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July 15, 2015 By e-Patient Dave Leave a Comment

Writings and upcoming events – July 2015

Like last month, here’s this month’s update on travels, events, and articles (including a first for me!).

In my travels if you’re in the area and want to connect, contact me.

Writings:

  • Big news: my first article as lead author in a medical journal (right)! (In the world of medical journals, being listed as the first author is a big deal.) Open Visit Notes: A Patient’s Perspective and Expanding National Experience, in the Journal of Oncology Practice, with Jan Walker RN MBA. Thank you to the OpenNotes team for managing this!
  • Do you use online symptom checkers? Go for it but be wise: Last Friday I was interviewed by the Boston Globe (see below) to comment on a new BMJ article. It was such a stimulating topic I wrote a much-mentioned post about it on e-patients.net, and I hope to be writing more
  • Amazing Ginny’s amazing knee surgery: my post last week has been updated with amazing new videos of her moving around.
    • That post has traveled: it got modified and posted on the much-read Glass Hospital blog, which was in turned picked up by the more-read MedPage Today update, and in turn caused a post about patient engagement on the Christ Church Charlotte nurse ministry blog.

Media mentions:
[Read more…]

Filed Under: Business of Patient Engagement, Digests, Events, public speaking Tagged With: #gmdd, epatient, participatory medicine, patient engagement, Society for Participatory Medicine, update Leave a Comment

June 12, 2015 By e-Patient Dave 4 Comments

Upcoming events & media – June 2015 edition

Clip art of newspaper boy
Public domain

This spring I had a couple of cases where people said “I wish I’d known you were coming – we could have had coffee!” (That’s always compelling to me…) So I’m going to try publishing a monthly update (more or less) of upcoming travels, newly added future events, and maybe a few other things. Short & sweet. Thank you to Casey Quinlan, a focused production machine if I ever saw one, for making this happen!

Underway now:

  • June 7-13, Lucerne, Switzerland: IKF’s annual Swiss tour. Multiple keynotes and private meetings.

Upcoming travels & webcasts

  • June 16-17, Chicago: NEHI’s National Healthcare Innovation Summit. Attending.
  • June 17, London (via web): The King’s Fund, Digital Health Days Congress. Speaker.
  • Link to come next week: June 26, 4:30 pm New York time, webcast: 20 minute speech “Being Heard as Possibility,” part of Rebel Jam, hosted by Rebels At Work, Corporate Rebels United and Change Agent Worldwide.
    • I love this group! I first learned about them from Helen Bevan in 2013 and blogged about this movement on Forbes: The “Organizational Radical” Movement Comes To Medicine
  • June 29, London:
    • Private corporate event
    • BMJ patient panel gathering

Recently added events (stay tuned for details!)

  • Early September: Europe (to be announced)
  • Mid September: 10 day tour of Alaska! These people are getting it bigtime and spreading the word!
  • September 23-24: Medicine-X | Ed Bringing e-patient thinking to the medical education curriculum!
  • November 4, DC: American Psychological Association Presidential Innovation Summit
  • November 11, Sacramento: Transforming Healthcare Summit

My first-ever article in a clinical practice journal where I’m listed as First Author(!)

  • “Open Visit Notes: A Patient’s Perspective and Expanding National Experience,” in ASCO’s Journal of Oncology Practice. It’s open access (free), to allow reading and sharing by patients.
    • Full text, or PDF of the print pages; article extract page here.
    • Thank you to Beth Israel Deaconess OpenNotes team, and to the journal for making it open access.

Recent media mentions:

  • Book: The Digital Doctor: Hope,Hype, and Harm at the Dawn of Medicine’s Computer Age by Bob Wachter (April 2015)
  • May issue of ImproveDx: Newsletter of the Society to Improve Diagnosis in Medicine. In “Improving Communication of Test Results in a Changing World” by Susan Carr.
  • May 30, IntrepidNow: #TalkHIT with CTG – Dave deBronkart (ePatient Dave), The Original ePatient Advocate
  • May 28, AstraZeneca Health Connections: E-Patient Dave: “The Internet Brings Patients Together”
  • May 14, Mayo Clinic “In the Loop” “‘Healing Words’ Program Creates Space for Patients to Reflect and Clarify” about my interview on facing death with hope

 

Filed Under: Business of Patient Engagement, Digests, Events, public speaking Tagged With: #gmdd, epatient, participatory medicine, patient engagement, Society for Participatory Medicine, update 4 Comments

February 4, 2015 By e-Patient Dave Leave a Comment

Daily Digest: Wednesday, February 4, 2015

Happy Wednesday! Or, as we used to call it in the cube farm, Hump Day. Here’s today’s edition of must-reads –

