Tomorrow (Thursday Feb 21) at 2pm ET, for the second time I’ll be presenting the concept for my new book, Superpatients: Patients who extend science when all other options are gone. The first time was December, in a private webinar for the QI [quality improvement] Connect team in Scotland. Registration is open to the public here but that’s optional – at bottom I’ll paste in how you can join it at showtime, without registration. In any case it’s free and no obligation.[Read more…]
Like last month, here’s this month’s update on travels, events, and articles (including a first for me!).
In my travels if you’re in the area and want to connect, contact me.
- Big news: my first article as lead author in a medical journal (right)! (In the world of medical journals, being listed as the first author is a big deal.) Open Visit Notes: A Patient’s Perspective and Expanding National Experience, in the Journal of Oncology Practice, with Jan Walker RN MBA. Thank you to the OpenNotes team for managing this!
- Do you use online symptom checkers? Go for it but be wise: Last Friday I was interviewed by the Boston Globe (see below) to comment on a new BMJ article. It was such a stimulating topic I wrote a much-mentioned post about it on e-patients.net, and I hope to be writing more
- Amazing Ginny’s amazing knee surgery: my post last week has been updated with amazing new videos of her moving around.
This spring I had a couple of cases where people said “I wish I’d known you were coming – we could have had coffee!” (That’s always compelling to me…) So I’m going to try publishing a monthly update (more or less) of upcoming travels, newly added future events, and maybe a few other things. Short & sweet. Thank you to Casey Quinlan, a focused production machine if I ever saw one, for making this happen!
- June 7-13, Lucerne, Switzerland: IKF’s annual Swiss tour. Multiple keynotes and private meetings.
Upcoming travels & webcasts
- June 16-17, Chicago: NEHI’s National Healthcare Innovation Summit. Attending.
- June 17, London (via web): The King’s Fund, Digital Health Days Congress. Speaker.
- Link to come next week: June 26, 4:30 pm New York time, webcast: 20 minute speech “Being Heard as Possibility,” part of Rebel Jam, hosted by Rebels At Work, Corporate Rebels United and Change Agent Worldwide.
- I love this group! I first learned about them from Helen Bevan in 2013 and blogged about this movement on Forbes: The “Organizational Radical” Movement Comes To Medicine
- June 29, London:
- Private corporate event
- BMJ patient panel gathering
Recently added events (stay tuned for details!)
- Early September: Europe (to be announced)
- Mid September: 10 day tour of Alaska! These people are getting it bigtime and spreading the word!
- September 23-24: Medicine-X | Ed Bringing e-patient thinking to the medical education curriculum!
- November 4, DC: American Psychological Association Presidential Innovation Summit
- November 11, Sacramento: Transforming Healthcare Summit
My first-ever article in a clinical practice journal where I’m listed as First Author(!)
- “Open Visit Notes: A Patient’s Perspective and Expanding National Experience,” in ASCO’s Journal of Oncology Practice. It’s open access (free), to allow reading and sharing by patients.
Recent media mentions:
- Book: The Digital Doctor: Hope,Hype, and Harm at the Dawn of Medicine’s Computer Age by Bob Wachter (April 2015)
- May issue of ImproveDx: Newsletter of the Society to Improve Diagnosis in Medicine. In “Improving Communication of Test Results in a Changing World” by Susan Carr.
- May 30, IntrepidNow: #TalkHIT with CTG – Dave deBronkart (ePatient Dave), The Original ePatient Advocate
- May 28, AstraZeneca Health Connections: E-Patient Dave: “The Internet Brings Patients Together”
- May 14, Mayo Clinic “In the Loop” “‘Healing Words’ Program Creates Space for Patients to Reflect and Clarify” about my interview on facing death with hope
Hello, Thursday – here’s your dose of ePatient vitamin-D-for-Digest!
Social workers are superb participatory medicine practitioners. They get it. Here’s a post from The Social Work Helper with a nifty little virtuous-cycle quadrant image that outlines how, and why, the e-patient movement matters. “The E-Patient Movement”
Our friends over at The Incidental Economist noticed an item in the White House’s proposed budget related to the agricultural use of antibiotics. With the rise of antibiotic resistant bacteria, why are we still pumping antibiotics into cattle, pigs, and chickens to “promote their growth”? Modern farming practices promote growth just fine. The science of ag antibiotics, and why it should stop: “Agricultural antibiotics in the President’s budget request”
Cui bono (Latin, to whose benefit) in healthcare reform? Sarah Kliff has an interesting answer after studying insurance stock earnings reports. Health plans have far outstripped the S&P 500 for the last five years. “Health insurer stocks have crushed market averages since Obamacare passed”
Stephen Wilkins is a health policy thinker whose home on the web is something he calls the Mind the Gap Academy. He posted something on LinkedIn that is a pretty tight list of the Top 10 things a clinician can do to foster patient engagement. No tech required. “The Ten Commandments Of Patient Engagement”
The American College of Physicians (ACP) – the 2nd largest physician organization in the US, after the American Medical Association (AMA) – has jumped in to the pharma price fight with both feet. They announced this week that they were signing on to the Campaign for Sustainable RX Pricing. Here’s a piece from CNBC with the details: “Doctors group joins fight against ‘skyrocketing’ drug prices”
We love the internet. We wouldn’t be here talking to you if we didn’t. However, the Wild Wild Web can be a challenging place for advocates of all stripes. When I (Casey) came across a post on the Guardian’s site recently, it prompted me to put up a post about trolls on one of my own blogs. Here you go, weigh in with your thoughts. “Advocacy, trolls, and threats – oh my!”
