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June 22, 2017 By e-Patient Dave Leave a Comment

Week in review: writings elsewhere

Source: Wikipedia

This isn’t the only place I write – other places include e-patients.net (the blog of the Society for Participatory Medicine), the BMJ blog, and occasionally others. In every case it’s something relevant to my mission, so I’m going to try posting here, occasionally, links to things I’ve written elsewhere. These are from the past two weeks. (Okay, so this time it’s weeks in review…)


June 7, e-patients.net:

From the UK: “Habits of an Improver”

For people working to create real change: “The habits of an improver offers a way of viewing the field of improvement from the perspective of the men and women who deliver and co-produce care on the ground …”


[Read more…]

Filed Under: Digests Leave a Comment

September 6, 2015 By e-Patient Dave Leave a Comment

Writings and upcoming events – September

Open a medical record spigot imageContinuing this monthly series: here’s this month’s update on travels, new bookings, and writings.

Access to our families’ health records:
The time for action is coming 

The best in healthcare of course depends on access to all useful information, but HHS has reported to Congress that certain parties are “knowingly interfering” with the flow of families’ health records. Two posts:

  • Take action: We need a Federal policy change – perhaps even a law – so I wrote a call to action: Open a Big DaM Spigot – Data About Me! As the post says, “All change starts with people asking.”
    • See the post for some simple immediate actions.
    • Talk about it with friends, too – it’s getting to be “Paul Revere” time. Don’t wait til it’s your family member who’s in a crisis.
  • Over on Medium, I commented on a post by entrepreneur Steve Kiernan about this issue, saying:
    “Who out there wants to present an argument why families should be kept apart from their people’s health data? … Is there any ethical or moral argument for no spigots?”

New bookings:

[Read more…]

Filed Under: Business of Patient Engagement, Digests, Events, public speaking Tagged With: #gmdd, epatient, patient engagement Leave a Comment

August 10, 2015 By e-Patient Dave Leave a Comment

Writings and upcoming events – August (corrected)

Click to visit "#HIT99" results post on EMR & HIPAA blog
Click to visit “#HIT99” results post on EMR & HIPAA blog

Some email subscribers got an unfinished draft earlier today. Sorry for any inconvenience!

Continuing this monthly series: here’s this month’s update on travels, events, and writings.

Social Media Recognition: ranked #17 on the “#HIT99” Health IT social media influencers list

Upcoming travels: 

  • August 13-14 D.C.: RWJF National Leader Summit on Integration of Behavioral Health & Primary Care. Participant.
  • August 30-Sept. 02, Nijmegen, Netherlands (Radboud University Medical Center):
    • REshape Hacking Health 2015 hackathon. Judge
    • “Grand Inaugural Rounds” at RadboudUMC Medical School. Speaker.
  • September 10, Lancaster PA: Hospital & Healthsystem Association of Pennsylvania, 2015 Patient Safety & Quality Symposium. Speaker.
  • September 11-19: speaking tour of Alaska! Multiple events in Anchorage and Soldotna
  • September 23-27, Palo Alto: Medicine X | Ed. Speaker at Medicine X | Ed; attending the whole conference.

New confirmed travel plans:

  • October 29-30, Boston: Connected Health Symposium. Attending as SPM partner.
  • March 14, San Antonio: 2016 Parenteral Drug Association Annual  Meeting. Keynote.

Media mentions:

  • The Center for Public Integrity published Obamacare research institute plans to spend $3.5 billion, but critics question its worth
  • ComputerWeekly picked up my “don’t tell patients not to Google” message in a piece by Claire McDonald titled “Stop telling patients not to Google – one man’s quest for joined-up healthcare” – McDonald also talks about the NHS’s efforts to give patients better digital access to their data as part of an ongoing engagement effort. The idea is spreading!
  • British Journal of Healthcare Computing (HIMSS Europe) Vox Pop posted a conversation with input from me, and from Rosamund Snow, Patient Editor at the BMJ, about the value that patients bring healthcare, and the ongoing efforts to build a sustainable framework for patient engagement.

 

Filed Under: Business of Patient Engagement, Digests, Events, public speaking Tagged With: #gmdd, epatient, patient engagement Leave a Comment

July 15, 2015 By e-Patient Dave Leave a Comment

Writings and upcoming events – July 2015

Like last month, here’s this month’s update on travels, events, and articles (including a first for me!).

In my travels if you’re in the area and want to connect, contact me.

Writings:

  • Big news: my first article as lead author in a medical journal (right)! (In the world of medical journals, being listed as the first author is a big deal.) Open Visit Notes: A Patient’s Perspective and Expanding National Experience, in the Journal of Oncology Practice, with Jan Walker RN MBA. Thank you to the OpenNotes team for managing this!
  • Do you use online symptom checkers? Go for it but be wise: Last Friday I was interviewed by the Boston Globe (see below) to comment on a new BMJ article. It was such a stimulating topic I wrote a much-mentioned post about it on e-patients.net, and I hope to be writing more
  • Amazing Ginny’s amazing knee surgery: my post last week has been updated with amazing new videos of her moving around.
    • That post has traveled: it got modified and posted on the much-read Glass Hospital blog, which was in turned picked up by the more-read MedPage Today update, and in turn caused a post about patient engagement on the Christ Church Charlotte nurse ministry blog.

