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December 4, 2023 By e-Patient Dave 2 Comments

I’m thankful for care that cares – and for those making it practical

crop woman with heart on palms
Photo by Puwadon Sang-ngern on Pexels.com

This post is a departure from my usual: it’s about a specific company, for a specific reason. First, some background.

Since 2007, Thanksgiving has been a time of reflection for me. That’s the year I was diagnosed as almost dead, yet by Fall I got to hear “looks like you beat it!” What a Thanksgiving that was.

I know firsthand that when a person like me is in need, being cared for and about makes all the difference.

[Read more…]

Filed Under: Advisory work, Culture change, Leadership, Participatory Medicine, Patient-centered thinking Tagged With: caring, compassion, human understanding, nps, nrc health, patient satisfaction 2 Comments

December 2, 2022 By e-Patient Dave Leave a Comment

When Patients Design the Care They Want: the Boston Women’s Health Collective

A slide I often use

In August Medical Futurist Bertalan Meskó and I published Patient Design: The Importance of Including Patients in Designing Health Care in JMIR, in the Journal of Medical Internet Research (JMIR). It ties together aspects of both our work. He’s a medical futurist, less than half my age, with a clear vision of how medicine will work in a future unencumbered by today’s limits. For me, an advocate for patient empowerment, it’s rooted in patients having the power to get the care they want. Our views come together in the idea of patients designing the care they want. From our abstract:

… genuinely empowered people living their lives and managing their health according to their own priorities, in partnership and consultation with physicians as needed. 

[Read more…]

Filed Under: Culture change, Innovation, Leadership, Participatory Medicine, Patient-centered thinking Leave a Comment

April 25, 2022 By e-Patient Dave Leave a Comment

Speeches as empowerment: transforming the culture of care

Speaking isn’t just a business – it’s a vehicle for accomplishing what we really need: changing how people think … especially, empowering them to take effective action, to become involved in their health. Here’s a photo from a speech to radiologists, encouraging them to share images with patients:

[Read more…]

Filed Under: Clinical trials, Culture change, Events, Innovation, Participatory Medicine, patient engagement, public speaking Tagged With: clinical trials, healthcare speakers, participatory medicine, patient empowerment, patient engagement Leave a Comment

November 15, 2021 By e-Patient Dave 9 Comments

Time to practice what I preach, again: this time it’s glaucoma.

I have a new diagnosis. This post starts with a little history for context.


Ten years ago, three years into evangelizing patient engagement based on my kidney cancer story, I posted Time to practice what I preach: I have skin cancer again. Noting the pattern that highly engaged patients everywhere follow, I blogged that it was time to …

[Read more…]

Filed Under: Participatory Medicine, patient engagement, Patient-centered tech Tagged With: eye pressure, glaucoma, iop, ophthalmology, patient empowerment, patient engagement, tonometry 9 Comments

October 12, 2021 By e-Patient Dave Leave a Comment

New podcasts and webinars, #2: Harry Glorikian’s “The Future You” (two parts)

I mentioned last week that there’s been an upsurge in people reaching out to carry forward the message we e-patients have been evangelizing for ages. Hallelujah!

That post was an interview for the HIMSS Learning Network. Today’s is really exciting: Harry Glorikian, author of MoneyBall Medicine, has a new book coming, The Future You, about the new world of data-empowered medicine, with a rebranded podcast to match, and he asked me to be his first guest! Ya think I was ready for that?? It went great – so great he made it his first two episodes!

[Read more…]

Filed Under: FHIR, Health data, Innovation, Participatory Medicine, patient engagement, Patient-centered tech Leave a Comment

October 8, 2021 By e-Patient Dave 3 Comments

Terrific WSJ essay on the evolving patient-physician relationship: “Can patients decide their own care?”

In the twelve years I’ve been studying the evolution of medical science and the sociology of healthcare – the relationships – I’ve never read anything that stopped me in my tracks with how it summed it all up so quickly. This one, by Talya Miron-Shatz, did. Click through and give it a read – it’s not long.


[Read more…]

Filed Under: Participatory Medicine, patient engagement, Patient-centered thinking Tagged With: feminism, participatory medicine, patient empowerment, patient engagement 3 Comments

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