Last but not least, our humor break for today, in which Dr. Grumpy ponders Zen and the art of cough drops. “Cough Drops“
Happy Wednesday! Or, as we used to call it in the cube farm, Hump Day. Here’s today’s edition of must-reads –
- If you listen to the rising tide of discussion about the cost of care, one of the things that’s -supposed- to help curb that hockey stick upward trajectory is technology. So we found it interesting when we tripped over this piece asking if patients have to pay for portal access. I (Casey) say “no” – you? “Should providers charge patients for portal access?“
- Man the battle stations – the White House wants Medicare to be able to negotiate pricing with pharma. Since the introduction of Medicare Part D, CMS has been specifically prohibited to negotiate drug pricing with pharmaceutical companies. This could get loud. “Obama administration seeks to negotiate Medicare drug prices“
- The Disneyland measles outbreak, suspected to be accelerated by parents who have refused the MMR vaccine for their children, has raised a lot of heated discussion all over everywhere. I (Casey) almost died from measles when I was 9 years old, the same year (1962) that Roald Dahl, the author of “Charlie & the Chocolate Factory” and other classics, lost his 7 year old daughter, Olivia, to measles. In 1988, he begged parents to avoid the heartache he himself had suffered by vaccinating their kids against measles. “Read Roald Dahl’s Powerful Pro-Vaccination Letter (From 1988)“
- Speaking of science, both Dave and I are big fans of evidence based medicine. We both believe, and work toward daily, the idea that health and science literacy is a core piece of helping improve patient experience, and patient participation, in the healthcare system. So we’re big fans of the Cochrane Collaboration, which analyzes and publishes scientific evidence aplenty. Here’s their 2014 “greatest hits” page: “Best of the Cochrane Library: 2014 in review“
- I (Casey) produce a podcast series for the Society of Hospital Medicine, which gives me the chance to talk to smart hospital clinicians every month. SHM has a great blog, The Hospital Leader, which I recommend to anyone interested in healthcare. Here’s a recent post, pointing up the idea that we all have to think differently, sometimes at the drop of a stethoscope. “The Shield“
- From the “how surprising … well, not really” desk, here’s a recent piece by Elisabeth Rosenthal in the New York Times about the snowbirds of Florida, and the growing savviness that retirees are starting to display when it comes to “doctor’s orders.” “Medical Costs Rise as Retirees Winter in Florida“
- And here’s today’s humor break, what we’re calling “Doc Rob vs Dr. Oz, film at 11” – it’s from our good friend Dr. Rob Lamberts’ “Musings of a Distractible Mind” blog, and it tells the story, in tweets, of how Rob responded to the “Dr. Oz’s Inbox” tweetchat (that turned into something of a PR disaster for Oz) last November. “Dr. Rob’s Inbox“
Ready, set, DIGEST! Here’s today’s harvest of what we think is worth reading, participatory-medicine division:
- Bob Wachter, who is one of the founders of the Society of Hospital Medicine and the hospitalist movement, has a great blog called Wachter’s World. Here’s the latest post, an interview with Andy McAfee, self-tagged “technology optimist” and associate director of the Center for Digital Business at MIT’s Sloan School of Management. It’s a terrific conversation about the intersection of tech and humanity, in medicine and elsewhere. “My Interview with ‘Technology Optimist’ and 2nd Machine Age Coauthor Andy McAfee“
- One of our favorite primary care MDs, Dr. Peter Elias, is an SPM member who teaches regularly, and well, on many topics, including using technology tools to enable better doctor-patient communication. In this post, which is essentially a report from the front lines of family practice by someone who knows, Peter tells us why he keeps teaching: to achieve a state of what he calls reflective competence. “I teach to remain a learner“
- Leonard Kish is a terrific writer and thinker on health IT. He’s the one who coined the phrase “patient engagement is the blockbuster drug of the 21st century.” Here’s his review of Dr. Eric Topol’s latest book. “8 Takeaways from Topol’s Latest: ‘The Patient Will See You Now: The Future of Medicine is in Your Hands’”
- Forbes.com writer Dan Munro put up a provocative post this morning, quoting something said at the Clinton Health Matters Initiative event last week in southern California. The title speaks for itself, and Dan’s take on it is solid. “Founder Of Oscar Health: ‘A Lot Of People In This Industry Are Just Evil’“
- NPR Morning Edition had a great piece this morning about a group of patients literally going for a TKO on Parkinson’s. Our MedX friend Sara Riggare has been in what she calls “Parkinson’s fight club” in Portugal recently, so this resonated for us. “Fight Parkinson’s: Exercise May Be The Best Therapy“
- For those of us on the healthcare beat, understanding science and research reports is critical. It’s also not easy, which explains why major media outlets get the science, and therefore the story, wrong sometimes. One of the best sources for news analysis on medical and health science stories is Health News Review. They had a funding challenge last year, and had to shut down for a while, but they’re back, and better than ever. Here’s their analysis of recent headlines about a nasal spray that’s targeted at treating Alzheimer’s disease. “Nasal spray shows promise as treatment for Alzheimer’s disease“
- And today’s humor is an oldie but goodie from Allie Brosch, the cartoonist behind Hyperbole and a Half. Here, she shares the new pain scale she created, which we think is both (a) funny and (b) more accurate than the pain scale you’ll see in common clinical practice. “Boyfriend Doesn’t Have Ebola. Probably.“