View mHealth presentation to ECPC Annual General Meeting on Vimeo.
This is a quick first post to get this online before the meeting finishes. I hope to add more notes below.
I’m in Brussels at the AGM (Annual General Meeting) of the European Cancer Patients Coalition, an association of over 400 cancer patient organizations. They are organized, they’re methodical, they’re action-oriented, working on health policy, drug development processes, patient involvement in clinical trials, and anything else in the patient’s interest. I was invited by Mrs. Kathi Apostilidis, vice president of ECPC and a long-time member of the Society for Participatory Medicine. She is also known as a force of nature.
The slides are available for viewing and download on SlideShare. More later.
kathi apostolidis says
Hi Dave, I read your post and listen to 2nd half of your video at the airport heading back to Athens. Great content and insights for exceptional patient-initiated/invented uses of digital technology in cancer, diabetes, atrial fibrillation. Thanks for highlighting what motivated patients can do to heal healthcare!
Kathi
Rob Halkes (@rohal) says
Great slide deck and even greater insights from your reflection added to the presentation from your hotel room Dave! I would have wished to be there!
You have juxtaposed:
1) the very need patients have to learn about their condition(s) and about what could be done about it. Also indicating the effect of this learning process: patients being experts on their own condition and so be the ideal co-producers of new research, both in formulating hypotheses and in design the research;
2) And, a more fundamental point: how to judge new outcomes of medical studies when new insights turn “facts” into new lights and appear to be not as ever lasting as the research project would indicate.
We surely need to rethink both medical practice and medical research.
“Think, think, think!” is indeed an upgrade of “let patients help” into a new and more fundamental level ;-)
Thanks!
Rob @rohal
e-Patient Dave says
Hi Rob – I’m sorry for the delay in releasing your comment – I didn’t know it was waiting! Now that you’ve been approved once, you’ll automatically be published next time.
I think you got it completely right.
Seda Kansu says
Almost since the beginning of my bc i found your site and been following it since and in my advocacy path your articles has been a great information and education source.
I believe sincerely that THINK THINK THINK is very importanr when so many others doesnt want us to think and perceive..
I have witnessed for years that unfortunately the “illiterate or unlearned patient” was the perfect patient for the medical world and health policy makers.
Therefore i am very cautious in that sudden change of “patient centered” embrace and ovations. I want patients to rise and empower on strong and real basis.
Therefore before each step we take we should yes, THINK THINK THINK
And for me i thank also ECPC so i met you .
Be well wishing U happiness from Istanbul
e-Patient Dave says
It was great to meet you, too, Seda! And thank you for being the leader who brought Relay For Life to Turkey!