Search Results for: e book

September 12, 2017 By e-Patient Dave Leave a Comment

See my cousin @McCullohMD on a special ABC 20/20 Weds night

Wednesday night (Sept 13) at 10pm ET, a special edition of ABC 20/20 will air, promoting a new series called “Good Doctors.” I’m thrilled to learn that my cousin Chris McCulloh, a third year surgical resident, will be featured.

I’d be thrilled to have anyone I know on such a highly visible show, but the extraordinary thing about Chris is that he almost didn’t enter medical school because a few months earlier he fell at home and end up with a spinal cord injury, paralyzing him below the waist.

Well, not only did he enter medical school, he’s a surgery resident now, planning to specialize in pediatric surgery! You’ll see he’s got a “standing wheelchair” and a whole lot of unstoppable e-patient baked in. Check it out! Watch! Be inspired like me! Links:

ABC’s Facebook post for this show, with preview video
Their Facebook page for the new series “The Good Doctor”
Follow him on Twitter
His occasional blog
His original blog, back to 2008, about his injury and such.

https://twitter.com/McCullohMD/status/907642507571462144

August 11, 2017 By e-Patient Dave 4 Comments

e-Patient request: family seeks highly engaged pediatric GI

Smiling pediatrician with toddler and parent — Stock photo from FreeGreatPicture.com

The latest in the occasional series of e‑patient requests, in which someone asks me to post their search for information. No guarantees; sometimes we connect with answers, sometimes not.

I know nothing about the issues – I’m just forwarding the request. Please share on social media and/or forward this to anyone who might have suggestions. On social media, use the hashtag #PedsGI, to tap into that network.

[Read more…]

July 26, 2017 By e-Patient Dave 3 Comments

New essay in the Patient Experience Journal on “the paradigm of patient”

Several of you have commented that I started a series this spring on the evolution of my business and my advocacy over the past eight years, and then it stopped. Well, it hasn’t stopped, but the work itself has collided with the reporting about it.

I have a new essay, just published today, in Patient Experience Journal, which brings together a ton of interwoven issues I’ve been reading and thinking about: The paradigm of patient must evolve: Why a false sense of limited capacity can subvert all attempts at patient involvement. It’s in that journal’s first Special Issue, devoted to patient involvement in producing healthcare.

[Read more…]

June 22, 2017 By e-Patient Dave Leave a Comment

Week in review: writings elsewhere

This isn’t the only place I write – other places include e-patients.net (the blog of the Society for Participatory Medicine), the BMJ blog, and occasionally others. In every case it’s something relevant to my mission, so I’m going to try posting here, occasionally, links to things I’ve written elsewhere. These are from the past two weeks. (Okay, so this time it’s weeks in review…)

June 7, e-patients.net:

From the UK: “Habits of an Improver”

For people working to create real change: “The habits of an improver offers a way of viewing the field of improvement from the perspective of the men and women who deliver and co-produce care on the ground …”

[Read more…]

June 16, 2017 By e-Patient Dave 3 Comments

The effectiveness of the US health system, in one graph

I’ll leave you with this thought for the weekend.

After years of study of healthcare around the world, listening to an immense number of arguments about what’s important and what works and doesn’t, it’s all summed up in this one picture. The Y axis is life expectancy; the X axis is cost. This graph has been tweeted furiously and often lately by health journalist @DanMunro. (More on him below.)

You can easily see that US health costs per capita are way, way, way out of whack with the rest of the world. And, the life expectancy we get for it is years worse than the countries that cost 2-3x less.

Some will argue bitterly that the facts aren’t relevant, or a hundred other arguments. I’ve lost interest in those arguments, because they’re all about rationale, and no rationale is worth a damn if the outcomes they’re trying to explain don’t match the rationale.

[Read more…]

June 8, 2017 By e-Patient Dave Leave a Comment

Evolution 4: 2009 part 2 – a health I.T. “information trainwreck”

Screen capture from the Information Quality Trainwrecks blog’s post about what happened with my data. (I’m not making this up.)

Fourth in a series of retrospective posts, reviewing the ten years since my cancer and how my shifting perspective has altered what I’ll be doing from now on.

I’m generally doing one post per year, but so much happened in 2009 that it’ll take several. In particular, this episode in the spring of 2009 had such unexpected impact that I’ve had to think a lot about what to say. Sorry for the delay, but as you’ll see, this is an example of the important question that arose here.

In May 2008 my hospital had announced that their Google Health interface was live:

… a patient, with their consent and control, can upload their records to Google Health in a few keystrokes. There is no need to manually enter this health data into Google’s personal health record, unlike earlier PHRs from Dr. Koop, HealthCentral and Revolution Health. …

[Read more…]