Power to the Patient!
Next in the series of fourteen foundation truths about Superpatients.
When your life’s on the line, you may think that all new knowledge will be rushed to the front lines as fast as possible. Not so much.
[Read more…]Continuing the series started Friday – fourteen foundation truths to set the stage for the upcoming book Superpatients: Patients who extend science when medicine’s out of answers.
A frequent thread in superpatient (and e-patient) stories is when a doctor gives outdated advice about what information deserves our attention. Today’s principle builds on Principle 3, “It’s a myth that doctors can be counted on to know what’s dependable and nobody else can be.” Here’s #5:
Continuing the series started Friday – fourteen foundation truths to set the stage for the upcoming book Superpatients: Patients who extend science when medicine’s out of answers.
Continuing the series started Friday – fourteen foundation truths to set the stage for the upcoming book Superpatients: Patients who extend science when medicine’s out of answers.
Principles #1 and #2 were about what science is – essential concepts for people who want to extend the frontier. Today we start addressing where to look for the best advice.
Continuing the series started Friday – fourteen foundation truths to set the stage for the upcoming book Superpatients: Patients who extend science when medicine’s out of answers.
Principle #1 said that good science is measurable, verifiable, and reproducible. Here’s #2, which is a shocker to a lot of people. As the articles linked below say, it’s a big problem for doctors, not just for patients:
This is something I rarely do: I’m reposting, verbatim, a previous post, because its relevance has accelerated. Please give it another read.
In June I wrote here about the ten part blog series I recently did on Tincture, about why I believe the HL7 FHIR standard promises to be so important in achieving the long-felt need for patients to have access to every bit of their health data … to “let patients help” improve care, as my book and TED Talk have said for YEARS. But last fall I gave a talk that expressed my impatience. The title: