e-Patient Dave

Toward a New Science of Patient Engagement

By 14 Comments

Facebook, I’m out. Your irresponsibility with patient groups has gone too far.

I have stopped participating on Facebook.  I’m leaving my account live (so that my post about why I’m leaving is visible), but everything will be shut off as much as possible, and the rest will be ignored. No Messenger, no more posts on my timeline, no notifications, no tagging, etc.

I’ll be spending more time on LinkedIn and Twitter. I hope you’ll follow those pages, or use the Subscribe form on the right side of my blog page.

This isn’t an easy decision because it will be harder to keep in touch with everyone in my life, not least my family (including famous daughter and grandchild) and the many friends I’ve made in my travels. But I’ve decided we must stand up.

The rest of this post explains why; if you don’t need that info, ignore it – but  please keep in touch.

[Read more…]

By Leave a Comment

“Superb! Superb! No other word for it. A knockout.” So, a winter sale!

A quick update on two aspects of my speaking business:

  • As the post title suggests, the “consultative speaking” approach I use continues to bring great results. (Yes, that’s what the client said.)
  • I’m offering a winter sale because I have more capacity in my calendar than usual in the coming months: half off my usual speaking fee for any bookings with contract signed by March 31. Bring it on! Use the contact page.

Recent speeches have been to audiences of software developers in Amsterdam, innovators (Exponential Medicine, San Diego), and a medication security company customer event then their internal company meeting (TraceLink, Chicago and Boston), and though the audiences were very different, each got very strong response, because every speech is carefully tailored to the sponsor’s needs.

My topics have expanded beyond the traditional “Dave’s cancer story” and “about e-patients.” In addition to custom requests, topics now include
[Read more…]

By Leave a Comment

The Polluted Stream of Health Care Information: Health News Review podcast

It ticks me off that the excellent site HealthNewsReview.org is going out of business due to lack of funding. More on that below. This independent website has for 12+ years been teaching us all how to watch out for BS in health news stories; they’re so important for informed health consumers that over on the e-patient blog I’ve written about them a dozen times.

[Read more…]

By 2 Comments

15 Health IT Social Media Influencers Worth following, and more news

Hi, this is Kristin, Dave’s assistant. If you’ve talked to Dave, you’ve probably talked to me. :-)

I’m happy to announce that Dave has again been named to a top social media list as an influencer worth following. This time it’s Health Tech magazine’s list. Not every list like this is great, but this one is – all top in their specialized area.

[Read more…]

By 1 Comment

Book review: Augmented Health(care):
the end of the beginning, by Lucien Engelen

This book is so good I don’t know where to start. Just read it. (There’s an introductory 20% discount on the e-book below.)

Except – seriously – don’t read it if you demand a roadmap from here to the future. This is from the future. The image above, of a kid with a telescope, has been in the author’s office since I first met him, but until I was halfway through this book I didn’t understand why.

In Augmented Health(care) Dutch innovator Lucien Engelen of Radboud University Medical Center goes on a tour of the landscape that may strike the unfamiliar as manic or just plain nuts. Don’t trust that reaction – listen. He is unbound by the traditional view but absolutely bound to a future world where health – and care – are augmented such that things actually work.

[Read more…]

By Leave a Comment

“Why We Revolt”: podcast episode 5 – why we should call for careful and kind care

Episode 5 is live! “Why We Revolt” – the patient’s side of the call for better care, with Victor Montori

Special request: What would you like to hear about, on my podcast?

I start this episode by asking for your feedback. Most important, one friend wrote saying he’s not looking for lecture-length radio shows – he wants quick tips, answers to questions. How about you? Are you loving it? Telling friends about it? If not, I’m missing my mark – let me know via the Contact page!

And now, about this episode – [Read more…]