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August 4, 2011 By e-Patient Dave 1 Comment

Links for the Consumer Stakeholder working session

Here are links to resources I mentioned in today’s session. First, I forgot to mention – the National eHealth Collaborative (NeHC) has started a great Consumer Consortium in Washington, bringing together over 150 consumer oriented groups. They’re accumulating a substantial inventory (list) of tools, links, resources – all kinds of things to encourage consumer engagement. Encourage groups to join!

Today’s slides are at bottom. Here are the items I mentioned in today’s talk:

  • VA’s “Blue Button for All Americans” challenge – $50,000 to the first PHR developer to install one in 25,000 providers. (Click for details.)
  • Example apps told to us by patient groups yesterday:
    • i-Inject Injection Tracker (for MS and anything else)
    • Parkinson’s Toolkit, from the National Parkinson’s Foundation
    • Seizure Tracker – developed by a parent
  • Visible Body (a paid product with free demo) – I’ve proposed someday “mashing this up” with our own scan data or other data, to create “Google Earth for my body”
  • Google Body Browser – a very very primitive free alternative
  • Blog posts about the Robert Wood Johnson-funded OpenNotes project
    • My first one, including the Seinfeld episode
  • TED talk by Wired editor Thomas Goetz about redesigning our medical data
  • “Consumer” or “Patient”? My post last December.

Here are the slides:

ONC Consumer Engagement working session Aug 4 2011

View more presentations from ePatientDave.

See also:

  • The list of patient communities on my site
  • My TEDx talk, “Let Patients Help” (Note – under the screen there are subtitles in 9 languages)

Filed Under: Events, patient engagement 1 Comment

Trackbacks

  1. Putting the I (or eye!) in Health IT: ONC’s regional meetings « e-Patient Dave says:
    August 11, 2011 at 5:41 pm

    […] another post with links to things we discussed in the consumer engagement panel. […]

    Reply

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