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May 4, 2023 By e-Patient Dave 6 Comments

The hard, hard work of supporting a death

monochrome photo of statue
Photo by Alain Frechette on Pexels.com

Much has been said about dying and about how hard a death can be on loved ones. But I’ve never seen anything like this email, which I received this morning. It’s from Myra Isaacs and Jan Oldenburg, who became the primary caregivers and care organizers for “Mighty Casey” Quinlan, who died April 25 after a month in a skilled nursing facility under the supervision of hospice.

In the past I’ve seen bits and pieces of the many tasks listed here but holy cow, when it’s all put together, it’s sobering. It’s a lot of work, at an unhappy and often stressful time.

I myself was not with them at Casey’s side in Richmond – I’m just the messenger who was blown away by this email and asked to publish it.

[Notes: “Mary” was Casey’s given first name at birth. She never liked the name, so adopted her original last name as her first. CeCe (Cecelia) is her sister.]

[Read more…]

Filed Under: hospice Tagged With: death, dying, end of life, hospice, Mighty Casey, patient experience 6 Comments

February 11, 2015 By e-Patient Dave 1 Comment

Daily Digest: Life is 100% fatal, medical error stats, and more

“Life is 100% fatal“: I’m quoting myself there, and I’ve helped beloved family members navigate that final journey by holding their hand, and standing watch, as the light of their living selves flickered out. It’s a sacred human experience that’s become over-medicalized, particularly in the US. From the NY Times, written by a palliative care doctor, Ira Byock: “Dying Shouldn’t Be So Brutal”

Killer numbers: In a terrific post on Vox, Sarah Kliff, who’s built a solid reputation as a journalist who can break down complex statistical data into accessible information, tells us that we have miles to go before we’ve defeated the medical-error monster. “Medical errors in America kill more people than AIDS or drug overdoses. Here’s why.”

Doctors as family advocates: Dr. Pauline Chen makes a forceful case on the NY Times Well blog that doctors should advocate for their patients and families to get work policies in place, policies that let people get the time needed to care for sick family members. “Doctors as Advocates for Family Leave”

Why discharge instructions matter: On Forbes.com, a piece by Robert Szczerba on why care transitions, particularly from hospital to home, can present re-admission risk, and efforts to eliminate that risk. “Coming Home From The Hospital Is Actually More Dangerous Than You Might Expect”

Bad science, and how to spot it: Another post from Vox, this one by Susannah Locke, on how to spot weird (bad/fake) science reporting. Piece includes a great infographic, too. “15 ways to tell if that science news story is hogwash”

Dr. House of Cards: Wednesday humor comes from ZDoggMD – slightly funnier than placebo – and his mashup of House of Cards, Dr. Oz, and medical-science mayhem. “Dr. House of Cards: Oz vs. Underwood“

Filed Under: Digests Tagged With: cancer for christmas, end of life, family leave, hospital safety, medical errors, Pauline Chen MD, Rober Szczerba, Sarah Kliff, science literacy, science reporting, Susannah Locke, ZDoggMD 1 Comment

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