e-Patient Dave

Power to the Patient!

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December 2, 2022 By e-Patient Dave Leave a Comment

When Patients Design the Care They Want: the Boston Women’s Health Collective

A slide I often use

In August Medical Futurist Bertalan Meskó and I published Patient Design: The Importance of Including Patients in Designing Health Care in JMIR, in the Journal of Medical Internet Research (JMIR). It ties together aspects of both our work. He’s a medical futurist, less than half my age, with a clear vision of how medicine will work in a future unencumbered by today’s limits. For me, an advocate for patient empowerment, it’s rooted in patients having the power to get the care they want. Our views come together in the idea of patients designing the care they want. From our abstract:

… genuinely empowered people living their lives and managing their health according to their own priorities, in partnership and consultation with physicians as needed. 

[Read more…]

Filed Under: Culture change, Innovation, Leadership, Participatory Medicine, Patient-centered thinking Leave a Comment

October 8, 2021 By e-Patient Dave 3 Comments

Terrific WSJ essay on the evolving patient-physician relationship: “Can patients decide their own care?”

In the twelve years I’ve been studying the evolution of medical science and the sociology of healthcare – the relationships – I’ve never read anything that stopped me in my tracks with how it summed it all up so quickly. This one, by Talya Miron-Shatz, did. Click through and give it a read – it’s not long.


[Read more…]

Filed Under: Participatory Medicine, patient engagement, Patient-centered thinking Tagged With: feminism, participatory medicine, patient empowerment, patient engagement 3 Comments

July 29, 2020 By e-Patient Dave 5 Comments

My new work – Toronto’s PocketHealth: Cloud delivery of radiology images

Please put questions in comments at bottom of post. Thanks!

Immediate, contactless delivery of your radiology images – no more CDs, no more need to wait around or pay Fedex or put on your mask to come in and pick up the disk. Imaging studies delivered in the cloud.

[Read more…]

Filed Under: Advisory work, Health data, Innovation, patient engagement, Patient-centered thinking Tagged With: CT scans, gimme my DaM data, gimme my damn data, MRI, OpenNotes, patient empowerment, patient engagement, pockethealth, radiology 5 Comments

April 21, 2020 By e-Patient Dave 3 Comments

Tech-savvy patients: enter the “Patient Innovator Track” at FHIR DevDays!

Deadline Friday, May 22: See timeline below, learn more on the track page, then submit your application. Prizes, fame, community!

[Read more…]

Filed Under: FHIR, Health data, Innovation, Patient-centered tech, Patient-centered thinking 3 Comments

February 28, 2020 By e-Patient Dave Leave a Comment

Kidney Cancer Patient Symposium – free with livestream, Friday March 6


Free livestream: https://vimeo.com/event/23660


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Filed Under: e-patient resources, Events, patient engagement, Patient-centered thinking Leave a Comment

September 12, 2019 By e-Patient Dave Leave a Comment

Call for entries: four patient innovators will win a trip to Amsterdam! Are you one?

Have you done something useful with your medical data to help manage your health? (Or someone else’s)

Perhaps others would find it useful… either your exact tool or your general method! In any case, share it with us, and maybe you’ll get brought to Amsterdam for …

[Read more…]

Filed Under: Culture change, FHIR, Health data, Innovation, Participatory Medicine, patient engagement, Patient-centered tech, Patient-centered thinking, superpatients Leave a Comment

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