Links for the Consumer Stakeholder working session

Here are links to resources I mentioned in today’s session. First, I forgot to mention – the National eHealth Collaborative (NeHC) has started a great Consumer Consortium in Washington, bringing together over 150 consumer oriented groups. They’re accumulating a substantial inventory (list) of tools, links, resources – all kinds of things to encourage consumer engagement. Encourage groups to join!

Today’s slides are at bottom. Here are the items I mentioned in today’s talk:

• VA’s “Blue Button for All Americans” challenge – $50,000 to the first PHR developer to install one in 25,000 providers. (Click for details.)
• Example apps told to us by patient groups yesterday:
  • i-Inject Injection Tracker (for MS and anything else)
  • Parkinson’s Toolkit, from the National Parkinson’s Foundation
  • Seizure Tracker – developed by a parent
• Visible Body (a paid product with free demo) – I’ve proposed someday “mashing this up” with our own scan data or other data, to create “Google Earth for my body”
• Google Body Browser – a very very primitive free alternative
• Blog posts about the Robert Wood Johnson-funded OpenNotes project
  • My first one, including the Seinfeld episode
• TED talk by Wired editor Thomas Goetz about redesigning our medical data
• “Consumer” or “Patient”? My post last December.

Here are the slides:

See also:

• The list of patient communities on my site
• My TEDx talk, “Let Patients Help” (Note – under the screen there are subtitles in 9 languages)