e-Patient Dave

Democratizing Healthcare

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April 25, 2022 By e-Patient Dave Leave a Comment

Speeches as empowerment: transforming the culture of care

Speaking isn’t just a business – it’s a vehicle for accomplishing what we really need: changing how people think … especially, empowering them to take effective action, to become involved in their health. Here’s a photo from a speech to radiologists, encouraging them to share images with patients:

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Filed Under: Clinical trials, Culture change, Events, Innovation, Participatory Medicine, patient engagement, public speaking Tagged With: clinical trials, healthcare speakers, participatory medicine, patient empowerment, patient engagement Leave a Comment

April 14, 2022 By e-Patient Dave 1 Comment

Patient engagement in glaucoma: new speech to medical librarians

This is my second speech to NNLM, the Network of the National Library of Medicine. As I said in announcing the first one,

Medical librarians (“medlibs”) have always been a magical resource, to me, because in addition to helping researchers and medicos, they can help ordinary people dig up information they need but don’t know where to find. It’s truly empowering.

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Filed Under: Glaucoma, patient engagement Tagged With: blindness, eye drops, glaucoma, home tonometry, patient empowerment, patient engagement, tonometry 1 Comment

November 15, 2021 By e-Patient Dave 8 Comments

Time to practice what I preach, again: this time it’s glaucoma.

I have a new diagnosis. This post starts with a little history for context.


Ten years ago, three years into evangelizing patient engagement based on my kidney cancer story, I posted Time to practice what I preach: I have skin cancer again. Noting the pattern that highly engaged patients everywhere follow, I blogged that it was time to …

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Filed Under: Participatory Medicine, patient engagement, Patient-centered tech Tagged With: eye pressure, glaucoma, iop, ophthalmology, patient empowerment, patient engagement, tonometry 8 Comments

November 5, 2021 By e-Patient Dave Leave a Comment

Ethics and barriers: BMJ webinars on patient access to medical records

The BMJ (formerly the British Medical Journal) continues to lead the world in patient & public partnership with clinicians, including more coverage of patient empowerment topics than anyone else I know in medical publishing. Some of the issues are unique to Britain but many are global cultural issues – not least being the balance of power between clinicians and the patients they serve.

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Filed Under: Culture change, Government, Health data, Health policy, Innovation, patient engagement, Patient-centered tech Tagged With: health IT, medical records, OpenNotes, patient empowerment Leave a Comment

October 8, 2021 By e-Patient Dave 3 Comments

Terrific WSJ essay on the evolving patient-physician relationship: “Can patients decide their own care?”

In the twelve years I’ve been studying the evolution of medical science and the sociology of healthcare – the relationships – I’ve never read anything that stopped me in my tracks with how it summed it all up so quickly. This one, by Talya Miron-Shatz, did. Click through and give it a read – it’s not long.


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Filed Under: Participatory Medicine, patient engagement, Patient-centered thinking Tagged With: feminism, participatory medicine, patient empowerment, patient engagement 3 Comments

October 4, 2021 By e-Patient Dave 1 Comment

New podcasts & webinars #1: “Interoperability & Equity” for HIMSS

There’s been an interesting surge in evangelist activity recently: I’ve been involved in several podcasts and webinars, all giving new life to the “gimme my data” movement. Here’s one that went live today on the HIMSS Learning Network. (It’s free but you may need to register.)

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Filed Under: FHIR, Government, Health data, Media coverage, Participatory Medicine, patient engagement Tagged With: fhir, health data, interoperability, patient empowerment, patient engagement 1 Comment

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