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Time to practice what I preach, again: this time it’s glaucoma.
I have a new diagnosis. This post starts with a little history for context.
Ten years ago, three years into evangelizing patient engagement based on my kidney cancer story, I posted Time to practice what I preach: I have skin cancer again. Noting the pattern that highly engaged patients everywhere follow, I blogged that it was time to …
[Read more…]Ethics and barriers: BMJ webinars on patient access to medical records
The BMJ (formerly the British Medical Journal) continues to lead the world in patient & public partnership with clinicians, including more coverage of patient empowerment topics than anyone else I know in medical publishing. Some of the issues are unique to Britain but many are global cultural issues – not least being the balance of power between clinicians and the patients they serve.
[Read more…]New podcasts and webinars, #2: Harry Glorikian’s “The Future You” (two parts)
I mentioned last week that there’s been an upsurge in people reaching out to carry forward the message we e-patients have been evangelizing for ages. Hallelujah!
That post was an interview for the HIMSS Learning Network. Today’s is really exciting: Harry Glorikian, author of MoneyBall Medicine, has a new book coming, The Future You, about the new world of data-empowered medicine, with a rebranded podcast to match, and he asked me to be his first guest! Ya think I was ready for that?? It went great – so great he made it his first two episodes!
[Read more…]Question for the diabetes community: should Freestyle readings match finger sticks?
This is an exercise in “peer to peer health advice.” I’m asking for advice, from “the DOC” (diabetes online community) – more on that below.
Here’s a message I received from someone who’s really peeved about a technology for managing his Type 2 diabetes. Does your experience match his? Should his digital device match the results from finger sticks? If not, for heaven’s sake why?
[Read more…]#LongCOVID patient researcher Hannah Wei kicks off FHIR DevDays
For two years I’ve blogged about DevDays, the twice-annual software developer conference for the FHIR software standard for health data. November 17-20 was this fall’s edition, and in the opening session, Hannah Wei gave a keynote unlike any other.
Fifteen minute video:
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