e-Patient Dave

Toward a New Science of Patient Engagement

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Announcing the inaugural American “Patient Innovator Track” at FHIR DevDays

“What if technically minded patients had access to their data from hospitals, labs, and apps? What if they could collect the data themselves and massage and format it however they like?”

I am so in love with this. Those are the opening words of this event’s web page. It’s the next step after November’s news about the first edition of FHIR’s Patient Innovator Track … the only such track I know of at any IT conference in the world. YAY!

The full announcement is here including how to apply for the Patient Innovator competition. Four finalists will be flown to DevDays (including travel expenses) to present to the judges and attend the whole conference if they want!

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Call for entries: four patient innovators will win a trip to Amsterdam! Are you one?

Have you done something useful with your medical data to help manage your health? (Or someone else’s)

Perhaps others would find it useful… either your exact tool or your general method! In any case, share it with us, and maybe you’ll get brought to Amsterdam for …

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Book review: Augmented Health(care):
the end of the beginning, by Lucien Engelen

This book is so good I don’t know where to start. Just read it. (There’s an introductory 20% discount on the e-book below.)

Except – seriously – don’t read it if you demand a roadmap from here to the future. This is from the future. The image above, of a kid with a telescope, has been in the author’s office since I first met him, but until I was halfway through this book I didn’t understand why.

In Augmented Health(care) Dutch innovator Lucien Engelen of Radboud University Medical Center goes on a tour of the landscape that may strike the unfamiliar as manic or just plain nuts. Don’t trust that reaction – listen. He is unbound by the traditional view but absolutely bound to a future world where health – and care – are augmented such that things actually work.

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“Patients are the most underused resource” – Warner Slack, 1933-2018

Teaching at Harvard Medical School, 2012 (Photo: Paul Levy)

A great, great man has passed away – a man I quote in half my speeches.  I was privileged to know him enough to feel grateful about it, and especially grateful to have been able to visit him a few times in his final weeks. It’s Warner Slack, the one who famously said in the 1970s that patients are the most underutilized resource in healthcare.

There’s so much to say about him, but I’ll mostly let others speak, partly because it’s hard to know what to add. Here are a few things.
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