e-Patient Dave

Democratizing Healthcare

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March 26, 2020 By e-Patient Dave Leave a Comment

My new Swiss cousin. Pancreatic cancer (back when), and *mega* attitude.

Taking a break from virus news … OMG, yesterday long-time friend Silja Chouquet in Basel shared this TEDx Talk with me: Martin Inderbitzin. 19 minutes.

I’m declaring him my newfound Swiss cousin. Now I have to go find him. (I already went to the website he started … I’ll leave that to you, if you want.) … ah, @MarBitz on Twitter. And he started My Survival Story.

Filed Under: Uncategorized Leave a Comment

January 24, 2020 By e-Patient Dave Leave a Comment

Thanks for eight great years, Kristin

Anyone who’s worked with me in the past eight years has gotten to know Kristin Gallant, the terrific assistant who’s helped with all my administrative and customer service work since 2013. With a workload that’s ranged as high as seventeen speaking events in a month, she’s been rock solid, indispensable.

Our working relationship has also been a perfect example of flexible hours, virtual office, apps, and “cloud everything,” enabling each of us to stay on top of things regardless of which time zone I was in. A professional executive assistant and bookkeeper before we met, she adapted hours as her growing kids’ school hours changed, often screen-sharing as we juggled tasks, client communication, and administrative housekeeping. And as a “cancer kicker” herself, she’s understood exactly what this work is about.

[Read more…]

Filed Under: Uncategorized Leave a Comment

December 11, 2019 By e-Patient Dave Leave a Comment

Principle 5: Some doctors were trained wrong about what information’s dependable.

Continuing the series started Friday – fourteen foundation truths to set the stage for the upcoming book Superpatients: Patients who extend science when medicine’s out of answers.

This image has an empty alt attribute; its file name is Meme07-Fact05-Some-docs-were-trained-wrong-600x400-1024x683.jpg

A frequent thread in superpatient (and e-patient) stories is when a doctor gives outdated advice about what information deserves our attention. Today’s principle builds on Principle 3, “It’s a myth that doctors can be counted on to know what’s dependable and nobody else can be.” Here’s #5:

Some doctors were trained wrong
about what information’s
dependable.

[Read more…]

Filed Under: superpatients, Uncategorized Leave a Comment

October 30, 2019 By e-Patient Dave 1 Comment

FHIR #DevDays announces Patient Innovator Track finalists: two companies, two patients!

The organizers of the FHIR #DevDays conference next month have announced the four finalists who will come to Amsterdam to present their ideas to a panel of judges. I’ll copy/paste here from the conference’s Patient Innovator Track page:


The following applicants have been invited to present their achievement on Wednesday, November 20: [Alphabetically by presenter’s name]

[Read more…]

Filed Under: FHIR, Health data, Innovation, patient engagement, Patient-centered tech, Uncategorized 1 Comment

October 22, 2019 By e-Patient Dave Leave a Comment

Facebook debate at MCSMN: Links for background and follow-up

The 2019 Mayo Clinic Social Media Network event

Tuesday, Oct. 22, 2019: I’m at the Mayo Clinic Social Media Network’s #MCSMN annual conference, where at 4 pm CT I’ll participate in this debate:

Resolved: Facebook’s disregard for user privacy should compel responsible hospitals to abandon the platform.

[Read more…]

Filed Under: Uncategorized Leave a Comment

June 22, 2019 By e-Patient Dave 4 Comments

A tale of two patients: the difference #FHIR hopes to make with free-flowing data

On Friday I wrote here about the ten part blog series I recently did on Tincture, about why I believe the HL7 FHIR standard promises to be so important in achieving the long-felt need for patients to have access to every bit of their health data … to “let patients help” improve care, as my book and TED Talk have said for YEARS. But last fall I gave a talk that expressed my impatience. The title:

“From ‘Let Patients Help’ to ‘Get Out of My Way’:

why some patients want ALL their data now”

[Read more…]

Filed Under: FHIR, Uncategorized 4 Comments

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