As I said Thursday, I spent the week at University Medical Center Nijmegen, an hour’s drive southeast of Amsterdam, where Lucien Engelen heads up a program called REshape – reshaping healthcare with patients truly at the center. I mean, at the center – not just the topic of discussion.
On Wednesday we held the first e-Patient Boot Camp, the six hour intensive, in-depth compilation of topics. That was a thrill – to see an action-oriented academic medical center seriously sinking its teeth into what this all means and what they can do with it, starting this week. And the night before we had a terrific prolog: an “e-Patient Workshop,” conceived and organized by REshape’s Stan Janssen. Here’s what it looked like:
(Stan is standing next to the screen.)
We started with lecture – the basics of e-patient-ness. But this time it was different, because the audience was six groups of patients with a common disease, each with one or more physicians who treat that disease, at that hospital. It was the first event I’ve seen where a hospital got to work on making participatory medicine a reality: patients networking, working closely with physicians, who welcome them as partners.
Stan and his team organized discussion assignments, and it was intense, because when I spoke with these patients about facing death and “your time will come,” it took no time at all for the relevance to be apparent. It was a three hour workshop, 5-8 pm, and many were still there when I left 45 minutes later. They were talking actively and in specifics about how to put these ideas to work. I can’t wait to watch their progress.
This was patient engagement on the hoof, people – taking root, new ideas sprouting. I know that’s a mess of mixed metaphors; I don’t care – it was beautiful.
Perhaps an event like this should happen the night before any Boot Camp, at a hospital or other venue. What do you think? After all, the whole point of a boot camp is to develop real skills and leave with abilities and actions that weren’t possible before.
p.s. On the far right is a man doing something I’ve never seen before: a simultaneous live translation into Dutch, being typed as fast as I could talk. He’s using a Velotype (Wikipedia), which I can only describe as a souped-up steno machine :-) hooked into Microsoft Word. Whatever they pay the guy, he’s worth it, because he produced a bilingual real-time experience with no pre-meeting discussion at all. He says Velotyping is three times faster than normal typing, and I believe it.
Naomi Creek says
This sounds fabulous and so exciting to be involved with. How would one go in trying to introduce a program like that here in Australia?
I don’t comment much, but wanted to say that you do some amazing stuff Dave – such an inspiration:)
e-Patient Dave says
Hi Naomi – thanks for your kind words. It was indeed a remarkable experience.
Re doing it in Australia – as with much of life, all it takes is finances – I’m looking to make it a sustainable business with worldwide impact. (Sounds grandiose but I don’t mean it that way.)
If you’re affiliated with an organization that has the resources to do something like this, reach out via my Contact page.
I do think our time has come…
Lisette Baltussen says
I attended your e-patiënt workshop in the university medical center as a professional (nurse practitioner cardilogy)with some of my patiënts.
It was inspiring an usefull. Our patiënts were very enthousiastic about this evening, what itcancontribute to their empowerment and being a participant in their own treatment. So, i wanna thank you for your memorable contribution!
e-Patient Dave says
Hi Lisette – I was so happy to see so many doctors, nurses, patients and caregivers all working together so eagerly! Please, please keep letting me know how it’s going. UMCN could quickly become the best known hospital in the world for experimenting with participatory medicine like this.
Thanks for your kind comment.
Lucien Engelen (@Zorg20) says
photo’s of the week on e-patients http://www.flickr.com/photos/lucienengelen/sets/72157627678216831/