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May 18, 2020 By e-Patient Dave 1 Comment

A glimpse of how FHIR works, for people who’ve fought to get their data

This is a quick post without a lot of explanation, targeted to perhaps a small number of people but perhaps also intriguing to a lot more. This image is a quick summary of the post below:

[What’s FHIR? I’ve been blogging about it for more than a year; here are all the posts, newest first, though if you’re new to the concept please start here. This post doesn’t require understanding FHIR’s significance, but it sure helps.]

The context: someone needs to get their health data.

[Read more…]

Filed Under: FHIR, Health data, Innovation, Patient-centered tech 1 Comment

April 21, 2020 By e-Patient Dave 3 Comments

Tech-savvy patients: enter the “Patient Innovator Track” at FHIR DevDays!

Deadline Friday, May 22: See timeline below, learn more on the track page, then submit your application. Prizes, fame, community!

[Read more…]

Filed Under: FHIR, Health data, Innovation, Patient-centered tech, Patient-centered thinking 3 Comments

November 27, 2019 By e-Patient Dave 1 Comment

And the Patient Innovation winner is …

At the closing session Friday in Amsterdam, Grahame Grieve (“the father of FHIR”) hands a big check (so to speak) to patient John Keyes, creator of BloodNumbers. He created it for his personal use, but he’s open to adapting it for other uses.

John Keyes, blood disease patient who created BloodNumbers, a simple app to track his ongoing test results.

[Read more…]

Filed Under: FHIR, Health data, Innovation, Patient-centered tech 1 Comment

November 1, 2019 By e-Patient Dave Leave a Comment

A tale of two patients, redux

This is something I rarely do: I’m reposting, verbatim, a previous post, because its relevance has accelerated. Please give it another read.


In June I wrote here about the ten part blog series I recently did on Tincture, about why I believe the HL7 FHIR standard promises to be so important in achieving the long-felt need for patients to have access to every bit of their health data … to “let patients help” improve care, as my book and TED Talk have said for YEARS. But last fall I gave a talk that expressed my impatience. The title:

“From ‘Let Patients Help’ to ‘Get Out of My Way’:
why some patients want ALL their data now”

[Read more…]

Filed Under: FHIR, Health data, Innovation Leave a Comment

October 30, 2019 By e-Patient Dave 2 Comments

FHIR #DevDays announces Patient Innovator Track finalists: two companies, two patients!

The organizers of the FHIR #DevDays conference next month have announced the four finalists who will come to Amsterdam to present their ideas to a panel of judges. I’ll copy/paste here from the conference’s Patient Innovator Track page:


The following applicants have been invited to present their achievement on Wednesday, November 20: [Alphabetically by presenter’s name]

[Read more…]

Filed Under: FHIR, Health data, Innovation, patient engagement, Patient-centered tech, Uncategorized 2 Comments

September 12, 2019 By e-Patient Dave Leave a Comment

Call for entries: four patient innovators will win a trip to Amsterdam! Are you one?

Have you done something useful with your medical data to help manage your health? (Or someone else’s)

Perhaps others would find it useful… either your exact tool or your general method! In any case, share it with us, and maybe you’ll get brought to Amsterdam for …

[Read more…]

Filed Under: Culture change, FHIR, Health data, Innovation, Participatory Medicine, patient engagement, Patient-centered tech, Patient-centered thinking, superpatients Leave a Comment

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