Speaking isn’t just a business – it’s a vehicle for accomplishing what we really need: changing how people think … especially, empowering them to take effective action, to become involved in their health. Here’s a photo from a speech to radiologists, encouraging them to share images with patients:[Read more…]
Terrific WSJ essay on the evolving patient-physician relationship: “Can patients decide their own care?”
In the twelve years I’ve been studying the evolution of medical science and the sociology of healthcare – the relationships – I’ve never read anything that stopped me in my tracks with how it summed it all up so quickly. This one, by Talya Miron-Shatz, did. Click through and give it a read – it’s not long.
“Superpatients”: free webinar for medical librarians [February 2019]
Update: here’s the archive recording of the webinar.
Tomorrow (Thursday Feb 21) at 2pm ET, for the second time I’ll be presenting the concept for my new book, Superpatients: Patients who extend science when all other options are gone. The first time was December, in a private webinar for the QI [quality improvement] Connect team in Scotland. Registration is open to the public here but that’s optional – at bottom I’ll paste in how you can join it at showtime, without registration. In any case it’s free and no obligation.[Read more…]
Writings and upcoming events – July 2015
Like last month, here’s this month’s update on travels, events, and articles (including a first for me!).
In my travels if you’re in the area and want to connect, contact me.
- Big news: my first article as lead author in a medical journal (right)! (In the world of medical journals, being listed as the first author is a big deal.) Open Visit Notes: A Patient’s Perspective and Expanding National Experience, in the Journal of Oncology Practice, with Jan Walker RN MBA. Thank you to the OpenNotes team for managing this!
- Do you use online symptom checkers? Go for it but be wise: Last Friday I was interviewed by the Boston Globe (see below) to comment on a new BMJ article. It was such a stimulating topic I wrote a much-mentioned post about it on e-patients.net, and I hope to be writing more
- Amazing Ginny’s amazing knee surgery: my post last week has been updated with amazing new videos of her moving around.
- That post has traveled: it got modified and posted on the much-read Glass Hospital blog, which was in turned picked up by the more-read MedPage Today update, and in turn caused a post about patient engagement on the Christ Church Charlotte nurse ministry blog.
Upcoming events & media – June 2015 edition
This spring I had a couple of cases where people said “I wish I’d known you were coming – we could have had coffee!” (That’s always compelling to me…) So I’m going to try publishing a monthly update (more or less) of upcoming travels, newly added future events, and maybe a few other things. Short & sweet. Thank you to Casey Quinlan, a focused production machine if I ever saw one, for making this happen!
- June 7-13, Lucerne, Switzerland: IKF’s annual Swiss tour. Multiple keynotes and private meetings.
Upcoming travels & webcasts
- June 16-17, Chicago: NEHI’s National Healthcare Innovation Summit. Attending.
- June 17, London (via web): The King’s Fund, Digital Health Days Congress. Speaker.
- Link to come next week: June 26, 4:30 pm New York time, webcast: 20 minute speech “Being Heard as Possibility,” part of Rebel Jam, hosted by Rebels At Work, Corporate Rebels United and Change Agent Worldwide.
- I love this group! I first learned about them from Helen Bevan in 2013 and blogged about this movement on Forbes: The “Organizational Radical” Movement Comes To Medicine
- June 29, London:
- Private corporate event
- BMJ patient panel gathering
Recently added events (stay tuned for details!)
- Early September: Europe (to be announced)
- Mid September: 10 day tour of Alaska! These people are getting it bigtime and spreading the word!
- September 23-24: Medicine-X | Ed Bringing e-patient thinking to the medical education curriculum!
- November 4, DC: American Psychological Association Presidential Innovation Summit
- November 11, Sacramento: Transforming Healthcare Summit
My first-ever article in a clinical practice journal where I’m listed as First Author(!)
- “Open Visit Notes: A Patient’s Perspective and Expanding National Experience,” in ASCO’s Journal of Oncology Practice. It’s open access (free), to allow reading and sharing by patients.
Recent media mentions:
- Book: The Digital Doctor: Hope,Hype, and Harm at the Dawn of Medicine’s Computer Age by Bob Wachter (April 2015)
- May issue of ImproveDx: Newsletter of the Society to Improve Diagnosis in Medicine. In “Improving Communication of Test Results in a Changing World” by Susan Carr.
- May 30, IntrepidNow: #TalkHIT with CTG – Dave deBronkart (ePatient Dave), The Original ePatient Advocate
- May 28, AstraZeneca Health Connections: E-Patient Dave: “The Internet Brings Patients Together”
- May 14, Mayo Clinic “In the Loop” “‘Healing Words’ Program Creates Space for Patients to Reflect and Clarify” about my interview on facing death with hope
Daily Digest: Thursday, February 5, 2015
Hello, Thursday – here’s your dose of ePatient vitamin-D-for-Digest!
Social workers are superb participatory medicine practitioners. They get it. Here’s a post from The Social Work Helper with a nifty little virtuous-cycle quadrant image that outlines how, and why, the e-patient movement matters. “The E-Patient Movement”
Our friends over at The Incidental Economist noticed an item in the White House’s proposed budget related to the agricultural use of antibiotics. With the rise of antibiotic resistant bacteria, why are we still pumping antibiotics into cattle, pigs, and chickens to “promote their growth”? Modern farming practices promote growth just fine. The science of ag antibiotics, and why it should stop: “Agricultural antibiotics in the President’s budget request”
Cui bono (Latin, to whose benefit) in healthcare reform? Sarah Kliff has an interesting answer after studying insurance stock earnings reports. Health plans have far outstripped the S&P 500 for the last five years. “Health insurer stocks have crushed market averages since Obamacare passed”
Stephen Wilkins is a health policy thinker whose home on the web is something he calls the Mind the Gap Academy. He posted something on LinkedIn that is a pretty tight list of the Top 10 things a clinician can do to foster patient engagement. No tech required. “The Ten Commandments Of Patient Engagement”
The American College of Physicians (ACP) – the 2nd largest physician organization in the US, after the American Medical Association (AMA) – has jumped in to the pharma price fight with both feet. They announced this week that they were signing on to the Campaign for Sustainable RX Pricing. Here’s a piece from CNBC with the details: “Doctors group joins fight against ‘skyrocketing’ drug prices”
We love the internet. We wouldn’t be here talking to you if we didn’t. However, the Wild Wild Web can be a challenging place for advocates of all stripes. When I (Casey) came across a post on the Guardian’s site recently, it prompted me to put up a post about trolls on one of my own blogs. Here you go, weigh in with your thoughts. “Advocacy, trolls, and threats – oh my!”
Last but not least, our humor break for today, in which Dr. Grumpy ponders Zen and the art of cough drops. “Cough Drops“