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Democratizing Healthcare

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November 23, 2020 By e-Patient Dave 2 Comments

#LongCOVID patient researcher Hannah Wei kicks off FHIR DevDays

For two years I’ve blogged about DevDays, the twice-annual software developer conference for the FHIR software standard for health data. November 17-20 was this fall’s edition, and in the opening session, Hannah Wei gave a keynote unlike any other.

Fifteen minute video:

[Read more…]

Filed Under: Coronavirus, FHIR, Health data, Innovation, Patient-centered tech Tagged With: coronavirus, covid, health data, long haul, longcovid, patient centered care 2 Comments

September 26, 2020 By e-Patient Dave Leave a Comment

“My doc’s practice closed. Need my chart. What do I do?”

That’s a paraphrase of the starting tweet in a valuable thread today from a colleague in OpenNotes, Cait DesRoches. Here are the tweets. (I hope this all comes through on the blog; email subscribers, if necessary, click the headline to read this online.)

Hey med records experts – I need a consult. My sis needs her records from an independent prac that closed. She’s tried calling. Where should she go next to escalate the request? She’s in NYC @GraceCordovano @HealthPrivacy @ePatientDave

— Cait DesRoches (@cmd418) September 26, 2020
[Read more…]

Filed Under: FHIR, Health data Tagged With: health data, health IT, medical records, open notes, OpenNotes, patient advocates, patient empowerment Leave a Comment

July 29, 2020 By e-Patient Dave 5 Comments

My new work – Toronto’s PocketHealth: Cloud delivery of radiology images

Please put questions in comments at bottom of post. Thanks!

Immediate, contactless delivery of your radiology images – no more CDs, no more need to wait around or pay Fedex or put on your mask to come in and pick up the disk. Imaging studies delivered in the cloud.

[Read more…]

Filed Under: Advisory work, Health data, Innovation, patient engagement, Patient-centered thinking Tagged With: CT scans, gimme my DaM data, gimme my damn data, MRI, OpenNotes, patient empowerment, patient engagement, pockethealth, radiology 5 Comments

June 26, 2020 By e-Patient Dave Leave a Comment

Olivier Karasira wins People’s Choice award at FHIR DevDays Patient Track

After last week’s FHIR DevDays conference, I blogged on Wednesday that Morgan Gleason had won the judges’ award in the Patient Innovator Track. There was another winner – for the first time we did a People’s Choice award, and it was won by Olivier Karasira, a man in Rwanda working on a remarkable project: “Turning Paper into FHIR in Africa.”

[Read more…]

Filed Under: FHIR, Health data, patient engagement Leave a Comment

June 24, 2020 By e-Patient Dave 1 Comment

Morgan Gleason, 21, wins the second FHIR DevDays Patient Track

Last week at the virtual DevDays conference (for the FHIR software standard that I’ve blogged about so much) we held the second Patient Innovator Track. Watch the winning pitch, 10 minutes long, from Morgan Gleason, fresh out of college. She describes her complex situation and how she’s learned to deal with it manually, and tells the FHIR developer community what she needs – what she wants them to help create, so she can walk into each doctor visit fully prepared without going through all the work she has to do now:

[Read more…]

Filed Under: FHIR, Health data, patient engagement Tagged With: devdays, fhir, health data, health IT, hl7, morgan gleason, patient innovation 1 Comment

May 18, 2020 By e-Patient Dave 1 Comment

A glimpse of how FHIR works, for people who’ve fought to get their data

This is a quick post without a lot of explanation, targeted to perhaps a small number of people but perhaps also intriguing to a lot more. This image is a quick summary of the post below:

[What’s FHIR? I’ve been blogging about it for more than a year; here are all the posts, newest first, though if you’re new to the concept please start here. This post doesn’t require understanding FHIR’s significance, but it sure helps.]

The context: someone needs to get their health data.

[Read more…]

Filed Under: FHIR, Health data, Innovation, Patient-centered tech 1 Comment

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