A relative writes: “Anyone out there know anything about treatments, specialists, community for someone recently diagnosed with paraneoplastic cerebellar degeneration, especially in the Boston/New England region of the US?”
The condition’s Wikipedia page says: “It is believed to be due to an autoimmune reaction targeted against components of the central nervous system (specifically Purkinje cells and large brain stem nuclei). It is thought to be caused by an anti-neuronal antibody…”
I didn’t readily find much on my Patient Communities page, but I hope it will grow. I did find these search results on MedHelp.