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December 11, 2019 By e-Patient Dave Leave a Comment

Principle 5: Some doctors were trained wrong about what information’s dependable.

Continuing the series started Friday – fourteen foundation truths to set the stage for the upcoming book Superpatients: Patients who extend science when medicine’s out of answers.

This image has an empty alt attribute; its file name is Meme07-Fact05-Some-docs-were-trained-wrong-600x400-1024x683.jpg

A frequent thread in superpatient (and e-patient) stories is when a doctor gives outdated advice about what information deserves our attention. Today’s principle builds on Principle 3, “It’s a myth that doctors can be counted on to know what’s dependable and nobody else can be.” Here’s #5:

Some doctors were trained wrong
about what information’s
dependable.

[Read more…]

Filed Under: superpatients, Uncategorized Leave a Comment

December 10, 2019 By e-Patient Dave 2 Comments

Principle 4: Related myth: “Count on scientists to find what needs to be found. Nobody else could.”

Continuing the series started Friday – fourteen foundation truths to set the stage for the upcoming book Superpatients: Patients who extend science when medicine’s out of answers.

[Read more…]

Filed Under: superpatients 2 Comments

December 9, 2019 By e-Patient Dave Leave a Comment

Principle 3: Don’t expect docs to know everything and others to know nothing.

Continuing the series started Friday – fourteen foundation truths to set the stage for the upcoming book Superpatients: Patients who extend science when medicine’s out of answers.

Principles #1 and #2 were about what science is – essential concepts for people who want to extend the frontier. Today we start addressing where to look for the best advice.

It’s a myth that doctors can be counted on
to know what’s dependable
and nobody else can.

[Read more…]

Filed Under: superpatients Leave a Comment

December 8, 2019 By e-Patient Dave 9 Comments

Principle 2: Not all published science is good science.

Continuing the series started Friday – fourteen foundation truths to set the stage for the upcoming book Superpatients: Patients who extend science when medicine’s out of answers.

Principle #1 said that good science is measurable, verifiable, and reproducible. Here’s #2, which is a shocker to a lot of people. As the articles linked below say, it’s a big problem for doctors, not just for patients:

[Read more…]

Filed Under: superpatients 9 Comments

December 6, 2019 By e-Patient Dave 4 Comments

Superpatient principle #1: Good science is measurable, verifiable, and reproducible

I’ve been writing (and speaking) about this Superpatients concept and book for more than a year, and it was stuck for the longest time as I groped for some organizing context in which to explain everything. I mean, here we have all these amazing stories of amazing people who’ve done remarkable things, with some common themes weaving in and out, but it just didn’t have any framework on which to hang those themes. And without a framework, I can’t explain anything.

[Read more…]

Filed Under: superpatients 4 Comments

November 27, 2019 By e-Patient Dave 1 Comment

And the Patient Innovation winner is …

At the closing session Friday in Amsterdam, Grahame Grieve (“the father of FHIR”) hands a big check (so to speak) to patient John Keyes, creator of BloodNumbers. He created it for his personal use, but he’s open to adapting it for other uses.

John Keyes, blood disease patient who created BloodNumbers, a simple app to track his ongoing test results.

[Read more…]

Filed Under: FHIR, Health data, Innovation, Patient-centered tech 1 Comment

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