on energy drinks and school children, and shares some tips for parents on weaning their kids off the sugar/caffeine rush. “Sugar high: It’s REAL”

Marble doesn’t matter? I (Casey) have an admitted admiration for hospitalist MDs, based on my work producing a podcast series for The Hospitalist magazine. This post, from the Society of Hospital Medicine’s Hospital Leader blog, is Dr. Bradley Flansbaum’s take on the results of a Johns Hopkins study on hospital fittings – think Ritz Carlton vs. Quality Inn – and their impact on patient satisfaction scoring on physicians. “If your hospital was the Ritz Carlton, how high would your patients rate you?”

Irish science breakthrough: It’s early days in this study, but preliminary reports show some hope for Alzheimer’s and MS patients from a drug under study in Dublin. It’s called MCC950. We’ll be watching this one. From the Irish Times: “Ireland leads a drug breakthrough in fight against MS, Alzheimer’s”

Data geek hacky sack: Our longtime friend Brian Ahier is a health IT geek extraordinaire. Here’s a profile of his upcoming booth-babe appearance at HIMSS15, which includes his belief that health IT is an evergreen bipartisan issue. And a call to develop a wearable that counts hacky sack kicks. From Healthcare IT News: “Brian Ahier: HIE-vangelist, hacky sack extraordinaire”

Healthcare hackathon for CEOs: This showed up in my Facebook news feed today, and I was fascinated. In Denver, a dedicated man named Tom Higley – a real Renaissance man: attorney, musician, tech entrepreneur – has a very interesting event underway this week, where 10 CEOs will listen to 10 “wicked” healthcare ideas, and then incubate a solution to one of them in 10 days. From the Denver Post: “Sold-out production gives 10 CEOs 10 days to build viable health startup“

Filed Under: Digests Tagged With: 10:10:10, Abigail James, Bradley Flansbaum, Brian Ahier, cybersecurity, Denver, hackathon, Healthcare IT News, Irish Times, Johns Hopkins, MCC950, Modern Healthcare, patient satisfaction surveys, Tom Higley Leave a Comment

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