e-Patient Dave

Power to the Patient!

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Slides and links for today’s presentation to Rotary Club of Seattle

Seattle Rotary web bannerUpdated 9/29 with the promised additions

Seattle has the world’s biggest Rotary Club – a lot of sharp, focused Seattle business people. Very different from my usual talk to a medical conference … I’m talkin’ to these people as patients and family members! So the content is different, and some is new this week.

Here’s the video (32 minutes):

Seattle Rotary #4, September 24, 2014 on Vimeo.

Two notes about the video:

  • The fonts didn’t upload correctly so some of the layouts overflowed. (30 years into desktop publishing and they still can’t make it work reliably!) An accurate PDF of the slides is on Slideshare.
  • Around 31 minutes I say that I’ll post my call to action online: our society needs mid-level managers who know how to create a team and produce a result! They’re on slides 50-56.

As promised, links to material cited in the talk:
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Talks in Stockholm, part 2: “Dagens Patient” workshop at Karolinska Institute

This talk, last Wednesday in Stockholm, was for a significantly more academic audience than I usually face: A packed room at Karolinska Institute, the university that is the home of the Nobel Prize. The purpose in this case was to kindle some significantly new thoughts in a super-sharp audience: 20 researchers, 10 patients, 5 students, 5 healthcare professionals, academic think tank leaders, leaders in healthcare professional bodies, 5 health care professionals , 7 health care designers. A lot of people also had more than one role. Wow!

The event was part of an important Karolinska project called “Today’s Patient” (“Dagens patient”). It’s got e-patient written all over it. (This is a continuation of last Thursday’s post of my talks Monday and Tuesday at Digital Health Days in Stockholm. The closing panel video is up now.)

Email subscribers, if you can’t see the video, click here to view it on YouTube. 

(How about the nifty video editing by Anders Westin?? I don’t know how he did some of that magic! For fun he also created another “mash-up” of the song Gimme My DaM Data and photos from the day – I’ll add that at bottom.)

At the start you’ll see the introduction by Karolinska’s Pär Hoglund and Sara Riggare. Pär is, among other things, one of Sara’s academic supervisors. Sara is a Parkinsons patient (highly activated e-patient) and member of the Society for Participatory Medicine; she was the ringleader of this invitation, as she also was for my World Parkinson Congress talk, which I blogged about last November.

As I said, the purpose in this case was to kindle some significantly new thoughts in a super-sharp audience of academics and innovators in the Swedish system. Did it work? Well, yesterday I learned that they’ve decided to translate my book Let Patients Help into Swedish. I’d say that’s a win.:-)

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Speaker Academy #18: Client Honor Roll – great and valued business partners

This is the latest in the Speaker Academy series, which started here. The series is addressed to patients and advocates who basically know how to speak on a subject but want to make a business out of it. I’ll try to be clear to all readers, but parts may assume you’ve read earlier entries.

In #16 I said “For a small business, cash is king.” This is especially true for patients who are trying to build a small business in speaking, with no financial backing. In this post I want to “spotlight the spotless” – my clients who have honored our partnership by paying every single invoice within the agreed time of 30 days. Thank you!! A couple of foonotes before we start:

  • Date range: This is for events starting January 2013 and ending April 2014. (This May’s events haven’t reached 30 days yet.)
    • I hope to dig back earlier, but before 2013 I was in survival mode and my records were sometimes not accurate. Meanwhile, clients – if you remind me that you paid promptly I’ll be glad to include you – just let me know!
  • Special honor: Some clients are so great that they’re in a special category – they paid on-site or EARLY! (And they reimbursed my out-of-pocket expenses promptly.) So I’ll start with them:

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Speaker Academy #17: “Your message did not fall on deaf ears.”

Erin Moore profile picture

This is the latest in the Speaker Academy series, which started here. The series is addressed to patients and advocates who basically know how to speak on a subject but want to make a business out of it. I’ll try to be clear to all readers, but parts may assume you’ve read earlier entries.

A great moment just happened, and I say “great” because it brings together two big factors in the Speaker Academy series here:

  • If patient voices are a cornerstone of the future of medicine (as the Institute of Medicine says), they need to be actively supported in their participation. Otherwise, the future will be built on whatever scraps people find for free.

Well, Speaker Academy pal Erin Moore just knocked one out of the park. Speaking last week at two events in DC (for free), she had an occasion arise where she spoke effectively – in fact I’d say she knocked it out of the park!

Here’s a cross-post of her news, with permission, from her blog 66 Roses. Change agents, take note.
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e-Patient request: colon cancer communities

Regular readers know that I sometimes will post an e-patient request, and some of those answers go into my list of patient communities on this site. Here’s one I can’t believe I haven’t written up, because I know there are lots of them!  But that’s probably why nobody’s ever asked, here.

Colon cancer

An audience member from overseas writes saying that a relative has been suddenly diagnosed with colon cancer, with poor prognosis.  I went to my Communities page and found nothing. That’s crazy because I know there are lots of communities for colon-related conditions. (My page has several for Crohn’s and colitis, but not colon cancer.)  Who are you, out there??

My memory is notoriously bad so I apologize for not remembering you all. Off the top of my head I remember:

Who else??  As always, answers will be recorded on the Communities page, for others to find. Thanks!