Power to the Patient!
This post is a departure from my usual: it’s about a specific company, for a specific reason. First, some background.
Since 2007, Thanksgiving has been a time of reflection for me. That’s the year I was diagnosed as almost dead, yet by Fall I got to hear “looks like you beat it!” What a Thanksgiving that was.
I know firsthand that when a person like me is in need, being cared for and about makes all the difference.
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I’ve been learning everything I can about what AI will do to help healthcare achieve its potential, and especially how it will help e-patients be stronger contributors. The game’s not over (this game will never be over) but so far, this is the book! The AI Revolution in Medicine: GPT-4 and Beyond.
[Read more…]Regular readers know I love data, especially my own health data. This post isn’t about health data, but it makes my favorite point: knowledge is power, and it’s empowering to know what’s going on. Am I right?
Last year we got a nifty thing for home energy management, and this summer it detected a small disaster in process that would have cost us hundreds of dollars. At the peak of AC season in July, this notification popped up on my phone one morning: my electricity consumption was FOUR TIMES normal:
Regular readers know about “Mighty Casey” [left]: a very outspoken advocate for patient centered care who died in April. As her BMJ obituary said, she notoriously had a QR code tattooed onto her chest, linking to her complete medical history … because nobody in the health system could or would gather it all. So she did it herself. That’s an empowered patient!
Well, it got the attention of people working in FHIR health data standards. And this past weekend, at an event called a “Connectathon,” they hacked together a starter version of Casey’s dream.
Here’s the result – scan this QR code with your phone (or follow this link … same thing). It produces a human readable version of some of my own medical data.
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Of the hundreds of conferences I’ve spoken at, none is more fun and relevant to patient empowerment through health data than FHIR DevDays, for several reasons:
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