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February 9, 2015 By e-Patient Dave Leave a Comment

Daily Digest: Is interop the Holy Grail?, science resisters, four more

Dave comment: I’m learning that Digest curator Casey has a taste for longer pieces than most internet articles. Take a peek at links that interest you. Here’s today’s selection.

The “holy grail” of frictionless data sharing: HITConsultant weighs in with an op-ed related to GMDD delivered, if you will. “Is Universal Health Data Platforms the “Holy Grail” of Interoperability?” (As we said last week, GMDD = Gimme My DaM Data, the cry of e-patients who want to have all their medical information. As the song says, “It’s all about me so it’s mine.”)

How to talk to science resisters: Here’s something from The Grist that tackles a tough issue: how to shift the thinking of parents who don’t want to vaccinate their kids. The Grist has been reporting on climate and environmental science since 1999, so they’re very familiar with the challenge of engaging with a “don’t confuse me with the facts” crowd: “How to talk to an anti-vaxxer”

In Let Patients Help I said “Information alone doesn’t change behavior,” which is very much on topic here. What can you say that will make any difference?

Caveat “precision”: “Precision medicine” is a hot topic, given President Obama’s announcement from the White House Jan. 20. (SPM president Nick Dawson was there – see his post on e-patients.net) on Jan. 30. Former SPM president Michael Millenson has been writing about healthcare for decades, and offers up a fact-based caution against letting genomic testing companies brand themselves as offering “precision medicine” without the science to support that claim. “Breast Cancer Tests Betray ‘Precision Medicine’ Branding”

Will healthcare spending drop or soar? Dr. Peter Ubel, MD and behavioral scientist, asks a question on Forbes that’s been rising in the cost-of-care circles where both Dave and I engage: is healthcare spending slowing, or “Is Healthcare Spending About To Accelerate?”

Questioning Medical Protocol: Randi Oster is an aerospace engineer, and the mom of a son with a chronic illness. In a post on the Engaging Patients blog, she shares a story that illustrates how the steep learning curves every e-patient navigates work best in tandem with an open mind and a sense of humor. “Questioning Protocol, a Family’s Perspective”

Funny Monday: I (Casey) am a longtime TV geek. Not just watching it, producing it. So I can weigh in with a professional POV, TV-wise and e-patient-wise, with a must-watch recommendation: HBO’s “Getting On,” set in a southern California extended-care facility. LA Weekly agrees with me. “HBO’s ‘Getting On’ Has What It Takes to Be a Truly Important Show”

 

Filed Under: Digests Tagged With: "Getting On", #gmdd, healthcare spending, HITConsultant, Michael Millenson, Peter Ubel, precision medicine, Questioning Protocol, Randi Oster, The Grist Leave a Comment

February 6, 2015 By e-Patient Dave Leave a Comment

Daily Digest: Truck-stop family medicine (LOVE this!) and 5 more

TGIF, friends! Here’s our Friday Festival of Fun for e-patients and health policy wonks far and near.

Keeping family medicine alive – at a truck stop: Rob Marsh MD of Raphine, Virginia, was named Country Doctor of the Year in 2014. Where does he practice? At a truck stop. What was his gig before country-doctor? The US Army’s Delta Force. “Virginia doctor tries truck-stop medicine to keep family practice alive”

#GMDD (“Gimme my DaM data”), Irish edition: It seems that patients everywhere are struggling to figure out the data-access issue. Our friends in Ireland are having the same conversation that we’re having here in the US. From the Irish Times: “Medical Matters: Charting progress: who owns patients’ medical notes?”

Kindness training in medical school: A core driver of transforming medicine, and the healthcare delivery system, is medical school. The Wing of Zock blog, published by the Association of American Medical Colleges, is a great source for insights on transformation in academic medicine. Kindness training in medical school? Why … YES. “Kindness Beyond Curriculum”

Patient Portal ideas: One of the blogs that’s chock full of discussion about all things health IT is HITECHAnswers – here’s a short post with some ideas for patient portal. Which in our experience have yet to be delivered in truly meaningful ways, to patients or clinical teams. “Searching for Creative Patient Portal Solutions”

Change at the FDA: FDA Commissioner Dr. Margaret Hamburg is moving on. She’s faced many challenges well – compounding pharmacy safety, Ebola.  Here’s hoping her successor will also bring a special focus on tech, because tech is the biggest enabler patients have had since the internet itself. NYTimes: “FDA Commissioner Dr Margaret Hamburg to Step Down”

Doctor By Day, Comedian By Night: For your Friday funny-bone, here’s a doctor who’s become a movie star. Usually, it’s an actor playing a doctor who becomes a movie star. Ken Jeong started as an internist with an off-hours comedy habit. You might know him from his breakout performance in “The Hangover.” Here’s his “my big break” story from NPR: “Doctor By Day, Comedian By Night“

Filed Under: Digests Tagged With: #gmdd, Dr. Margaret Hamburg, Dr. Rob Marsh, FDA, Ken Jeong, kindness, patient portals, Wing of Zock Leave a Comment

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