I’m among the advisory vanguard for NextMed Health, and I’m hoping to speak there too. I hope you’ll come. Register here, or email me for a discount code.
Dump the jive from JPM & VIVE: seek real change with me at NextMed Health
“From #73cents to FHIR”: keynote at the Redox Connect customer conference
Patient voices have been working for decades to achieve access to their medical records, which have always been locked up in the hospital. No more: new rules went into effect on October 6 that mean all your health data must be available for download by apps, online, by end of year.
This so-called “Cures Rule” is part of the continuing work of the 21st Century Cures Act enacted by Congress in 2015. The Act includes many other things to improve development of cures, but for patients a vital new requirement is that health data must now move easily between computers. It’s common sense for everyone in healthcare, and for patients it’s an immense win for justice (fairness): at last we can see about ourselves what the people treating us can see.
[Read more…]The Autonomic Nervous System: the Medical Frontier of the 21st Century
In July I gave a virtual talk for Dysautonomia International. Dysautonomia is a family of different conditions, sometimes surprisingly diverse, all related to the autonomic nervous system (ANS). A patient-started and patient-run organization, Dysautonomia International is doing a stupendous job of educating and advocating about this field. The purpose of my talk was to encourage the membership, too, to be proactive in speaking out about how they see things.
The video below is the entire 82 minute closing session of the conference. My talk starts around 24:00, but I encourage you to watch those first minutes, to listen in as patient/founder Lauren Stiles presents what the organization has been doing and introduces this year’s three award winners. This is a great advocacy organization!
[Read more…]Speeches as empowerment: transforming the culture of care
Speaking isn’t just a business – it’s a vehicle for accomplishing what we really need: changing how people think … especially, empowering them to take effective action, to become involved in their health. Here’s a photo from a speech to radiologists, encouraging them to share images with patients:
Free Web lecture: An e-patient faces glaucoma. Not good. Time to learn.
I’m thrilled to report the third entry in my new blog series “We’re back!”, as the conference speaking business resumes. This one is a Web event – free to the public – hosted by the National Network of Libraries of Medicine. See the Register Now link here.
[Read more…]Kidney Cancer Patient Symposium – free with livestream, Friday March 6
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