Media mentions:
[Read more…]

Filed Under: Business of Patient Engagement, Digests, Events, public speaking Tagged With: #gmdd, epatient, participatory medicine, patient engagement, Society for Participatory Medicine, update Leave a Comment

June 12, 2015 By e-Patient Dave 4 Comments

Upcoming events & media – June 2015 edition

Clip art of newspaper boy
Public domain

This spring I had a couple of cases where people said “I wish I’d known you were coming – we could have had coffee!” (That’s always compelling to me…) So I’m going to try publishing a monthly update (more or less) of upcoming travels, newly added future events, and maybe a few other things. Short & sweet. Thank you to Casey Quinlan, a focused production machine if I ever saw one, for making this happen!

Underway now:

  • June 7-13, Lucerne, Switzerland: IKF’s annual Swiss tour. Multiple keynotes and private meetings.

Upcoming travels & webcasts

  • June 16-17, Chicago: NEHI’s National Healthcare Innovation Summit. Attending.
  • June 17, London (via web): The King’s Fund, Digital Health Days Congress. Speaker.
  • Link to come next week: June 26, 4:30 pm New York time, webcast: 20 minute speech “Being Heard as Possibility,” part of Rebel Jam, hosted by Rebels At Work, Corporate Rebels United and Change Agent Worldwide.
    • I love this group! I first learned about them from Helen Bevan in 2013 and blogged about this movement on Forbes: The “Organizational Radical” Movement Comes To Medicine
  • June 29, London:
    • Private corporate event
    • BMJ patient panel gathering

Recently added events (stay tuned for details!)

  • Early September: Europe (to be announced)
  • Mid September: 10 day tour of Alaska! These people are getting it bigtime and spreading the word!
  • September 23-24: Medicine-X | Ed Bringing e-patient thinking to the medical education curriculum!
  • November 4, DC: American Psychological Association Presidential Innovation Summit
  • November 11, Sacramento: Transforming Healthcare Summit

My first-ever article in a clinical practice journal where I’m listed as First Author(!)

  • “Open Visit Notes: A Patient’s Perspective and Expanding National Experience,” in ASCO’s Journal of Oncology Practice. It’s open access (free), to allow reading and sharing by patients.
    • Full text, or PDF of the print pages; article extract page here.
    • Thank you to Beth Israel Deaconess OpenNotes team, and to the journal for making it open access.

Recent media mentions:

  • Book: The Digital Doctor: Hope,Hype, and Harm at the Dawn of Medicine’s Computer Age by Bob Wachter (April 2015)
  • May issue of ImproveDx: Newsletter of the Society to Improve Diagnosis in Medicine. In “Improving Communication of Test Results in a Changing World” by Susan Carr.
  • May 30, IntrepidNow: #TalkHIT with CTG – Dave deBronkart (ePatient Dave), The Original ePatient Advocate
  • May 28, AstraZeneca Health Connections: E-Patient Dave: “The Internet Brings Patients Together”
  • May 14, Mayo Clinic “In the Loop” “‘Healing Words’ Program Creates Space for Patients to Reflect and Clarify” about my interview on facing death with hope

 

Filed Under: Business of Patient Engagement, Digests, Events, public speaking Tagged With: #gmdd, epatient, participatory medicine, patient engagement, Society for Participatory Medicine, update 4 Comments

February 20, 2015 By e-Patient Dave Leave a Comment

Daily Digest: Open data, lone rangers, and more

Open data, sort of: In a post on the Health Affairs blog, some big brains from Brookings talk about how open data can help end over-treatment and high-cost treatment when science doesn’t support either one. In my opinion (which I shared in a comment on the post) they left somebody out in the data-share: patients. “How Open Data Can Reveal and Correct the Faults in Our Health System”

That which does not kill you … might still kill you: Dr. Aaron Carroll takes up the question of what are called the social determinants of health on his Healthcare Triage YouTube channel. Here’s a link to a post on The Incidental Economist with that video, and some other perspective on the topic. “How Long Are You Going to Live?”

Overwhelmed by over-treatment: One of our friends, Shannon Brownlee, is a globally known thought leader on ending medical overtreatment and shared decision making. From her view on the leadership team of the Lown Institute, she’s seen all the science on why overtreatment is still a pernicious issue in US healthcare. Her op-ed on the subject from DrKevinMD: “Fixing overtreatment: Lone rangers need not apply”

“Let Patients Help” – hospital board edition: In a piece on the NY Times Upshot blog, Austin Frakt says that hospital boards need to have more clinical expertise on them, so that treatment guidelines in the facility don’t wander off the evidence-based/quality-outcome reservation. We think he left out an important consideration: *patients* on hospital boards. “In Hospitals, Board Rooms Are as Important as Operating Rooms”

It’s not your funny bone, it’s your funny brain: It turns out that the old bromide about laughter being the best medicine might actually be true, at least in preventing age-related cognitive impairment. From Medical News Today:  “Laughter may be the best medicine for age-related memory loss“

Filed Under: Digests Tagged With: Aaron Carroll, Austin Frakt, Brookings, DrKevinMD.com, Health Affairs, Lown Institute, Medical News Today, NY Times, open data, over-treatment, Shannon Brownlee, The Incidental Economist, Upshot Leave a Comment

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