I’m speaking today at Oracle’s Health Sciences Innovation Forum in San Mateo, California. They’re into big data and what it can do to create value, and as regular readers know, I love that idea. Heaven knows medicine can use all the “value help” it can get – and heaven knows most of medicine doesn’t think nearly enough about the value of data.
Here are links to the resources I’ll mention:
- Society for Participatory Medicine, its journal, its blog e-patients.net
- The TEDMED 20 Great Challenges for 2013. (“Role of the Patient” placed third of the 50 candidates)
- ACOR – great example of a patient community
- CaringBridge – create your own support “blog” without being a blogger
- e-Patients White Paper – check out the Seven Preliminary Conclusions in Chapter 2
- Health Leaders magazine
- Patient of the Future article, Sept. 2009
- 20 People Who Make Healthcare Better, Dec. 2009
- Oakland defibrillator patient Hugo Campos –
- Give me my data at TEDx Cambridge, Nov 2011
- Front page article in Monday’s San Francisco Chronicle
- Front page article in San Jose Mercury news, Jan 2012
Also of interest – I may or may not mention it – to optimize consumer value for treatment of my new skin cancer, I published an RFP, specifying what I want from providers. Why? Like more and more consumers, I have high deductible insurance – $10,000 deductible – so I myself am calling the shots. I’m getting the treatment tomorrow – I’ll be blogging the decision I made, as an outcome of the RFP process.
Hi There Epatientdave,
In addition to your post I was wondering, A company that is headed by a visionary endeavor, the Founder, the Chairman of USANA Health Sciences; internationally recognized microbiologist, immunologist, and a pioneer in the development of human cell culture technology and infectious disease diagnoses – is no other than, Dr. Myron Wentz.
Keep up the good work
e-Patient Dave says
Sorry, I can’t make a bit of sense out of your comment …