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June 22, 2019 By e-Patient Dave 7 Comments

A tale of two patients: the difference #FHIR hopes to make with free-flowing data

On Friday I wrote here about the ten part blog series I recently did on Tincture, about why I believe the HL7 FHIR standard promises to be so important in achieving the long-felt need for patients to have access to every bit of their health data … to “let patients help” improve care, as my book and TED Talk have said for YEARS. But last fall I gave a talk that expressed my impatience. The title:

“From ‘Let Patients Help’ to ‘Get Out of My Way’:

why some patients want ALL their data now”

[Read more…]

Filed Under: FHIR, Innovation 7 Comments

June 21, 2019 By e-Patient Dave 2 Comments

FHIR on the horizon: ten part blog series

I want to let you know about a couple of important developments. First, I’ve started blogging on another site, Tincture, as well as here; second, there’s important news in the world of health I.T. (or personal health data or whatever you want to call it).


First, the health IT news: there seems to be good stuff happening! An international data transfer standard called FHIR (pronounced “fire”) has been in development for years, and is finally nearing the time when it will (we hope) change the world for those of us who want unfettered access to all our health data.

It’s not very visible to the general public yet, but a Google Image search shows tons of different graphics illustrating different perspectives. Google shows different people different things but here’s what I get:

[Read more…]

Filed Under: FHIR, Health data Tagged With: fhir, health data, health IT, patient empowerment, personal health data 2 Comments

March 18, 2019 By e-Patient Dave 1 Comment

#FHIR for non-technical professionals: a two-session course Tuesday-Wednesday

If you’re in the health data world, you’ve surely heard of FHIR. If you work in that world but you’re not a hands-on data wrangler, you might have heard of it but not really have a clue what it means in the real world.

Wouldn’t it be nice if there were a way to learn about it? There is. Register here.

[Read more…]

Filed Under: FHIR, Health data, Innovation 1 Comment

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