Power to the Patient!
I’ve started compiling all my virus posts into a /covid19 page.
Four months ago in Winter’s coming. Time to talk about ventilation for coronavirus defense, I talked about ventilation (fresh air) and about HEPA filters for cleaning indoor air. Here’s an update, focusing particularly on the latest bee in my bonnet: CO₂ detectors.
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After last week’s FHIR DevDays conference, I blogged on Wednesday that Morgan Gleason had won the judges’ award in the Patient Innovator Track. There was another winner – for the first time we did a People’s Choice award, and it was won by Olivier Karasira, a man in Rwanda working on a remarkable project: “Turning Paper into FHIR in Africa.”
Last week at the virtual DevDays conference (for the FHIR software standard that I’ve blogged about so much) we held the second Patient Innovator Track. Watch the winning pitch, 10 minutes long, from Morgan Gleason, fresh out of college. She describes her complex situation and how she’s learned to deal with it manually, and tells the FHIR developer community what she needs – what she wants them to help create, so she can walk into each doctor visit fully prepared without going through all the work she has to do now:
Today in an email thread I realized it’s a decade since the OpenNotes work started, via Tom Delbanco and Jan Walker, and now promoted so brilliantly by Liz Salmi. How great that back then my PCP Danny Sands and I were among the first crew of OpenNotes study participants!
I decided to mark the occasion by creating an /OpenNotes page on my site, listing all the blog posts and articles that have emerged as part of the work.
(Interesting to observe: before cancer rearranged my life, I don’t think I ever stuck with any cause for ten years straight. Funny how that happens.)
Summary: This post contains advice from the CDC (Centers for Disease Control & Prevention), the most credible source I know, for people who can’t yet get the care we’d normally get from our healthcare system. Most predictions say there will be a lot of us in that situation soon if the system gets overwhelmed, and it’s always best to become informed before a crisis hits and you’re stressed.
A friend in the industry wrote this morning:
[Read more…]“I just talked to my daughter and she has fever and coughing and is very weak and nauseated and she can’t find anybody to test her. The labs said she has to have an order first. Her boyfriend works at [a chain store] and they had him working until recently. He came down with the symptoms first. I told her to call around to doctors until she can find one that’ll write an order for her.”