  1. If you listen to the rising tide of discussion about the cost of care, one of the things that’s -supposed- to help curb that hockey stick upward trajectory is technology. So we found it interesting when we tripped over this piece asking if patients have to pay for portal access. I (Casey) say “no” – you? “Should providers charge patients for portal access?“
  2. Man the battle stations – the White House wants Medicare to be able to negotiate pricing with pharma. Since the introduction of Medicare Part D, CMS has been specifically prohibited to negotiate drug pricing with pharmaceutical companies. This could get loud. “Obama administration seeks to negotiate Medicare drug prices“
  3. The Disneyland measles outbreak, suspected to be accelerated by parents who have refused the MMR vaccine for their children, has raised a lot of heated discussion all over everywhere. I (Casey) almost died from measles when I was 9 years old, the same year (1962) that Roald Dahl, the author of “Charlie & the Chocolate Factory” and other classics, lost his 7 year old daughter, Olivia, to measles. In 1988, he begged parents to avoid the heartache he himself had suffered by vaccinating their kids against measles. “Read Roald Dahl’s Powerful Pro-Vaccination Letter (From 1988)“
  4. Speaking of science, both Dave and I are big fans of evidence based medicine. We both believe, and work toward daily, the idea that health and science literacy is a core piece of helping improve patient experience, and patient participation, in the healthcare system. So we’re big fans of the Cochrane Collaboration, which analyzes and publishes scientific evidence aplenty. Here’s their 2014 “greatest hits” page: “Best of the Cochrane Library: 2014 in review“
  5. I (Casey) produce a podcast series for the Society of Hospital Medicine, which gives me the chance to talk to smart hospital clinicians every month. SHM has a great blog, The Hospital Leader, which I recommend to anyone interested in healthcare. Here’s a recent post, pointing up the idea that we all have to think differently, sometimes at the drop of a stethoscope. “The Shield“
  6. From the “how surprising … well, not really” desk, here’s a recent piece by Elisabeth Rosenthal in the New York Times about the snowbirds of Florida, and the growing savviness that retirees are starting to display when it comes to “doctor’s orders.”  “Medical Costs Rise as Retirees Winter in Florida“
  7. And here’s today’s humor break, what we’re calling “Doc Rob vs Dr. Oz, film at 11” – it’s from our good friend Dr. Rob Lamberts’ “Musings of a Distractible Mind” blog, and it tells the story, in tweets, of how Rob responded to the “Dr. Oz’s Inbox” tweetchat (that turned into something of a PR disaster for Oz) last November. “Dr. Rob’s Inbox“

Filed Under: Digests Tagged With: Cochrane Collaboration, costs of care, elisabeth rosenthal, evidence based medicine, medicare, MMR vaccine, NY Times, participatory medicine, patient portals, pharma, roald dahl, Rob Lamberts, Society for Participatory Medicine, Society of Hospital Medicine, vaccination Leave a Comment

February 2, 2015 By e-Patient Dave 2 Comments

Daily Digest: Monday, February 2, 2015

 

Welcome to a new feature: the Daily Digest, by my friend and fellow SPM member “Mighty Casey” Quinlan, of Richmond, VA. Her Facebook feed and Twitter feed are so constantly full of things I’d missed that I thought “Shoot, let’s post that!” So this month, Monday through Friday, she’ll post links to what she thinks are the best/hottest/most interesting healthcare, medicine, and bio-science stories that day. Here she goes:

Yeah, there might even be some humor, since we’re both fans of Gomerblog and ZDoggMD.

Today’s crop:

  1. The human brain is a fascinating instrument. This piece from the NY Times’ Well blog looks at the impact price awareness has on the placebo effect. The outcome is both surprising, and not surprising at all. “Expensive Drugs Work Better Than Cheap Ones“
  2. Are minute clinics, where patients can walk in for quick care on stuff like strep throat or flu shots, better patient experiences than care at a regular primary care practice? Geriatrician Dr. Leslie Kernisan had the opportunity to compare two of her own experiences, which she shared on The Health Care Blog: “A Tale of Two Sore Throats: On Retail Clinics and Urgent Care“
  3. How far would you go for medical care? Would you go all the way to Thailand? Morgan Spurlock, the guy behind “Supersize Me,” now has a CNN series called “Inside Man,” where he looked at the rise of medical tourism in the face of rising U.S. healthcare costs. “Surf, sand … and surgery? Inside the world of medical tourism“
  4. Our friends at Symplur, the healthcare data visualization gurus, asked and answered a great question on their blog recently about patient communities and New Year’s goals. Christopher Snider posted this, and it’s a great read. “Looking Forward to Looking Back – How Do Patient Communities Approach New Year’s Goals?“
  5. Connected health and quantified-self have gotten a lot of ink, both physical and virtual, over the last few years. With the rise of self-tracking tools, from Fitbit to AliveCor to Scanadu, patients with chronic conditions and early-adopter tech mavens are monitoring their physical status with more and more granularity. Can connected health penetrate the “actual medical practice” membrane? Here’s a list from The Doctor Weighs In blog: “Five Accelerants to the Adoption of Connected Health“
  6. Because we mentioned humor, and Gomerblog, and ZDoggMD in our intro, here’s a three-fer: a post about Turntable Health, ZDoggMD’s new comprehensive care clinic in Las Vegas, on Gomerblog. It’s not a new post, it dates from May of 2014, but it is definitely worth a read for the laughs. NOTE: this post is SATIRE. “Big Pharma and Mega Hospitals ‘Scared Beyond Belief’ of Tiny Las Vegas Health Clinic“

That’s it for today – check back tomorrow, we’ll have a fresh list of must-reads for you!

Filed Under: Digests Tagged With: Daily Digest, epatient, Gomerblog, humor, Leslie Kernisan MD, medical tourism, Morgan Spurlock, NY Times, Society for Participatory Medicine, Symplur, The Doctor Weighs In, The Health Care Blog, ZDoggMD 2 Comments

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