e-Patient Dave

Power to the Patient!

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February 2, 2011 By e-Patient Dave 3 Comments

People in Healthcare Engagement

I’m humbled to be one of the three people selected by Creation Healthcare for their annual “People in Healthcare Engagement Award.” Creation Healthcare advises companies on how to use social media wisely, to engage actively with their markets, transcending the old-school “We talk, you listen” approach that everyone is learning to move past. It takes new mindsets and new skills to understand how the world has changed and what to do about it. That’s what this is about.

Also honored are Janssen’s Digital Strategy & Social Media Manager Alex Butler (“Nobody should pat themselves on the back for having a Twitter account – it’s what you do with it that matters”) and Sabine Kostevc, author of the social media guidelines for Roche Pharmaceuticals, which were widely praised last year, and justly so. (If you’re interested in this culture change and you haven’t read Sabine’s guidelines, you should.)

In the announcement Daniel Ghinn writes:

Dave deBronkart personifies how the Internet has changed healthcare over the past few years. His book, ‘Laugh, Sing, and Eat Like a Pig’, published in 2010, in which he shares his incredible journey beating Stage IV cancer, is a testimony to the power of the Internet to change lives. It is also a powerful resource not only for patients but for healthcare stakeholders to learn from.

Thanks, Daniel – that’s my fondest dream: that everyone involved will realize how empowered, engaged, socially connected e-patients are changing healthcare … as it says at the top of the e-patient blog, “because health professionals can’t do it alone.” Thanks for getting it!

Filed Under: Uncategorized 3 Comments

January 6, 2011 By e-Patient Dave 9 Comments

Kidney cancer treatments: Dr. David McDermott answers questions from ACOR patient community

Today my oncologist, Dr. David McDermott, generously spent 48 minutes answering questions from the ACOR.org kidney cancer patient community. Here’s the recording, including some notes on terms used in the discussion.

Note: it was neither possible nor appropriate for the doctor to comment on specific detailed cases, so the discussion was about issues rather than details.

These audio files will open in a separate window. Blog experts, see note at bottom.

[Read more…]

Filed Under: Uncategorized 9 Comments

December 24, 2010 By e-Patient Dave 1 Comment

“Back to the Future: Doc Tom’s e-patients emerge in shared decision-making” (post on the BMJ blog)

Visit the post on the BMJ blogI was honored (okay, thrilled) to attend last week’s Salzburg Global Seminar on healthcare, titled “The Greatest Untapped Resource? Informing and Involving Patients in Decisions about Their Medical Care.” (I mentioned it last month, writing about a historic Salzburg Seminar in 1998.)

This time more than fifty participants from fifteen countries met for five days to learn about SDM (shared decision-making) and related subjects, and discuss how we can change the culture of healthcare. I got the chance to address the group for 15 minutes one morning (that was fun!), and was invited to contribute thoughts for the blog of the British Medical Journal. “Doc Tom” Ferguson, founder of the e-patient movement, wrote several things for the BMJ, so I decided to tie this event to that precedent. The resulting post is here.
[Read more…]

Filed Under: decision making, patient engagement 1 Comment

December 17, 2010 By e-Patient Dave Leave a Comment

Opening remarks at annual fundraiser for MITSS (Medically Induced Trauma Support Services)

A wonderful, little-known, but very valuable resource for improving health care is MITSS – Medically Induced Trauma Support Services. (They pronounce it “mitts” and it has nothing to do with MIT.) I’ve written about them several times on e-patients.net and on my own “New Life” blog; a good introductory post is here. They support everyone involved in medical errors – the professionals as well as the patient/victims.

They invited me to give the opening remarks at their annual fundraiser last month. (More about them below.) It was a privilege. Here’s my talk. The slides aren’t in the video, but if you’ve seen the other talks on this site, you’ve seen most of the slides.

[Read more…]

Filed Under: Participatory Medicine, public speaking Leave a Comment

December 6, 2010 By e-Patient Dave 13 Comments

Abington Memorial already *has* a shared care plan

In How Patient-Provider Engagement Can Transform Patient Safety I proposed a shared care plan, which the patient and family would be able to read. I just learned that Abington Memorial Hospital, outside Philadelphia, already offers a daily one. Click the image to see a PDF.

They have many anecdotes of medical errors that were avoided because the patient and family could see the plan, point out allergies, note things that didn’t get done during the day, etc.

How did they do this? Custom programming? Yes and no: it’s a report they created on their Eclipsys medical record system.

Wonderful! This is one example of the great potential of health IT, to leverage information for better care. Let patients help.

Hospitals, can you do the same? The people at Abington are happy to share.

Read Abington’s press release about the “CARE Plan” (Communication, Access to info, Resources & Education), for which they won a 2008 Magnet Prize.

Filed Under: Participatory Medicine, patient engagement 13 Comments

November 29, 2010 By e-Patient Dave 4 Comments

A radical view of “compliance/adherence” – from 1977

Sunday I wrote about a landmark paper, “Healthcare in a Land Called PeoplePower: Nothing About Me Without Me.” Here’s the next in this series. It starts:

“Physicians often complain that patients are non-compliant; they do not do what they are told. This resistance perplexes doctors. They can write prescriptions for patients, but they cannot control what the patients do with the prescriptions. … To cajole or threaten has little effect. Rapport and education have likewise had little impact. Patients continue to disobey.

The paper is “The Patient’s Right to Decide,” by Warner Slack MD. It was published in the British journal Lancet – in 1977.*

He continues: [Read more…]

Filed Under: Participatory Medicine, Uncategorized 4 Comments

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