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November 23, 2020 By e-Patient Dave 2 Comments

#LongCOVID patient researcher Hannah Wei kicks off FHIR DevDays

For two years I’ve blogged about DevDays, the twice-annual software developer conference for the FHIR software standard for health data. November 17-20 was this fall’s edition, and in the opening session, Hannah Wei gave a keynote unlike any other.

Fifteen minute video:

[Read more…]

Filed Under: Coronavirus, FHIR, Health data, Innovation, Patient-centered tech Tagged With: coronavirus, covid, health data, long haul, longcovid, patient centered care 2 Comments

May 18, 2020 By e-Patient Dave 1 Comment

A glimpse of how FHIR works, for people who’ve fought to get their data

This is a quick post without a lot of explanation, targeted to perhaps a small number of people but perhaps also intriguing to a lot more. This image is a quick summary of the post below:

[What’s FHIR? I’ve been blogging about it for more than a year; here are all the posts, newest first, though if you’re new to the concept please start here. This post doesn’t require understanding FHIR’s significance, but it sure helps.]

The context: someone needs to get their health data.

[Read more…]

Filed Under: FHIR, Health data, Innovation, Patient-centered tech 1 Comment

April 21, 2020 By e-Patient Dave 3 Comments

Tech-savvy patients: enter the “Patient Innovator Track” at FHIR DevDays!

Deadline Friday, May 22: See timeline below, learn more on the track page, then submit your application. Prizes, fame, community!

[Read more…]

Filed Under: FHIR, Health data, Innovation, Patient-centered tech, Patient-centered thinking 3 Comments

November 27, 2019 By e-Patient Dave 1 Comment

And the Patient Innovation winner is …

At the closing session Friday in Amsterdam, Grahame Grieve (“the father of FHIR”) hands a big check (so to speak) to patient John Keyes, creator of BloodNumbers. He created it for his personal use, but he’s open to adapting it for other uses.

John Keyes, blood disease patient who created BloodNumbers, a simple app to track his ongoing test results.

[Read more…]

Filed Under: FHIR, Health data, Innovation, Patient-centered tech 1 Comment

October 30, 2019 By e-Patient Dave 1 Comment

FHIR #DevDays announces Patient Innovator Track finalists: two companies, two patients!

The organizers of the FHIR #DevDays conference next month have announced the four finalists who will come to Amsterdam to present their ideas to a panel of judges. I’ll copy/paste here from the conference’s Patient Innovator Track page:


The following applicants have been invited to present their achievement on Wednesday, November 20: [Alphabetically by presenter’s name]

[Read more…]

Filed Under: FHIR, Health data, Innovation, patient engagement, Patient-centered tech, Uncategorized 1 Comment

September 12, 2019 By e-Patient Dave Leave a Comment

Call for entries: four patient innovators will win a trip to Amsterdam! Are you one?

Have you done something useful with your medical data to help manage your health? (Or someone else’s)

Perhaps others would find it useful… either your exact tool or your general method! In any case, share it with us, and maybe you’ll get brought to Amsterdam for …

[Read more…]

Filed Under: Culture change, FHIR, Health data, Innovation, Participatory Medicine, patient engagement, Patient-centered tech, Patient-centered thinking, superpatients Leave a Comment

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