Democratizing Healthcare
I have a new diagnosis. This post starts with a little history for context.
Ten years ago, three years into evangelizing patient engagement based on my kidney cancer story, I posted Time to practice what I preach: I have skin cancer again. Noting the pattern that highly engaged patients everywhere follow, I blogged that it was time to …
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The BMJ (formerly the British Medical Journal) continues to lead the world in patient & public partnership with clinicians, including more coverage of patient empowerment topics than anyone else I know in medical publishing. Some of the issues are unique to Britain but many are global cultural issues – not least being the balance of power between clinicians and the patients they serve.
[Read more…]I mentioned last week that there’s been an upsurge in people reaching out to carry forward the message we e-patients have been evangelizing for ages. Hallelujah!
That post was an interview for the HIMSS Learning Network. Today’s is really exciting: Harry Glorikian, author of MoneyBall Medicine, has a new book coming, The Future You, about the new world of data-empowered medicine, with a rebranded podcast to match, and he asked me to be his first guest! Ya think I was ready for that?? It went great – so great he made it his first two episodes!
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This is an exercise in “peer to peer health advice.” I’m asking for advice, from “the DOC” (diabetes online community) – more on that below.
Here’s a message I received from someone who’s really peeved about a technology for managing his Type 2 diabetes. Does your experience match his? Should his digital device match the results from finger sticks? If not, for heaven’s sake why?
[Read more…]For two years I’ve blogged about DevDays, the twice-annual software developer conference for the FHIR software standard for health data. November 17-20 was this fall’s edition, and in the opening session, Hannah Wei gave a keynote unlike any other.
Fifteen minute video:
This is a quick post without a lot of explanation, targeted to perhaps a small number of people but perhaps also intriguing to a lot more. This image is a quick summary of the post below:
[What’s FHIR? I’ve been blogging about it for more than a year; here are all the posts, newest first, though if you’re new to the concept please start here. This post doesn’t require understanding FHIR’s significance, but it sure helps.]