Pat Rullo of Speak Up and Stay Alive RadiOh! (Twitter @SpeakUpRadioh) is writing a piece for the Association for Patient Experience, whose board chair is Dr. Jim Merlino, Chief Experience Officer at the Cleveland Clinic. (Jim and I had a 7 minute hallway interview at TEDMED 2012; video is at bottom of this post.) Pat wrote, asking “your personal definition of the patient experience … It can be one word – one sentence – or as long as you choose. What does the patient experience mean to you?”
I get a million requests like this (“please write something for us”), and mostly I have to say no, because my backlog of broken promises and overdue blog posts is embarrassing. But I responded to this one because
- It’s a short, focused question
- It’s directly aligned with thoughts I’m already working on
- I can blog the result. :-) (That’s a method I learned years ago from the amazing Ted Eytan of Kaiser.)
Here’s my response:
In my view, care has two components: clinical effectiveness, and the patient’s experience of being taken care of.
This isn’t a trivial point, nor is it easy to achieve, because people are different. One person in a hospital bed may want to be left alone to sleep; another may want frequent attention. And the nurse who managed my own case noted later that different people have different appetites for information. It takes training, experience, and emotional intelligence.
But it’s important: in 2012 the Institute of Medicine’s report “Best Care at Lower Cost” declared that medicine must be “anchored on patient needs and perspectives.” Note: the IOM specifically points to the patient’s point of view. For decades providers have learned to focus who on clinical expertise. Now it’s clear that another dimension must be added – caring about the emotional and experiential needs of the patient, as well.
People are different, so providers who use a one-size-fits-all approach are guaranteed to miss on some patients. Importantly, in an increasingly competitive environment, this is a new opportunity for astute providers to outperform their competition, and deliver “care that’s more caring” to their patient population.
What do you think? Comment, if you want.
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The TEDMED interview with Dr. Merlino
This interview isn’t directly relevant to the above – it’s about the patient-provider partnership, which is related to patient experience but not identical. I’ll put it here, though, because I never blogged it back then. From April 2012. Check it – around 2 minutes in, he says “Patients have a right to be a jerk.” :-)
Historical tidbit: the interview was recorded the same day Ross Martin taped his now-famous Gimme My DaM Data video.:-)
Jason Wolf says
Dave – So glad to see you part of this conversation. Was honored to be a part of Pat’s radio show this summer (http://patientsafetyradio.com/2013/07/20/jason-wolf-segment/) and she asked that I also contribute a definition as part of this article. I love your perspective and that of so many committed patient leaders that remind us that care is the fundamental part of healthcare overall.
For the definition, I offer a community developed definition that has become central to a great deal of our work at The Beryl Institute as you know. That definition: The sum of all interactions, shaped by an organization’s culture, that influence patient perceptions across the continuum of care. The power for me is that every interaction matters…they are built on and driven by the culture of the organization in which it is provided…and regardless of all we do, it is the perception of patients and families that matter.
This is a critical question…and I am glad you asked…here is to a growing collaborative conversation on this issue!!
Jason
Jason Wolf says
I wanted to provide a link to the definition…was sitting with some colleagues at a conference sharing this message just now and they asked for the link to more info, so posted here…hope this helps: http://www.theberylinstitute.org/?page=DefiningPatientExp
Thanks again for asking this sharing this key question!
Pat Rullo Replies says
Thanks, guys! We are awaiting a few more responses so if either of your followers want to add their thoughts – there’s still a bit more time. Send to pat@speakupandstayalive.com And thanks for all you do.