e-Patient Dave

Power to the Patient!

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Recent coverage

Dave is a recognized international source for informed perspectives on all aspects of participatory medicine and patient engagement. Reach him via the contact page.

2024

  • Sept 11: Dr. Chatbot Will See You Now, New York Times

2021

  • Sept 14: Open Notes Shines Light on Errors in Patient Medical Records. MedPage Today
  • April 5: New law requires health care organizations give patients access to their records digitally. WINK News, Fort Myers

2020 (partial)

  • December 30, Healthcare IT News: ‘e-Patient Dave’ on why patients need access to medical images
  • October 19, Fierce Healthcare: Industry Voices—These 4 words could transform health. Let’s start using them
  • January 31, Pulse+IT: Opioids, Kickbacks, and EMRs.
  • January 29, Healthcare IT News: Epic continues campaign for changes to forthcoming ONC info blocking rules.
  • January 23, UCSF radiology department: UCSF Patients Can Now Access Medical Images on MyChart (citing my SIIM keynote)

2019

  • December 12, Agility: Top U.S. Social Media Influencers in Healthcare
  • November 19, Yale Podcast Network: Becoming an e-Patient
  • November 20, Kaiser Health News; Startup Seeks To Hold Doctors, Hospitals Accountable On Patient Record Requests; California Healthline; Hartford Courant; Chicago Tribune; Benefits Pro; Orange County Register, The Keene Sentinel
  • October 18, Politico Morning eHealth newsletter: eHealth tweet of the day
  • October 7, Healthcare IT News: Society for Participatory Medicine touts 10 years of patient-centered wins
  • September 23, CBS News: How to read a medical bill or explanation of benefits
  • August 30, Urology Times: How to improve patients’ access to their health information.
  • May 20, Dimensional INSIGHT: Takeaways from New England HIMSS: The Human Side of Healthcare Technology
  • May 20, Health IT TODAY: Re-enactments, Singing and Dancing the Highlight of NEHIMSS Annual Spring Conference
  • May 17, Health IT Connect: Partnering for your health
  • May 10, Cision: NCPDP Announces Highlights from Its 2019 Annual Conference, Dare to Disrupt
  • April 4, THE EPOCH TIMES: Check Your Medical Records For Dangerous Errors
  • April 2, HIT Consultant: 6 Patient Influencers Redefining The Healthcare Landscape
  • February 18, PharmExec.com: DIA Europe: Patients Get Their Say. Now for the Doctors?

2018

  • December 17, Health News Review: Reflections on a 45-year career and 13 years leading HealthNewsReview.org
  • November 21, ABC News, Kaiser Health News: Check your medical records for dangerous errors, experts warn
  • November 19, Philips Future Health Index 2018: Telehealth: Delivering value across institutional and geographical borders
  • November 19, Patient Voices Network: QI Connect with e-Patient Dave
  • November 5, WEGO Health: Has the “Gimme My Damn Data” movement reached a tipping point?
  • October 17, Associated Press: DIA Drives Debates and Solutions at the Crossroads of Healthcare.
  • October 9, NBC News: Undercover study highlights patients’ struggle with medical records.
  • October 5, EurekAlert!: Yale University. American hospitals make it too hard for patients to access medical records
  • September 26, Digital Journal: ‘e-Patient Dave’ to Speak at 9th Annual RISE Star Ratings Master Class in San Diego
  • August 30, Health Tech Magazine: 30 Must-Read Health Tech IT Blogs 2018
  • July 10, The Daily Times: Solutionreach Collaborates with Patient Advocate Voices to Share the Patient Perspective
  • June 26, CuerpoMente: Participatory medicine: when the patient is the expert
  • June 26, WBUR 90.9 Boston: Dr. Warner Slack, Electronic Medical Records Pioneer And Champion of ‘Patient Power’, Dies
  • June 13, WTNH News 8 Hartford: The Better Health Conference: Helping to Change Healthcare As We Know It
  • June 12, DOTmed: How can women close the ‘diversity gap’ in imaging informatics?
  • June 1, DOTmed: e-Patient Dave opens SIIM meeting focused on patient engagement and big data
  • June 1, AuntMinnie: SIIM: Patients should have access to imaging studies
  • April 10, HealthNewsReview: A cancer doctor speaks out: How premature hype about experimental drugs fail patients
  • March 8, Forbes: Alex Azar, Trump’s New HHS Secretary, Makes Surprisingly Bold Policy Speech 
  • February 27, STAT: I have brain cancer.  Drug companies and med schools should be compensating me for my expertise
  • February 16, Medium: Self-care should start with managing your personal digital identity and health information
  • January 25, HealthExec: Apple’s health records system a ‘nice start’ but offers limited data to patients
  • January 24, The San Diego Union-Tribune: UCSD among 12 nationwide to pilot Apple Inc. new medical records system
  • January 14, USA Today: Health care deals could make you healthier but may not save you money
  • January 12, WBUR: Dave and Danny, E-Patient and Doctor, On The Rise of ‘Participatory Medicine’
  • January 11, WBUR: A Doctor and Patient on Participatory Medicine.

