I spoke Thursday to a completely new kind of audience: the Coalition for Compassionate Care of California, which is involved in palliative care.
Palliative care is not a synonym for hospice or end of life. It’s about making life with a disease more comfortable, which can be combined with curative care – it does not mean you’ve abandoned hope of a cure. But many doctors, nurses and insurance companies don’t know this yet. Be informed, and speak up!
Although it was a new topic, the talk was a tremendous success. Here’s the video, which was captured (at no cost!) by @KSAust (Kris Austin) on Twitter using Periscope. (Email subscribers, if you can’t see the video, click the headline to come online.)
It’s about changing our cultural conversation
I compose every talk for the individual audience. There’s often a lot of overlap with previous talks, but this one was very different: I’ve never talked about this subject. It ended with an enthusiastic standing ovation, which always means the message got through.
Thanks to my barbershop singing hobby, especially my chorus, the Nashua Granite Statesmen, from whom I first heard this arrangement of the song that was the title of this talk: “I’m gonna live until I die.” At the start I pointed out that Frank Sinatra introduced this song the year I was born (1950), and at the end I said that we pass our culture down to the next generation: the talk ended with a performance of the song by one of the Harmony Explosion summer choruses, where we barbershoppers pass the tradition along to the next generation.
Seriously, spread the word, because hardly anyone knows: Palliative treatment can be combined with curative ones. It’s not a synonym for hospice, and does not mean giving up hope – it means making it easier to cope with the effects of a disease or its treatment.
kathy kastner (@KathyKastner) says
Dave, you were SUCH a hit. Thanks Kristine Austin @ksaust for making your periscope avail. (https://www.linkedin.com/in/kristineaustin)
Should it be of interest, I’ve storyfied tweets:
I got hooked on the amazing #palliative community on my first #hpm tweetchat, in 2010. Prompted creating BestEndings.com – about end of life issues from a layman’s point of view. Now, I’m a total evangelist for the palliative approach.
It’s an approach that calls out for patient engagement and participation.
Having you as Keynote sure opened wide that door. Thanks!
e-Patient Dave says
Thanks for the Storify, Kathy – it was SO GOOD to see you again!
Liz Salmi says
Thank you for giving a fantastic keynote speech! AND, thanks to you and our e-patient guests, 100% of respondents in a follow-up survey of Summit attendees said they gained a basic understanding of the term “e-patient.”
Let me repeat that, 100% of our Summit attendees know what an e-patient is! I’d say that is a BIG WIN.
This blog post on palliative care is spot-on. You reach a wide audience, and I am appreciative you are engaged in palliative care and have written about this topic. Please join the #hpm community any time.
I hope our paths cross again soon. :)
e-Patient Dave says
What’s the date and time of the #hpm twitter chat, and for those who don’t know, what’s it stand for?
Liz Salmi says
#HPM = Hospice & Palliative Medicine
Tweet chats are Wednesdays at 6pm PT/9pm ET.
Lots of clinicians are involved–patients are welcome!