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March 19, 2024 By e-Patient Dave 1 Comment

Exploring: “I use it to help me think” … #PatientsUseAI, example 2

Next in the series about the new hashtag #PatientsUseAI. It’s important that medicine know this, because our priorities can be different from the industry’s, and we need this powerful tool too.

My first post said that while the world rushes to regulate AI, healthcare is ignoring patients as actual users of the technology. And that’s a huge oversight that we must fix.

Patients have real work to do.
AI can help do it.

[Read more…]

Filed Under: Artificial intelligence, Culture change, Innovation 1 Comment

March 13, 2024 By e-Patient Dave 5 Comments

Researching a difficult diagnosis: #PatientsUseAI, example 1

On Monday I called for us to start using a new hashtag #PatientsUseAI, because we in the patient community keep seeing doctors and regulators and businesses talk about industry using AI, and nobody’s taking into account that we out here are using it too – and we may have different priorities. The graphic at right spotlighted five ways patients are already using AI. This post is the first in a series about them.


September 11, 2023 will live forever in my memory as bringing the most crystal-clear contrast I’ve ever seen between the paternal old guard and an arriving new reality: patients with real problems using artificial intelligence (AI) to help improve outcomes. That morning, at the annual meeting of the global standards organization HL7, a famous doctor gave a speech about AI, and near the end he said:

“It is just too early for us to give generative AI to patients
and expect that the results will be good.”

[Read more…]

Filed Under: Artificial intelligence, Culture change, Innovation 5 Comments

December 4, 2023 By e-Patient Dave 2 Comments

I’m thankful for care that cares – and for those making it practical

crop woman with heart on palms
Photo by Puwadon Sang-ngern on Pexels.com

This post is a departure from my usual: it’s about a specific company, for a specific reason. First, some background.

Since 2007, Thanksgiving has been a time of reflection for me. That’s the year I was diagnosed as almost dead, yet by Fall I got to hear “looks like you beat it!” What a Thanksgiving that was.

I know firsthand that when a person like me is in need, being cared for and about makes all the difference.

[Read more…]

Filed Under: Advisory work, Culture change, Leadership, Participatory Medicine, Patient-centered thinking Tagged With: caring, compassion, human understanding, nps, nrc health, patient satisfaction 2 Comments

May 30, 2023 By e-Patient Dave 8 Comments

The Evolution of Who Knows What: A Cluetrain Manifesto for empowered patients

A quarter century ago, in the early years of the Web, a seminal book was published by four marketing wizards: The Cluetrain Manifesto: The End of Business as Usual. Its central point was that the internet was going to completely change marketing, because it made information flow freely, to and between consumers. Importantly, it consisted of 95 theses, patterned explicitly after the 95 theses Martin Luther nailed to the cathedral door in Wittenberg, Germany in 1517.

Painting of Martin Luther nailing his 95 theses to the door of the cathedral was others look on
[Read more…]

Filed Under: Culture change, Device data, Evolution, Health data, patient engagement, superpatients 8 Comments

February 28, 2023 By e-Patient Dave Leave a Comment

Dump the jive from JPM & VIVE: seek real change with me at NextMed Health

I’m among the advisory vanguard for NextMed Health, and I’m hoping to speak there too. I hope you’ll come. Register here, or email me for a discount code.

Daniel Kraft’s events are different.

[Read more…]

Filed Under: Culture change, disruption, Events, Patient-centered tech, Patients as Consumers, superpatients Tagged With: disruptive innovation, healthcare, medicine, patient empowerment Leave a Comment

December 2, 2022 By e-Patient Dave Leave a Comment

When Patients Design the Care They Want: the Boston Women’s Health Collective

A slide I often use

In August Medical Futurist Bertalan Meskó and I published Patient Design: The Importance of Including Patients in Designing Health Care in JMIR, in the Journal of Medical Internet Research (JMIR). It ties together aspects of both our work. He’s a medical futurist, less than half my age, with a clear vision of how medicine will work in a future unencumbered by today’s limits. For me, an advocate for patient empowerment, it’s rooted in patients having the power to get the care they want. Our views come together in the idea of patients designing the care they want. From our abstract:

… genuinely empowered people living their lives and managing their health according to their own priorities, in partnership and consultation with physicians as needed. 

[Read more…]

Filed Under: Culture change, Innovation, Leadership, Participatory Medicine, Patient-centered thinking Leave a Comment

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