Power to the Patient!
This post is a departure from my usual: it’s about a specific company, for a specific reason. First, some background.
Since 2007, Thanksgiving has been a time of reflection for me. That’s the year I was diagnosed as almost dead, yet by Fall I got to hear “looks like you beat it!” What a Thanksgiving that was.
I know firsthand that when a person like me is in need, being cared for and about makes all the difference.
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In August Medical Futurist Bertalan Meskó and I published Patient Design: The Importance of Including Patients in Designing Health Care in JMIR, in the Journal of Medical Internet Research (JMIR). It ties together aspects of both our work. He’s a medical futurist, less than half my age, with a clear vision of how medicine will work in a future unencumbered by today’s limits. For me, an advocate for patient empowerment, it’s rooted in patients having the power to get the care they want. Our views come together in the idea of patients designing the care they want. From our abstract:
[Read more…]… genuinely empowered people living their lives and managing their health according to their own priorities, in partnership and consultation with physicians as needed.
Speaking isn’t just a business – it’s a vehicle for accomplishing what we really need: changing how people think … especially, empowering them to take effective action, to become involved in their health. Here’s a photo from a speech to radiologists, encouraging them to share images with patients:
I have a new diagnosis. This post starts with a little history for context.
Ten years ago, three years into evangelizing patient engagement based on my kidney cancer story, I posted Time to practice what I preach: I have skin cancer again. Noting the pattern that highly engaged patients everywhere follow, I blogged that it was time to …
[Read more…]I mentioned last week that there’s been an upsurge in people reaching out to carry forward the message we e-patients have been evangelizing for ages. Hallelujah!
That post was an interview for the HIMSS Learning Network. Today’s is really exciting: Harry Glorikian, author of MoneyBall Medicine, has a new book coming, The Future You, about the new world of data-empowered medicine, with a rebranded podcast to match, and he asked me to be his first guest! Ya think I was ready for that?? It went great – so great he made it his first two episodes!
[Read more…]In the twelve years I’ve been studying the evolution of medical science and the sociology of healthcare – the relationships – I’ve never read anything that stopped me in my tracks with how it summed it all up so quickly. This one, by Talya Miron-Shatz, did. Click through and give it a read – it’s not long.
