Events and travels, winter 2019
It’s been a busy winter. Amid all the Facebook scandals and new government regulation work that’s going on, I thought I’d send an update on travels. Here are some visuals from a recent 17 day, six country, seven speech trip. (Fun facts: nine different hotels, and doing laundry in a Vienna laundromat that only takes instructions from a smartphone app.)

The background image is the HIMSS19 (health IT systems conference) logo repeated over and over and over and over, because that brutal exhausting conference is like that :-), and is the background of everything else.
Counterclockwise from left:
[Read more…]“Superpatients”: free webinar for medical librarians [February 2019]
Update: here’s the archive recording of the webinar.
Original post:
Tomorrow (Thursday Feb 21) at 2pm ET, for the second time I’ll be presenting the concept for my new book, Superpatients: Patients who extend science when all other options are gone. The first time was December, in a private webinar for the QI [quality improvement] Connect team in Scotland. Registration is open to the public here but that’s optional – at bottom I’ll paste in how you can join it at showtime, without registration. In any case it’s free and no obligation.

The Polluted Stream of Health Care Information: Health News Review podcast
It ticks me off that the excellent site HealthNewsReview.org is going out of business due to lack of funding. More on that below. This independent website has for 12+ years been teaching us all how to watch out for BS in health news stories; they’re so important for informed health consumers that over on the e-patient blog I’ve written about them a dozen times.
Here’s Episode 3 of “Power of the Patient”: Meet Dr. Danny Sands!
I’ve just posted Episode 3 of my new podcast, “The Power of the Patient.” Click on over, and catch up on Episodes 1 and 2, if you’re new here. Here it is: What Everyone Should Know About Getting the Best Care, with Dr. Danny Sands.
At last! Been waiting months to do this. The deservedly famous Dr. Danny Sands, one of the pioneers of patient partnerships and the whole e-patient movement, shares his perspective in two ways:
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“Responsive design” as a metaphor for patient capacity (PatientCritical podcast)
I was recently interviewed by PJ Mierau, founder of the PatientCritical coop in Canada, for his podcast. PJ came up with a new metaphor for how patients handle varying amounts of information, when their abilities or their capacity (due to illness) may vary: it’s a Web principle called “responsive design.” Below are some notes on that, and on patient co-ops. Here’s the episode, and here’s a rough outline:
[Read more…]
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