E-book: “The Birth of a Battle Cry: Gimme My Damn Data”
This book is a compilation of 12 essays (blog posts) that unfolded over two years, starting my odyssey as an advocate for patient access to their medical records.
The original articles are all available online for free, but it’s compiled here for convenience, and I hope it will be of use to future students of health IT policy, because it tells how one patient trying to improve healthcare stumbled on a subject that others had struggled with.
Let Patients Help!
A patient engagement handbook
How doctors, nurses, patients and caregivers
can partner for better care
With Dr. Danny Sands; introduction by Dr. Eric Topol
“Will unquestionably help many individuals become more active and fully engaged in their health care.”
From the introduction by Eric Topol
Laugh, Sing and Eat Like a Pig
“How an Empowered Patient Beat Stage IV Cancer
(and what healthcare can learn from it)”
- Buy it on Amazon:
- For quick delivery direct from my stock, or for bulk orders, contact me.
Hi, it’s me, the book! I went live on Amazon in July 2010. My title reflects the mind-powered approach Dave took to his “prognosis is grim” disease. Here, let him tell you:
What’s the title about??
It’s the approach I chose to take to the news that I had a lethal cancer – a summary of the advice I got in the first few weeks after diagnosis, before I even started my journal:
- “Laugh” is for the healing power of laughter, as famously discussed by Saturday Review editor Norman Cousins in his book Anatomy of an Illness as Perceived by the Patient
- “Sing” is the advice my doctor gave. I had asked if I should drop out of my much-loved championship chorus to save energy, but he said, “You don’t want to stop doing life activities that you love – it sends the wrong message.” Wow. So, okay, laugh and sing! Not bad.
- “Eat like a pig” refers to the diet the hospital sent me, to increase my caloric intake, to combat weight loss and prepare for the battle ahead.
In my online community I told people “If I ever write a book about this, that’s what I’ll call it.” And here we are.
Admittedly, that’s not a conventional approach to a deadly disease. But that’s the point. And the whole story’s true.
Why a book with this message?
4,000 people a day (in the US alone) discover they have cancer, and face that moment of “What on earth do I do NOW??” I know that feeling. Some look for what to do next; others don’t even think they can do anything — they just think they’re screwed and go into depression. This book is about hope, getting it in gear, and going “e.” (E-patients are “empowered, engaged, equipped, enabled, and educated.”)
What’s the vision?
I’m committed to a world where healthcare works better – and not just for patients but for the people whose work is to deliver care. I agree with the words of Warner Slack MD, who said patients are “the most under-utilized resource” in health IT, and I think it applies to all of healthcare.
Healthcare today has unprecedented challenges. Let patients help.
Okay, I’m back – me, the book. I look forward to meeting you. Buy me!