e-Patient Dave

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Search Results for: videos

August 10, 2010 By e-Patient Dave 8 Comments

When a patient speaks to patients

As I build my new career in healthcare, speaker fees are my main income. Here’s one I did for free.

Usually when I speak, one of the first things I have to say is “Trust me, your time will come. ‘Patient’ is not a third-person word.” Well, I got to skip that part in June when I spoke to a bunch of people who already have my disease. And boy did we surpass the normal subject matter.

The event was the third annual Kidney Cancer Symposium sponsored by the DF/HCC, aka the Dana Farber / Harvard Cancer Center. That mouthful includes my hospital, Beth Israel Deaconess. Speakers included my doctors, surgeon Andrew Wagner and oncologist David McDermott. (With MDs and Mxxx’s up the wazoo; I love those guys but I gave up on keeping tabs on their credentials. To me they just saved my life.)

They invited me to speak about being an e-patient. Couldn’t turn THAT one down. 35 minutes:

Immense thanks to them for making this event FREE (including lunch) to all patients, and offering the video for free distribution to all who weren’t there.

They say the videos of other talks will be available on their site shortly – with full credentials for the doctors, probably. :–) Thanks to them for letting me have it first!

Filed Under: Participatory Medicine, public speaking 8 Comments

July 16, 2010 By e-Patient Dave 5 Comments

Unboxing “Laugh, Sing and Eat Like a Pig”

For reasons I’ll never understand, “unboxing videos” are a big thing these days: some geek will turn on a camcorder while they unpack some cool new gadget they just received. Examples: Unboxing the iPhone 4 (simplistic, unedited, 1:29), Xbox 360 Unboxing and Review (slick, fancy, edited, 5:58).

Well, my friend Mark Graban, author of the excellent healthcare improvement book Lean Hospitals, just received his copy of my new book Laugh, Sing and Eat Like a Pig (Amazon), and he was so excited he decided to do an unboxing video of it.

Enjoy. :–)

For more information see the book’s web pages. Thanks, Mark!

Filed Under: Uncategorized 5 Comments

May 5, 2010 By e-Patient Dave 2 Comments

Public speaking: “Your delivery was spectacular.”

Speaker fees are how I fund my work, allowing me to do the research and learning that inform my talks, and allowing my participation on behalf of patients in policy meetings in Washington.

I want to be hired for more speaking engagements, so I’d like to share some feedback I just got.

Today I delivered the keynote address at the 13th annual ICSI/IHI Colloquium. ICSI is the Institute for Clinical Systems Improvement, and IHI is the Institute for Healthcare Improvement. Both are magnificent organizations of smart caring people devoted to, well, Improvement. :–)

In the audience was Jim Conway MD, Senior VP of IHI, a tremendous speaker himself. Afterward, he wrote:

“Your content was great, your slides most impressive, and your delivery spectacular. I have no doubt – there are many in the room who are in a different place now because of you.”

That’s my purpose in every talk: to leave people in a different condition than when they walked in. My goal is to awaken new possibilities, speaking on behalf of patients everywhere – I’d even dare to say, I aim to leave people with a different view of life.

Kent Bottles MD, President of ICSI, followed up the next day with these kind words:

“e-Patient Dave gave the best keynote I have heard in years at the ICSI conference in the Twin Cities. If you want to learn and cry, book him.”

On May 12 on the ICSI blog Kent’s colleague Gary Oftedahl MD added:

“…shaking those of us in health care up to the need to pay attention, and ‘use’ the expertise and experiences of our patients.  I’ve heard no one in over 30 years in medicine who has so passionately and personally captured the essence of this powerful message”

If your organization would like to hire me:

  • My schedule of appearances is here
  • Videos of past talks are here
  • Testimonials are here
  • Contact information is here.

Filed Under: Uncategorized 2 Comments

March 25, 2010 By e-Patient Dave 2 Comments

Video message to students learning “Medicine 2.0”

If you haven’t found him yet, Bertalan Meskó is one of the best new-generation doctors making the most of social media. While he was still a med student his ScienceRoll blog won Blogger’s Choice in 2007, and last month it won Medgadget’s prestigious Best Medical Technologies/Informatics Weblog for the second year in a row. @Berci, as he’s known on Twitter, provides a glimpse of what healthcare will be like in the coming decades.

Now that he’s become an MD himself and is teaching, he’s taking it to the next step, inviting e-patients to talk directly to his students via two-minute YouTube videos. Here’s my submission. (This is my first “vlog” (video blog) so the quality’s not great – like everything we do online, it’ll improve with experience.)

Filed Under: Uncategorized 2 Comments

March 18, 2010 By e-Patient Dave Leave a Comment

Visitor from the future – with millions of cousins

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Click to view article (PDF)

I was interviewed for the March issue of MM&M, a medical industry marketing magazine. The title they chose is “Visitor from the future.” Indeed – but this time traveler has millions of cousins.

As our country (and world) plan the next generation of healthcare, I urge people to look at what e-patients are doing – and use it as a lever, to improve care and economic efficiency. Heaven knows we could use it.

The article arose from a talk at the ePharma Summit in February. I was the guest of Klick Marketing, a Toronto company that develops superb web sites for consumer engagement, including patient engagement sites for drug companies. I spoke as the “voice of the patient,” within a keynote by Klick’s Brian O’Donnell about engaging with activated patients.

I wanted to make clear that although it seems futuristic, it’s real today. So the first words out of my mouth were “I’m here as a specimen from the future.” MM&M editor-in-chief Jim Chase was there , and this interview resulted.

ACOR logoTruly and literally, that future is here. The article cites that ACOR (my patient community) reaches 1.5 million patients a week, and that’s just one e-patient site; there are many more. (The Society for Participatory Medicine hopes to publish a list this year, to help people find peers.)

[Read more…]

Filed Under: Uncategorized Leave a Comment

December 29, 2009 By e-Patient Dave 2 Comments

“The Quantified Patient”: my talk at “Quantified Self” show&tell, December 2009

Cross-posted from e-patients.net

The Quantified Self (aka “QS”) is an informal San Francisco based group of people who are tracking one thing or another about their lives. (Could it exist anywhere else??) They have occasional “Show&Tell” meet-ups, with elbow-rubbing and a series of quick talks, 10-15 minutes each.

A few weeks ago I was in town for a talk at the northern California chapter of HIMSS on personal health records. Matthew Holt of Health 2.0 and The Health Care Blog told me QS was meeting that Monday, at the headquarters of Wired magazine.

I registered, and at the end it asked “You wanna present?” I never say no to that, though I didn’t know what I’d talk about.

Turns out host Gary Isaac Wolf was really interested in the little spreadsheet where I’d tracked my tumor sizes as my treatment progressed. :–) So in the context of “quantified self,” my topic became “the quantified patient.”

This is an informal production – audio from a camcorder (no mic) blended with my slides and a few other images. It was fun: a responsive, engaged audience. Thanks to the QS gang for the opportunity.

Related notes –

  • QS is a project of Wired‘s Gary Isaac Wolf (Associate Editor) and Kevin Kelly (Founding Executive Editor). “KK,” as he’s known, is also on the advisory board of our Journal of Participatory Medicine.
  • KK’s videos on Vimeo include several others from that night. (Arg: the room was so full the camera had to shoot the speakers from the side – no slides!)
  • Among the other presenters that night:
    • Spectacular e-patient and #getupandmove entrepreneur Jen McCabe
    • Spectacular human and entrepreneur Esther Dyson, also on JoPM’s advisory board.

Filed Under: Health data, Participatory Medicine, patient engagement, public speaking 2 Comments

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