2017

  • December 18, Personal Health News: How Being an Empowered Patient Helped Save This Life 
  • November 10, The Royal Australian College of General Practitioners (RACGP): e-Patient Dave: Maximising the patient as a resource
  • November 10, Scoop News: Fingermark’s ‘Florence’ Focuses  on Patient Experience
  • November 2, RadioNZ: e-Patient Dave: ‘Gimme my damn data!’
  • October 26, Genome: Cancer Survivor Urges Patients To Be Proactive
  • October 6, Scoop Independent News, New Zealand: Patients & Doctors Should be Partners in Healthcare
  • September, AARP: How to Find a Great Doctor 
  • July 27, NOLA: MRI for $1,005 or $464: Hit to your wallet depends on your insurer
  • May 30, U.S. News & World Report: 10 Lessons From Empowered Patients
  • May 23, NOLA: For some Louisiana health insurers, explanation of benefits are anything but
  • May 18, Future Health Index: Future Health Index 2017 report
  • May 2, That’s Unusual podcast: e-Patient Dave on Patient Activism, Participatory Medicine, and the Science of Engagement. 
  • April 26, NEJM: Whose Data Are They Anyway? Can a Patient Perspective Advance the Data-Sharing Debate?
  • April 14, Bonnie Schooler Communications: Healthcare Professionals are you ready for e-Patients?
  • April 5, Fox 8 New Orleans: Zurik: ‘Cracking the Code’ of medical procedure pricing
  • March 24, next avenue: Are You Getting Medical Treatment You Don’t Need?
  • March 20, Health News Review: No Surprise: Repatha reality is messier than initial reports suggested
  • January 31, Forbes: Putting Me Into the Cancer Moonshot

2016

  • December 20, Healthcare IT News: The promise of patient engagement
  • December 14, MedCity News: This week in patient engagement: Gulf persists between patients and officials
  • December 9, MedCity News: HealthSparq seeks ‘idiotic’ stories with #WhatTheHealthCare campaign
  • November 23, MedCity News: This week in patient engagement: Two vocal advocates share their tribulations
  • November 20, The News: New Glasgow woman, entrepreneur, receives honour of excellence
  • November 14, prweb: Improving Access To Clinical Trials: American Kidney Fund Adds User-Friendly Search Capability and Information to Kidneyfund.org
  • November 9, Software Advice: Patient Expectations for Modern Medical Practices (Pt. 1): Patient Outreach
  • October 26, MedCity News: ENGAGE: 5 takeaways from MedCity’s patient engagement conference
  • October 20, MedCity News: ‘e-Patient Dave’ says a patient ‘revolution’ is already underway
  • September 25, The Wall Street Journal: Technology and Health Care: The View From HHS
  • September 14, Healthcare IT News: OpenNotes announces advisory board to guide growth on patient engagement efforts
  • September, 8, Pacific Standard: Fighting Back Against Parkinson’s
  • September, 5, Digital Trends: Tech wrecked our bodies, but next it will make us healthier than ever
  • August 26, Detroit News: Hospital records kept from public
  • August 20, BuzzFeed News: This Guy Swallowed Parasitic Worms On Purpose – Then Became a Published Scientist
  • August 17, IXDS: Getting to know Health 2.0
  • August 10, STAT News: NEJM editorial doubles down on resistance to data sharing
  • August 1, Klick: EPATIENT POWER!
  • July 24, Glass Hospital: e-Patient Dave
  • July 20, Nordic Life Science News: Teaching patients and doctors to work together
  • July 19, U.S.News: In Research World, Long-Term Injury Care Hard to Come By
  • July 15, Clinical Leader: Clinical News Roundup: Animal Testing To Transform Cancer Treatment In Humans
  • July 14, JDRF: JDRF and TrialReach Launch a New, No Cost Clinical Trial Matching Tool to Solve Critical Challenges in Diabetes Research
  • June 29, prweb: White House Announces TrialReach to support Cancer Moonshot Initiative
  • June 2, Chronicality: Trust Your Gut: When to Seek a Second Opinion.
  • June 2, La Vanguardia, Barcelona: “I learn what I can on Google, and share it with my doctor”: Aprenc tot el que puc a Google i ho comparteixo amb el meu metge ) (in Catalan); El incómodo enfermo que consulta internet (Spanish)
  • April 12, The New York Times: Shopping for Health Care: A Fledgling Craft
  • March 22, The Huffington Post: An Alert, Well-Hydrated Artist in No Acute Distress-Episode Sixteen: The Patient Will See You Now
  • March 15, Healthcare Packaging: Trends from the 2016 PDA Annual Meeting
  • February 8, MedCity News: UK spending billions on health IT, remote patient monitoring
  • February 4, Health Leaders Media: Unwise Medical Choices Stubbornly Defy Eradication
  • January 13, Health Leaders Media: 3 Ways Up Your Content Marketing Game

