Toward a New Science of Patient Engagement
Fifty years ago today, at Emmanuel College in Boston, a group of uppity women got together to talk about what was important to them about their health. Tomorrow night (Friday, May 10) some of them will gather again, with people from Suffolk University, which is taking over as Our Bodies Ourselves Today. (See that post.)
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In our previous episode I mentioned that “ornery” is a form of the word “ordinary,” and said “It’s the ‘ornery’ people who suffer when the system doesn’t achieve its potential. I stand with them.”
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Sunday night I blogged this:
I haven’t been blogging nearly as much as I did five years ago, largely because my early blogging was all about trying to figure out “what the heck is up with the American healthcare system???” … it’s been two years since I had any new realizations.
Why would “figuring it out” make me stop blogging? Because as a change activist who’s also a public speaker, I’m gripped by one question: “What could be said that would make any difference?” There literally is no point in saying anything else. So once I realized how locked-in the system is, how intractable it is to change, I lost interest in flapping my gums and fingers.
But new things are in the wind, and it’s time to start pushing out those top learnings as foundation for what’s next. So, game on – in responses to two tweets, I got ornery:
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I haven’t been blogging nearly as much as I did five years ago, largely because my early blogging was all about trying to figure out “what the heck is up with the American healthcare system???” and it’s now been two years since I had any new realizations. Here’s a summary of that, then some quick hits on recent and upcoming events.
No, wait – this part turned out long, so I’ll continue tomorrow with the “quick hits.” For today, here’s the baseline I reached two years ago.
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I’ve often blogged and spoken about the many parallels between the women’s movement and the patient empowerment movement. Here’s one perfect quote from Miriam Hawley, one of the founders of the Boston Women’s Health Book Collective, whom I met last year:
[Read more…]If you’re in the health data world, you’ve surely heard of FHIR. If you work in that world but you’re not a hands-on data wrangler, you might have heard of it but not really have a clue what it means in the real world.
Wouldn’t it be nice if there were a way to learn about it? There is. Register here.
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