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This weekend I received a note of support for my new book that moved me, partly because of who it was from, but also because he gets it: patient engagement isn’t just about care providers listening to patients. Patients need to be engaged – to get it in gear – to speak up about what they want, and be active partners in their care.

The note came from Jim Conway, one of my greatest inspirations in this journey:

Dave, I just finished Let Patients Help! Simply, Bravo!

While I am a confirmed fanatic of patient and family centered care, and would endorse the book enthusiastically for that, I read it as much this week as a patient. I’ve been having some problems with my diabetes and blood sugar—nothing big—and it triggered strong reflections on my care partnership and my role also as a member of my team.

Much like you, I have a strong team with access to great info (Open Notes and PatientSite). Yet like many healthcare professionals, I can move into a shell, or even sulk, when it is about me. The Ten Fundamental Truths About Health and Care not only confronts the license we all have to be engaged in our own care but also comfortably helps us use it for a collective good.

Thanks to you and Danny for a job well done on a journey we all must take.

For information on how to buy this book ($8 or less), see the book’s web page. As reviewer Catherine Rose said on Amazon, “it’s cheaper than most parking fees at the hospital.”:-)

And please, tell friends … and your contacts in medicine. It’s concise, designed to be worth the time for every reader, patient and clinician alike. It really could help improve health and care.

If you don’t know Jim …

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I have a suggestion, a bold one, to go large with this cause:

Buy and distribute a pile of this book. Here.

I say that because of the strong response it’s getting. As any proud parent (or author) would be, I’m thrilled at the response to Let Patients Help. I mean, I’m little ol’ me, with no big marketing department, no publicist, etc, but in the past 11 days well over 1,300 people have downloaded the free ebook offer (which ends Saturday), and scores of people have purchased the print edition.

It’s really interesting when people buy something they could get for free. They must like it.

Meanwhile, @DoctorCaldwell here in the U.K., where I just spoke at a conference, downloaded it and already said this on Twitter:

@ePatientDave Dear Dave that didn’t take 90 mins to read!

Yes, I made it short – so it’s worth reading. He continues:

How do I get 100 copies to use with my inpatients? :-) :-) Gordon

Why not?? It reminded me of what famous doctor @Berci said on the back cover: [Read more…]

The current promotion below has ended but here’s a new one, through April 20.

Yes, this new patient engagement handbook, about which Eric Topol said “This book will unquestionably help many individuals become more active and fully engaged in their health care” and @Berci said “Every medical student must read this book.” A free download, two days only.

Get it here! Wednesday update: We appear to be crashing the site – sometimes it says “site not available” – sorry, please try again after a while!  The correct URL is indeed www.eburon.nl/tedxnijmegen?language_code=en

But also, read the fine print. Here:

The fine print:

• This is a free “preview edition.” It has bugs. (Yes, an ebook can have bugs!) Some hot-links don’t work, and the endnotes will be improved.

• When the final version is ready, you can download it. (You’ll register on the site.)

• This is the .ePub format, not Kindle. Yes, there will be a Kindle edition (sooner than I expected). In the shopping cart, you’ll get a link to download the .ePub file. You’ll also get an email containing links to both the epub and the .mobi file (for Kindle).

What? Free eBook?
Last week you said NO eBook yet!

Yeah, I know. Let me tell you about my Dutch buddy @LucienEngelen.
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What a fascinating experience this self-publishing is. You compose the book in Word, save as PDF, and upload it. If you did everything right, within 24 hours they say “Okay, go!” And it’s instantly available for sale.

And if you want to do a revised edition – e.g. to fix 7,000 typos….. or a major rewrite, or anything…. well, just upload another one.  NO COST.

This is sooo different from the print production cycle I grew up with. There, significant costs were incurred every time you make a new master, so you check check check check check before sending it to press. Today, it’s all digital.  And Amazon’s CreateSpace wants to encourage people to just try it, so they charge nothing for uploading files. Not a penny for setting up a title, not a penny for changes.

SO I WENT AHEAD THIS MONTH and released the first version for print, without checking carefully. How interesting! And what feedback I already got from my empowered, engaged readers.

I love that the all-digital workflow means I can make use of all this feedback! So here’s what’s already in this updated edition:

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I’m thrilled to announce that my next book is available for sale:

Let Patients Help!
A patient engagement handbook –
how doctors, nurses, patients and caregivers
can partner for better care.

It’s concise – less than 100 pages – because I want people to READ it. And if there’s one thing I’ve learned about medicine in recent years, it’s that the most useful advice is often concise.

Buy it here, on CreateSpace, Amazon’s self-publishing site:

Let Patients Help on CreateSpace

(CreateSpace requires creating a free account. It’ll be on Amazon in a while.)

It’s a book of lists:

• Part 1: Ten Fundamental Truths
• Part 2: Ten Ways to Let Patients Help
• Part 3: Tip Sheets

As the subtitle suggests, this book is about partnership between patients and professionals. It tells why it’s valid and important for medicine to listen to patients, with specific how-to’s on making it a reality. A patient engagement handbook.

In keeping with that spirit, I managed to talk some really slick doctors into contributing:

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