e-Patient Dave

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February 28, 2023 By e-Patient Dave Leave a Comment

Dump the jive from JPM & VIVE: seek real change with me at NextMed Health

I’m among the advisory vanguard for NextMed Health, and I’m hoping to speak there too. I hope you’ll come. Register here, or email me for a discount code.

Daniel Kraft’s events are different.

[Read more…]

Filed Under: Culture change, disruption, Events, Patient-centered tech, Patients as Consumers, superpatients Tagged With: disruptive innovation, healthcare, medicine, patient empowerment Leave a Comment

November 15, 2021 By e-Patient Dave 9 Comments

Time to practice what I preach, again: this time it’s glaucoma.

I have a new diagnosis. This post starts with a little history for context.


Ten years ago, three years into evangelizing patient engagement based on my kidney cancer story, I posted Time to practice what I preach: I have skin cancer again. Noting the pattern that highly engaged patients everywhere follow, I blogged that it was time to …

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Filed Under: Participatory Medicine, patient engagement, Patient-centered tech Tagged With: eye pressure, glaucoma, iop, ophthalmology, patient empowerment, patient engagement, tonometry 9 Comments

November 5, 2021 By e-Patient Dave Leave a Comment

Ethics and barriers: BMJ webinars on patient access to medical records

The BMJ (formerly the British Medical Journal) continues to lead the world in patient & public partnership with clinicians, including more coverage of patient empowerment topics than anyone else I know in medical publishing. Some of the issues are unique to Britain but many are global cultural issues – not least being the balance of power between clinicians and the patients they serve.

[Read more…]

Filed Under: Culture change, Government, Health data, Health policy, Innovation, patient engagement, Patient-centered tech Tagged With: health IT, medical records, OpenNotes, patient empowerment Leave a Comment

October 12, 2021 By e-Patient Dave Leave a Comment

New podcasts and webinars, #2: Harry Glorikian’s “The Future You” (two parts)

I mentioned last week that there’s been an upsurge in people reaching out to carry forward the message we e-patients have been evangelizing for ages. Hallelujah!

That post was an interview for the HIMSS Learning Network. Today’s is really exciting: Harry Glorikian, author of MoneyBall Medicine, has a new book coming, The Future You, about the new world of data-empowered medicine, with a rebranded podcast to match, and he asked me to be his first guest! Ya think I was ready for that?? It went great – so great he made it his first two episodes!

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Filed Under: FHIR, Health data, Innovation, Participatory Medicine, patient engagement, Patient-centered tech Leave a Comment

May 12, 2021 By e-Patient Dave 9 Comments

Question for the diabetes community: should Freestyle readings match finger sticks?

Screen capture from Peer To Peer Health Advice video

This is an exercise in “peer to peer health advice.” I’m asking for advice, from “the DOC” (diabetes online community) – more on that below.

Here’s a message I received from someone who’s really peeved about a technology for managing his Type 2 diabetes. Does your experience match his? Should his digital device match the results from finger sticks? If not, for heaven’s sake why?

[Read more…]

Filed Under: diabetes, e-patient requests, Patient-centered tech Tagged With: cgm, diabetes, e-patients, freestyle libre, type 2 diabetes 9 Comments

November 23, 2020 By e-Patient Dave 2 Comments

#LongCOVID patient researcher Hannah Wei kicks off FHIR DevDays

For two years I’ve blogged about DevDays, the twice-annual software developer conference for the FHIR software standard for health data. November 17-20 was this fall’s edition, and in the opening session, Hannah Wei gave a keynote unlike any other.

Fifteen minute video:

[Read more…]

Filed Under: Coronavirus, FHIR, Health data, Innovation, Patient-centered tech Tagged With: coronavirus, covid, health data, long haul, longcovid, patient centered care 2 Comments

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