e-Patient Dave

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“Filter Bubbles” TED Talk from 2011: understanding what some sites show you (and don’t show others!)

I’ve been writing about Facebook recently. There’s lots more disturbing news about them, but it turns out some of the deeper issues are broader than one company. This is one that’s worth knowing, as we start to understand the values – and risks – of online patient communities.

During the increasingly contentious run-up to the 2016 election, several of us noticed (I know because they/you mentioned it on FB) that something had changed – the world seemed to be getting crazier, with people at both ends of the political spectrum unable to comprehend how the OTHER end could be so stupid, so ignorant, of what was blindingly apparent to them. 

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“Why We Revolt”: podcast episode 5 – why we should call for careful and kind care

Episode 5 is live! “Why We Revolt” – the patient’s side of the call for better care, with Victor Montori

Special request: What would you like to hear about, on my podcast?

I start this episode by asking for your feedback. Most important, one friend wrote saying he’s not looking for lecture-length radio shows – he wants quick tips, answers to questions. How about you? Are you loving it? Telling friends about it? If not, I’m missing my mark – let me know via the Contact page!

And now, about this episode – [Read more…]

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Notes for NAM’s Action Collaborative on Clinician Well-Being and Resilience

Infographic from NAM with key statistics on clinician wellbeing
Infographic from NAM with key statistics on clinician wellbeing

I’m participating today as a “consumer/patient” voice in a meeting on clinician burnout, part of a project of the National Academy of Medicine. I was going to be there in person but a bad and contagious coughing cold kept me home, so I’m watching and listening remotely.

Remote participants often don’t get as much chance to speak up, so I’m doing what empowered people do: find another way to get heard.:-)

Burnout is important to me, because I’m deeply grateful to the highly trained people who saved my life 11 years ago, and I want them to have a good life. But look at the statistics in the project’s infographic here. It drives me nuts (and makes me sad) that the doctors and nurses who put in all those years of training, and gained their years of experience, are so often unhappy with their working life.

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Evolution part 3: February 2009 – the stage is set for an earthquake

Third in a series of retrospective posts, reviewing the ten years since my cancer and how my shifting perspective has altered what I’ll be doing from now on. I’m generally doing one post per year, but so much happened in 2009 that it’ll take several.

By the way, I added new items on my 2008 entry – things that later became important: an award I got for using data in my day job, and meeting @TedEytan. 

Forming the Society for Participatory Medicine

SPM handshake logoAt the annual “friends of Tom” retreat (Doc Tom’s friends) that I mentioned last time, that gang of crazies decided the time had come to become a medical society. In addition to deciding on a mission (patient-clinician partnerships) they talked about officers, and said “It won’t do to have this society run only by doctors, of course.” I think it was Gilles Frydman (founder of ACOR, where my patient community lived) who said it had to be a doctor-patient team. They looked around and pointed to the only pair in the room – Danny and me – and said we should be co-chairs.

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I’m 7! (Well, epatientdave.com is)

Birthday cake photo by pinterest user dnkchavez10
Birthday cake photo by pinterest user dnkchavez10

This is an updated clone of this 2014 post.

It is a time of celebration!

Since creating this domain seven years ago today (2009!) I’ve done:

  • 242 323 speeches
  •  36 52 panels
  •  30 38 policy meetings
  •  68 86 participant in other events
    … that’s 499 events so far, totaling about 150,000 people, in …
  • 213 cities, in
  • 18 20 countries, logging …
  • … around 830,000 air miles

and authored or co-authored:
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Speaker Academy #27: Impact speakers! Get the “Official TED Guide” to speaking

TED Talks book cover

There’s only been one post in this series in the past year, but for impact speakers, this book is real news. Best advice on how to have an impact I’ve ever seen. Not perfect IMO, but full of things I bet you’ve never thought about that can really help you up your game.

By “impact speaker” I mean a speaker who really wants to grab the audience’s thinking and have an impact. That’s not the only valid kind of speaking, and it’s certainly not the only valid way to tell your patient story. But if you, like me, truly want to change the world, it’s really useful to get people’s attention. And this book makes clear that how you go about it can make a big difference.

It’s full of examples on big topics and details. And it does it so well that I’ve decided to:

  1. Blog about the book before I’ve finished it
  2. Buy the Kindle version as well as the audio version. (Kindle is infinitely better for note taking and excerpts.)
  3. Buy a copy for any Speaker Academy visitor (you) who can convince me they want it for good reason.

The author is Chris Anderson @chr1sa, founder of TED. When I first heard about the book I thought it might be some light fluffy cheerleading: “You can do it! Just be yourself!” Instead, it’s absolutely full of “This is what works,” “Do this; do NOT do that,” often including examples like “You might have done it this way:” followed by “But see how much better it is if it’s done this way?” Most points are accompanied by example TED Talks you can watch, and in the Kindle version those talks are even linked.

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