A quarter century ago, in the early years of the Web, a seminal book was published by four marketing wizards: The Cluetrain Manifesto: The End of Business as Usual. Its central point was that the internet was going to completely change marketing, because it made information flow freely, to and between consumers. Importantly, it consisted of 95 theses, patterned explicitly after the 95 theses Martin Luther nailed to the cathedral door in Wittenberg, Germany in 1517.
[Read more…]COVID damage: What happened to my blood vessels??
What the heck happened to my blood vessels in January? My cardio-respiratory fitness plunged in one week when I got COVID:
[Read more…]Mighty Casey’s estate sale: broadcasting tech, modern and rare!
People in a hurry can skip to the product listings below, but we hope you’ll take a moment to learn about this fallen hero of the healthcare revolution.
[Read more…]Is Beth Israel lying, denying, or complying?
I am really irritated. My hospital has told me they’re not supporting the federally required FHIR standard (a “FHIR endpoint”) to let me access my health data. Is this legal??
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Important update: a robust Twitter thread is drawing lots of answers on whether this is legal. Some of it is “gray area” but among other things:
- At present, even if their behavior is a violation, there’s no penalty!
- But by end of 2023, if they don’t have this, they might not get any more payments from CMS!
- That’s Medicare and Medicaid, which are about 40% of all US hospital revenue
- There are three separate requirements.
- System vendors are required (today) to offer a FHIR endpoint to their buyers (hospitals).
- Well-known large vendors like Epic and Cerner offer it.
- But Beth Israel Deaconess is its own system developer, and they haven’t created one.
- Care providers (hospitals etc) aren’t required to buy them and offer them to patients (yet)
- But by end of 2023, providers will have to offer this to patients, if they want to get paid by CMS (Medicare).
- System vendors are required (today) to offer a FHIR endpoint to their buyers (hospitals).
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Resuming the original post:
[Read more…]The hard, hard work of supporting a death
Much has been said about dying and about how hard a death can be on loved ones. But I’ve never seen anything like this email, which I received this morning. It’s from Myra Isaacs and Jan Oldenburg, who became the primary caregivers and care organizers for “Mighty Casey” Quinlan, who died April 25 after a month in a skilled nursing facility under the supervision of hospice.
In the past I’ve seen bits and pieces of the many tasks listed here but holy cow, when it’s all put together, it’s sobering. It’s a lot of work, at an unhappy and often stressful time.
I myself was not with them at Casey’s side in Richmond – I’m just the messenger who was blown away by this email and asked to publish it.
[Notes: “Mary” was Casey’s given first name at birth. She never liked the name, so adopted her original last name as her first. CeCe (Cecelia) is her sister.]
[Read more…]Join my live Q&A on “Patient Design” with The Medical Futurist – Tuesday noon ET
This is going to be fun: a live, unscripted, free-for-all “ask me anything” YouTube event on the subject of Patient Design. At noon ET on Tuesday, March 21, just go here. Or go there now and click the little “Notify me” button at bottom left. There’s no registration required, but you can sign up here on EventBrite for reminders.
The host is “The Medical Futurist,” Bertalan Meskó, in Budapest. I’ve had a long history of collaborating with “Berci” (his nickname); my first blog post about him was 13 years ago yesterday, he endorsed my 2013 book Let Patients Help, and I’ve lectured at his course at Semelweiss University.
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