e-Patient Dave

Toward a New Science of Patient Engagement

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Announcing the inaugural American “Patient Innovator Track” at FHIR DevDays

“What if technically minded patients had access to their data from hospitals, labs, and apps? What if they could collect the data themselves and massage and format it however they like?”

I am so in love with this. Those are the opening words of this event’s web page. It’s the next step after November’s news about the first edition of FHIR’s Patient Innovator Track … the only such track I know of at any IT conference in the world. YAY!

The full announcement is here including how to apply for the Patient Innovator competition. Four finalists will be flown to DevDays (including travel expenses) to present to the judges and attend the whole conference if they want!

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For all who hate computers in medicine: here’s what we got before.

Visit notes from my ENT appointment, Sept 15, 2009

The photo above shows what “visit notes” from a doctor appointment might look like in the era before computers. Just two days before my first speech where I said “Gimme my damn data,” I had an ENT visit, and on the way out I asked for a copy of the doctor’s notes. The clerk snickered out loud and showed it to me, saying, “If you really want it….”

No joke; this is what the doctor had recorded.

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And the Patient Innovation winner is …

At the closing session Friday in Amsterdam, Grahame Grieve (“the father of FHIR”) hands a big check (so to speak) to patient John Keyes, creator of BloodNumbers. He created it for his personal use, but he’s open to adapting it for other uses.

John Keyes, blood disease patient who created BloodNumbers, a simple app to track his ongoing test results.

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A tale of two patients, redux

This is something I rarely do: I’m reposting, verbatim, a previous post, because its relevance has accelerated. Please give it another read.

In June I wrote here about the ten part blog series I recently did on Tincture, about why I believe the HL7 FHIR standard promises to be so important in achieving the long-felt need for patients to have access to every bit of their health data … to “let patients help” improve care, as my book and TED Talk have said for YEARS. But last fall I gave a talk that expressed my impatience. The title:

“From ‘Let Patients Help’ to ‘Get Out of My Way’:
why some patients want ALL their data now”

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FHIR #DevDays announces Patient Innovator Track finalists: two companies, two patients!

The organizers of the FHIR #DevDays conference next month have announced the four finalists who will come to Amsterdam to present their ideas to a panel of judges. I’ll copy/paste here from the conference’s Patient Innovator Track page:

The following applicants have been invited to present their achievement on Wednesday, November 20: [Alphabetically by presenter’s name]

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Call for entries: four patient innovators will win a trip to Amsterdam! Are you one?

Have you done something useful with your medical data to help manage your health? (Or someone else’s)

Perhaps others would find it useful… either your exact tool or your general method! In any case, share it with us, and maybe you’ll get brought to Amsterdam for …

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