2015

  • December 30, co-designing digital health & wellbeing:  People centred participation – thinking forward to #kfdigital16 
  • December 5, MedPage Today: Understanding Healthcare Costs: Meaningful Steps Going Forward
  • December 4, MedPage Today: Understanding Healthcare Costs: Conversations With Payers
  • December 3, MedPage Today: Understanding Healthcare Costs: Patients Talk $$ With Providers
  • November 30, Washington Post: Here’s how patients can take a larger part in their own care
  • November 3, MedCity News: Morning Read: MedAssets going private, AmSurg withdraws TeamHealth bid
  • September 30, Forbes: 6 Ways to Pay Less for Healthcare
  • September 29, CMIO: AMA’s town hall calls for MU pause, interoperability fix
  • September 24, SCOPE, Stanford Medicine: Day one of Medicine X Ι ED: Understanding and equipping today’s medical learner
  • September 21, USA Today: Health care prices vary wildly: What can you do?
  • VIDEO: September 18, KTBY (Channel 4): Alaska Nurse Practitioner Conference
  • September 18, KATN (Anchorage Channel 2, ABC): Being Your Own Health Advocate
  • VIDEO: September 16, KTBY (Anchorage Channel 4, Fox):  Commonwealth North breakfast seminar
  • September 13, The [Louisville] Courier Journal: Wildly varied health costs a national mystery
  • September 9, Southern California Public Radio: When is it OK to record your doctor’s orders?
  • August 30, Skipr (Dutch): Vermoeidheids-app wint health-hackathon REshape  (“Fatigue app wins health-hackathon REshape”)
  • August 18, MedCity News: E-Patient Dave: Time to open the medical records spigot
  • August 11, Ouderenjournaal (Dutch): Drie dagen lang in een creatieve snelkookpan (“Three days in a creative pressure cooker”), about the Hacking Healthcare event in the Netherlands where I was a judge.
  • August 5, Forbes: Medicine is Going Through A Revolution — With Doctors’ Help
  • August 4, The Center for Public Integrity: Obamacare research institute plans to spend $3.5 billion, but critics question its worth
  • July 20, British Journal of Healthcare Computing: Vox Pop: ‘It’s possible today for patients to truly contribute value’
  • July 17, Computer Weekly (UK): Stop telling patients not to Google – one man’s quest for joined-up healthcare. Article about last month’s Joined-Up Health event at Intersystems in London
  • July 14, Health News Review: Susannah Fox on the hunt to democratize access to patient data
  • July 13, Glass Hospital: An Amazing Story of Patient Engagement
  • July 10, The Boston Globe: Looking to diagnose your ailments online? be careful
  • July 2, MedCity News: Get My Health Data campaign launches in time for ‘Data Independence Day’
  • July 2, Huffpost: You Don’t Look Like You Have Epilepsy
  • June 19, Nuviun: 7 definitions of 21st century patients, for better or worse
  • June 12, The Chronicle: Popping the question – how and why to engage patients in health care
  • June: National Board of Medical Examiners:  Annual Report (PDF) (pp 11, 13, 82) – coverage of my plenary at their 100th Annual Meeting; member of their Patient-Centered Assessment Task Force
  • May issue of ImproveDx: Newsletter of the Society to Improve Diagnosis in Medicine. In “Improving Communication of Test Results in a Changing World” by Susan Carr.
  • May 30, IntrepidNow: #TalkHIT with CTG – Dave deBronkart (ePatient Dave), The Original ePatient Advocate
  • May 28, AstraZeneca Health Connections: E-Patient Dave: “The Internet Brings Patients Together”
  • May 14, Mayo Clinic “In the Loop” “‘Healing Words’ Program Creates Space for Patients to Reflect and Clarify” about my interview on facing death with hope
  • May 11, KQED: Patient Advocates Fight for Access to Medical Data: ‘It’s a Matter of Life and Death’
  • May 7, MaRS: A Fireside Chat with e-Patient Dave and Lucien Engelen
  • May 7, NHPR (New Hampshire Public Radio): Tech Tools Aim To Drive Down Health Costs In N.H.
  • April 27, Washington Post: How is the doctor-patient relationship changing? It’s going electronic.
  • April 19, #TalkHITwithCTG audio interview from HIMSS: Dave deBronkart (ePatientDave), The Original e-Patient Advocate. Includes transcript, and link to the other e-patient interview at that event, featuring Regina Holliday, Carly Medosch, Melanie Peron, Amanda Greene and Tami Rich
  • April 11, MHA Degree.org: Top 50 Healthcare Influencers to Follow on Twitter
  • March 23, Medscape Medical News (subscription required): Patient-Powered Care Drives New Relationship With Physicians
  • March 13, KQED Science: Startups, Entrepreneurs Try to Solve Medical Records Debacle
  • January 30, Boothbay Register: New Empowered Patient series launches Feb. 9
  • January 26, Healthcare IT News: Hospital to let patients add to own EHRs
  • January 14, iHealthBeat: Online Patient Communities Empowering Patients, Transforming Care

