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January 27, 2012 By e-Patient Dave 3 Comments

Links from the e-Patient Boot Camp

The last ones still here for the belated class photo: host Shwen of Edelman, @TiffanyAndLupis, Siet, Jay @J_Nagy, Christine @bydls, @ePatientDave, Allison @AMBlass, and Jeff

This page contains links to content discussed in the e-Patient Boot Camp today.

  • Society for Participatory Medicine, its journal, its blog e-patients.net
  • Deloitte Shift Index 2011 web page, PDF (5MB). Participatory Medicine is on page 84 (pg 88 of the PDF).
  • My viral TEDx video “Let Patients Help” (including “the e-Patient Rap” written by Keith Boone)
  • ACOR community – great example of a patient community
  • CaringBridge – create your own support “blog” without being a blogger
  • e-Patients White Paper – check the Seven Preliminary Conclusions – in Chapter 2
  • Ferguson Report – e-Patients as Medical Researchers
  • Health Leaders magazine
  • Peer-to-Peer Healthcare Pew Internet – Independent Research
  • Seattle Mama Doc – Wendy Sue Swenson
  • On Twitter and Facebook @MacObGyn MacArthur OB/Gyn
  • Simplee EOB for understanding insurance Explanation of Benefits
  • Visible Body – to understand anatomy
  • Open Notes project by the RWJ Foundation
  • Hugo Campos – Give me my data at TEDx Cambridge
  • Markle Foundation Download Health Data capability – Blue Button (also BlueButton.org)
  • Regina Holliday‘s blog
  • Monique Doyle Spencer’s blog about Xeloda side effects
  • “Mama Lion Engelman” story
  • 1 in 100 website (pediatric cardiac defects)
  • RA Warrior – Kelly Young’s RA patient community
  • Cure Together
  • Raw Data Now – Tim Berners-Lee’s TED tax
  • Dartmouth Atlas of Health – unwarranted practice variation
  • Gartner Research Methodology Hype Cycle
  • Create Space -self-publish on Amazon
  • The Patient Activation Measure
  • Medication help GlowCaps
  • Health Record Banks
  • MyHealthStory – video archive of patient stories
  • Quantia MD physician community
  • Another doctor community Doximity
  • WegoHealth TV
  • Inspire patient communities
  • Patient speakers bureau SpeakerLink.org

Filed Under: Events, Uncategorized 3 Comments

Comments

  1. Pat Mastors says

    January 28, 2012 at 4:11 pm

    (Did I take a nice picture, or what?)

    It was my pleasure and priviledge to be there yesterday. I’m still reeling from all I learned, and was thrilled to meet so many great people!

    A BIG shout-out to Shwen and Edelman, hosts for this important event! For the first time ever, we Patient Advocates were invited to the “Penthouse” level (figuratively and physically) to participate in a meaningful disussion about how we can help improve health care. It was energizing and thought-provoking….and smart business on many levels.

    Also, can I say enough about Dave? He, like us, bemoans the fact that it costs a lot of money to attend most conferences and seminars about patient engagement – a cost that ironically puts attendence by most patients/advocates out of reach. Well, Dave walks the walk. Patients got to attend for 10 bucks. Hats off – and an ePatient salute – to a guy who really means it when he says “nothing about us, without us”. Your generosity in sharing all you’ve learned, your collaborative approach, and your charisma as a speaker are instructive to all of us who hope to make a difference!

    Reply
  2. Ileana says

    February 4, 2012 at 8:53 am

    From DiabetesMine – Allison’s feedback has great nuggets and videos with Dave and other participants.
    http://www.diabetesmine.com/2012/02/e-patient-bootcamp-debuts.html

    Reply

Trackbacks

  1. e-Patient Bootcamp Debuts : DiabetesMine: the all things diabetes blog says:
    February 3, 2012 at 9:00 am

    […] you’re interested in reading up on more e-Patient lessons, check out the sources from Dave’s presentation which can be found on his […]

    Reply

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