e-Patient Dave

Power to the Patient!

  • Home
  • Blog
  • Speaker
    • Corporate & associations
    • Healthcare
    • Videos
    • Testimonials
  • Author
  • Advisor
  • Schedule
  • Media
    • Recent coverage
    • News coverage 2010-2014
    • Book mentions
    • Press resources
  • About
    • About Dave
    • Boards & Awards
  • Resources
    • Patient Communities
    • For Patients
    • For Providers
    • Speaker Academy
  • Contact

February 28, 2023 By e-Patient Dave Leave a Comment

Dump the jive from JPM & VIVE: seek real change with me at NextMed Health

I’m among the advisory vanguard for NextMed Health, and I’m hoping to speak there too. I hope you’ll come. Register here, or email me for a discount code.

Daniel Kraft’s events are different.

[Read more…]

Filed Under: Culture change, disruption, Events, Patient-centered tech, Patients as Consumers, superpatients Tagged With: disruptive innovation, healthcare, medicine, patient empowerment Leave a Comment

December 2, 2022 By e-Patient Dave Leave a Comment

When Patients Design the Care They Want: the Boston Women’s Health Collective

A slide I often use

In August Medical Futurist Bertalan Meskó and I published Patient Design: The Importance of Including Patients in Designing Health Care in JMIR, in the Journal of Medical Internet Research (JMIR). It ties together aspects of both our work. He’s a medical futurist, less than half my age, with a clear vision of how medicine will work in a future unencumbered by today’s limits. For me, an advocate for patient empowerment, it’s rooted in patients having the power to get the care they want. Our views come together in the idea of patients designing the care they want. From our abstract:

… genuinely empowered people living their lives and managing their health according to their own priorities, in partnership and consultation with physicians as needed. 

[Read more…]

Filed Under: Culture change, Innovation, Leadership, Participatory Medicine, Patient-centered thinking Leave a Comment

April 25, 2022 By e-Patient Dave Leave a Comment

Speeches as empowerment: transforming the culture of care

Speaking isn’t just a business – it’s a vehicle for accomplishing what we really need: changing how people think … especially, empowering them to take effective action, to become involved in their health. Here’s a photo from a speech to radiologists, encouraging them to share images with patients:

[Read more…]

Filed Under: Clinical trials, Culture change, Events, Innovation, Participatory Medicine, patient engagement, public speaking Tagged With: clinical trials, healthcare speakers, participatory medicine, patient empowerment, patient engagement Leave a Comment

November 5, 2021 By e-Patient Dave Leave a Comment

Ethics and barriers: BMJ webinars on patient access to medical records

The BMJ (formerly the British Medical Journal) continues to lead the world in patient & public partnership with clinicians, including more coverage of patient empowerment topics than anyone else I know in medical publishing. Some of the issues are unique to Britain but many are global cultural issues – not least being the balance of power between clinicians and the patients they serve.

[Read more…]

Filed Under: Culture change, Government, Health data, Health policy, Innovation, patient engagement, Patient-centered tech Tagged With: health IT, medical records, OpenNotes, patient empowerment Leave a Comment

April 8, 2020 By e-Patient Dave 1 Comment

A decade advocating for OpenNotes

Today in an email thread I realized it’s a decade since the OpenNotes work started, via Tom Delbanco and Jan Walker, and now promoted so brilliantly by Liz Salmi. How great that back then my PCP Danny Sands and I were among the first crew of OpenNotes study participants!

I decided to mark the occasion by creating an /OpenNotes page on my site, listing all the blog posts and articles that have emerged as part of the work.

(Interesting to observe: before cancer rearranged my life, I don’t think I ever stuck with any cause for ten years straight. Funny how that happens.)

Filed Under: Advisory work, Culture change, Health data, Health policy, Innovation, Leadership, patient engagement 1 Comment

November 18, 2019 By e-Patient Dave Leave a Comment

Help finalize my new “Superpatients” book!

This is such big news that last weekend I made over my home page with this at the top:

It’s the banner from the cover of my new book Superpatients: Patients who extend science when medicine’s out of answers.

[Read more…]

Filed Under: books, Culture change, superpatients Leave a Comment

  • 1
  • 2
  • 3
  • …
  • 6
  • Next Page »

Click to learn about Antidote’s clinical trial search engine:

Subscribe by email

Thanks! Check your inbox or spam folder to confirm your subscription.

Copyright © 2023 e-Patient Dave. All rights reserved.