For earlier news coverage, please visit this page.

August 26, 2009 By e-Patient Dave 6 Comments

Ushering in the Era of the Participating Patient

I hereby hang out my shingle: e-Patient Dave for hire. Call me.

ePatient Dave business photoI’m launching my consulting business in the new world of healthcare, especially patient engagement, personal health records, data quality, and related policy. What I do:

  • Compelling, motivating speaker and writer
  • Voice of the engaged patient
  • Policy advisor on
    • how technology can and should affect healthcare transformation
    • disruptive innovation: how it creates progress, how to manage it, how to survive its risks
    • personal health records

Healthcare is changing, especially in America. As the nation wrestles with the complex political and financial issues that paralyze talk of reform, a separate front advances steadily: patients are becoming engaged in their care.

Gone are the days when patients were passive recipients of care dispensed by healthcare providers in a one-sided “doctor knows best – and patients know nothing” model. Today engaged patients participate in their care, in an empowering partnership with nurses, physicians, staff and organizations who understand the new model.

A new, collaborative partnership.

It’s not that “doctor knows best” has turned into “patients know best.” To the contrary – this new relationship is a collaborative partnership, in which both parties feel more fulfilled.

But adjusting to this can be a challenge. How can providers, policymakers, care system creators and patients learn to dance to this new music? And health IT will play a vital role, especially patients’ ownership of their own data in personal health records (PHRs). All these are areas where I intend to “make a living by making a difference.”

Browse the site. Bring friends.


“e-Patient Dave” deBronkart is a high-tech marketing executive who has studied technological change (and how people deal with it) for years. In 2007 he succeeded in beating a near-fatal cancer, and has gone on to apply his analysis and communication skills to the new world of participatory medicine.

In 2009 Dave and his primary physician, Dr. Danny Sands, MD MPH, were elected founding co-chairs of the Society for Participatory Medicine.

A passionate spokesman for the cause, he lives, writes, and works in Nashua NH, near Boston’s Route 128 high tech corridor, where he is Director of Marketing Analytics for TimeTrade Appointment Systems. For more detail on Dave’s story, see the About page.

Filed Under: Participatory Medicine, patient engagement 6 Comments

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