Survey is open through Friday, Dec. 20, 2013.
I’m playing a [modestly paid] role in a project produced by A.I.R., the American Institutes for Research, a Washington think-tank I crossed paths with last year through my work with Aligning Forces for Quality. Boy do we like each other! Very much think-alikes. Truthfully, it’s hard to figure out how to incorporate “just a plain old patient” voice into their work (“What do you pay for a thingie who has no master’s or PhD???”) but these guys are working on it, and I love it so I’m playing along.
A.I.R.’s Center for Patient & Consumer Engagement is producing a think-tanky white paper on where patient engagement should go, and, brilliantly, THEY WANT TO KNOW OUR OPINION ON IT! Of all things! So this is YOUR chance, your opportunity, you AND your friends. There’s no limit on how many responses they’ll accept. (The graphic at right is their concept a year ago of the dimensions of engaging patients, published last February in their article in the Health Affairs issue on patient engagement.)
To be clear: this survey is your chance to speak into a document that a lot of planners will read. It’s a simple 5-question survey, really open-ended, looking for YOUR experiences about what feels right or feels wrong, and what medicine can learn from it. The survey has no underlying academic assumptions about what patient engagement should be. They really want to know how we (you) see the issue.
Here’s a link to the survey itself – five questions, each with an open-ended text box. I’ll summarize them, because frankly I think what they’re after isn’t always clear in the survey itself. :-)
- Tell us about an incident where you felt your clinicians were, or were not, engaging with you as a partner.
(Don’t you love that they’re asking how you felt??)
- If you could change anything about healthcare, what would it be? What would you do differently? What would clinicians do differently?
- In that ideal world, what role would patients have in changing policies and procedures?
(You might think about stories you’ve heard where patients are indeed management partners, but you can also dream up anything you want.)
- What would a fully realized partnership between patients and provider organizations look like?
- What suggestions do you have for people designing patient engagement programs?
Yes, they’re asking for patients’ view of what’s important.
Here’s that link again to the survey. And please, invite anyone you know who cares about patients as partners: patient safety friends, data geeks, price shoppers, you name it. The more anecdotes we have (#1) the better, and the more diverse ideas they hear (#2-5), the better the brainstorming. As Bonnie Raitt sang (though in a different context), “Let’s give ’em somethin’ to talk about”!