e-Patient Dave

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December 18, 2019 By e-Patient Dave Leave a Comment

Principle 10: “The lethal lag time” – new knowledge doesn’t flow instantly to everywhere

Next in the series of fourteen foundation truths about Superpatients.

Yesterday in principle 9 we covered how long it takes for scientific journals to get around to publishing knowledge, once it’s been created. Until then, the knowledge bears no fruit. And if you’re one of the suffering people whose outcome may depend on that knowledge, it’s a problem.

[Read more…]

Filed Under: superpatients Leave a Comment

December 17, 2019 By e-Patient Dave Leave a Comment

Principle 9: Scientific journals have different motivations and “biological clocks” than desperate people.

Next in the series of fourteen foundation truths about Superpatients.

When your life’s on the line, you may think that all new knowledge will be rushed to the front lines as fast as possible. Not so much.

[Read more…]

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December 16, 2019 By e-Patient Dave Leave a Comment

Principle 8: Paternalism is based on expired truths. Don’t let it kill you.

This is a vital principle to understand – one of the most misunderstood concepts I’ve encountered in my speaking events. Paternalism is rooted in paternal caring, but it’s gone awry.

Next in the series of fourteen foundation truths about Superpatients.

Paternal caring is necessary, even vital, when the cared-for person can’t comprehend what’s going on. (My favorite example is “No, honey, don’t touch the stove! You’ll burn yourself!”) It hit me in an instant when I saw this photo of my new granddaughter at age ten weeks. Look:

[Read more…]

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December 13, 2019 By e-Patient Dave Leave a Comment

Principle #7: Empowerment means increasing someone’s abilities.

Next in the series of fourteen foundation truths about Superpatients.

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December 12, 2019 By e-Patient Dave Leave a Comment

Superpatients principle #6: There have been profound changes in what’s possible at the fringe of knowledge.

Next in the series of fourteen foundation truths about Superpatients.

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December 11, 2019 By e-Patient Dave Leave a Comment

Principle 5: Some doctors were trained wrong about what information’s dependable.

Continuing the series started Friday – fourteen foundation truths to set the stage for the upcoming book Superpatients: Patients who extend science when medicine’s out of answers.

This image has an empty alt attribute; its file name is Meme07-Fact05-Some-docs-were-trained-wrong-600x400-1024x683.jpg

A frequent thread in superpatient (and e-patient) stories is when a doctor gives outdated advice about what information deserves our attention. Today’s principle builds on Principle 3, “It’s a myth that doctors can be counted on to know what’s dependable and nobody else can be.” Here’s #5:

Some doctors were trained wrong
about what information’s
dependable.

[Read more…]

Filed Under: superpatients, Uncategorized Leave a Comment

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