People in a hurry can skip to the product listings below, but we hope you’ll take a moment to learn about this fallen hero of the healthcare revolution.
[Read more…]Mighty Casey’s estate sale: broadcasting tech, modern and rare!
Is Beth Israel lying, denying, or complying?
I am really irritated. My hospital has told me they’re not supporting the federally required FHIR standard (a “FHIR endpoint”) to let me access my health data. Is this legal??
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Important update: a robust Twitter thread is drawing lots of answers on whether this is legal. Some of it is “gray area” but among other things:
- At present, even if their behavior is a violation, there’s no penalty!
- But by end of 2023, if they don’t have this, they might not get any more payments from CMS!
- That’s Medicare and Medicaid, which are about 40% of all US hospital revenue
- There are three separate requirements.
- System vendors are required (today) to offer a FHIR endpoint to their buyers (hospitals).
- Well-known large vendors like Epic and Cerner offer it.
- But Beth Israel Deaconess is its own system developer, and they haven’t created one.
- Care providers (hospitals etc) aren’t required to buy them and offer them to patients (yet)
- But by end of 2023, providers will have to offer this to patients, if they want to get paid by CMS (Medicare).
- System vendors are required (today) to offer a FHIR endpoint to their buyers (hospitals).
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Resuming the original post:
[Read more…]Ethics and barriers: BMJ webinars on patient access to medical records
The BMJ (formerly the British Medical Journal) continues to lead the world in patient & public partnership with clinicians, including more coverage of patient empowerment topics than anyone else I know in medical publishing. Some of the issues are unique to Britain but many are global cultural issues – not least being the balance of power between clinicians and the patients they serve.
[Read more…]The problem with “herd immunity” as a COVID-19 strategy
Caution: This post is not a prediction. It’s just a tutorial about the concept of herd immunity, with an eye to why it’s probably not an approach the US wants to take in solving the complex problems we’ve gotten ourselves into with COVID-19.
Click this graphic to go see a six second animation of these images, created in 2017 by Reddit user TheOtherEdmund. You many need to watch a few times. Get a feel for the differences in what happens in the different blocks, and come back to discuss:
Please support this health data victim’s legal fees
This post is an unusual project for me, and not everyone will want to do it, but I know some will want to pitch in, and maybe someone out there will have a magic wand to undo the harm that’s apparently been done by years of stonewalling.
[Read more…]A decade advocating for OpenNotes
Today in an email thread I realized it’s a decade since the OpenNotes work started, via Tom Delbanco and Jan Walker, and now promoted so brilliantly by Liz Salmi. How great that back then my PCP Danny Sands and I were among the first crew of OpenNotes study participants!
I decided to mark the occasion by creating an /OpenNotes page on my site, listing all the blog posts and articles that have emerged as part of the work.
(Interesting to observe: before cancer rearranged my life, I don’t think I ever stuck with any cause for ten years straight. Funny how that happens.)
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