People in a hurry can skip to the product listings below, but we hope you’ll take a moment to learn about this fallen hero of the healthcare revolution.
[Read more…]Mighty Casey’s estate sale: broadcasting tech, modern and rare!
Is Beth Israel lying, denying, or complying?
I am really irritated. My hospital has told me they’re not supporting the federally required FHIR standard to let me access my health data. Is this legal??
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Important update: a robust Twitter thread is drawing lots of answers on whether this is legal. Some of it is “gray area” but among other things:
- At present, even if their behavior is a violation, there’s no penalty!
- But by end of 2023, if they don’t have this, they might not get any more payments from Medicare(!)
- There are three separate requirements.
- System vendors are required (today) to offer this feature to their buyers (hospitals).
- Care providers (hospitals etc) aren’t required to buy them and offer them to patients (yet)
- But by end of 2023, providers will have to offer this to patients, if they want to get paid by CMS (Medicare)
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Resuming the original post:
[Read more…]Speeches as empowerment: transforming the culture of care
Speaking isn’t just a business – it’s a vehicle for accomplishing what we really need: changing how people think … especially, empowering them to take effective action, to become involved in their health. Here’s a photo from a speech to radiologists, encouraging them to share images with patients:
Patient engagement in glaucoma: new speech to medical librarians
This is my second speech to NNLM, the Network of the National Library of Medicine. As I said in announcing the first one,
[Read more…]Medical librarians (“medlibs”) have always been a magical resource, to me, because in addition to helping researchers and medicos, they can help ordinary people dig up information they need but don’t know where to find. It’s truly empowering.
We’re back, part 2: FHIR DevDays Cleveland, with new patient sessions!
I’m thrilled to share the next great news in the recovery and reboot of the healthcare conference world. Two weeks ago I shared “We’re back!” about my next real-life keynote in Berlin – the first in two years. Now this, also the first in two years: FHIR DevDays, the twice-annual conference for software developers working on FHIR, the health data interoperability standard I’ve often blogged about. I’m equally thrilled to again be the DevDays Patient Track lead. It will be so good to see people again and enjoy the random encounters in hallways and pubs.
[Read more…]Time to practice what I preach, again: this time it’s glaucoma.
I have a new diagnosis. This post starts with a little history for context.
Ten years ago, three years into evangelizing patient engagement based on my kidney cancer story, I posted Time to practice what I preach: I have skin cancer again. Noting the pattern that highly engaged patients everywhere follow, I blogged that it was time to …
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