e-Patient Dave

Power to the Patient!

  • Home
  • Blog
  • Speaker
    • Corporate & associations
    • Healthcare
    • Videos
    • Testimonials
  • Author
  • Advisor
  • Schedule
  • Media
    • Recent coverage
    • News coverage 2010-2014
    • Book mentions
    • Press resources
  • About
    • About Dave
    • Boards & Awards
  • Resources
    • Patient Communities
    • For Patients
    • For Providers
    • Speaker Academy
  • Contact

October 22, 2015 By e-Patient Dave 2 Comments

Speaking Nov. 10 at Sacramento Health 2.0 … join us!

Health2SacBEveryone in the “health 2.0” world knows that the Health 2.0 conference is the conference in the health 2.0 world. It’s where everybody has to be, if they want to be known in that high-powered innovator world. Proof got even deeper when, a couple of years ago, they shifted venue from downtown San Francisco to the belly of the beast: Silicon Valley.

Less well known is that Health 2.0 has a number of outlying communities, and one is in Sacramento, the state capital.  Next month I’ll be speaking there, at a free event open to the public.

Laura GoodIt’s 6:30 to 8:30 p.m. at Hacker Lab, 1715 I Street. Register here! And here’s the Health 2.0 Sacramento site. Tentative agenda:

6:30 – 7:15 Mingling and Munchies
7:15 Kickoff
7:30-8:15 e-Patient Dave (including time for Q&A)
8:15-8:30 Mingling

A special thanks to one of my earliest Twitter buddies, @GoodLaura – Laura Good – who, it happens, is a startup geek in that very area and involved with Health 2.0. My first private twitter messages with Laura were in 2009! (If you must know, it was about some typesetting arcana that were raising puzzles in Microsoft Word.) How sweet it is to cross paths IRL with long-time online peeps!

Filed Under: Events, Innovation 2 Comments

October 18, 2015 By e-Patient Dave 1 Comment

Uptown Funk comes to medical education: My first “lecture” to incoming students


View on YouTube

Lucien Engelen head shotRegular readers know that a large part of my becoming a global advocate has been the vision and influence of Lucien Engelen at Radboud University Medical Center (RUMC) in the town of Nijmegen, on The Netherlands’ eastern border. Way back in 2010 he announced that his upcoming  TEDx would be primarily about patients; the TED Talk I did there put my speaking career into a catapult; then he put his own money where his mouth is by launching the Patients Included badge#PatientsIncluded initiative, saying he would not attend any event where patients weren’t actively encouraged to participate; and he has continued to lead in thoughts and actions, every year since (including 3D-printing my lung metastases last year, below). Lucien is the standard, the exemplar of the “pay me with action” clause of my price policy.

My lung metastasesFor that reason, when he asked me this summer to participate in something even newer – something brand new – I immediately said yes. What was it? A three day event, “Inaugural Grand Rounds,” launching a completely redesigned curriculum at RUMC – redesigned with patients participating in the process. Yes, patients – people with no medical experience – except as “the ultimate stakeholders”; as patients, helping guide how we teach students.

[Read more…]

Filed Under: Best of 2015, Events, Innovation, Leadership, Medical Education, Speaker Academy 1 Comment

September 22, 2015 By e-Patient Dave 1 Comment

Berci’s “My Health: Upgraded”: A futurist vision worthy of Doc Tom

Berci holding "My Health: Upgraded"

The headline above is an extraordinary statement, but after 450 speeches and policy meetings, I’ve heard a lot of discussions about healthcare (especially its future), a lot of predictions, and a lot of attempts to explain the past, and the new book My Health: Upgraded (Amazon) stands out as the best explanation of the future that I’ve seen.

I myself never met “Doc Tom” Ferguson, the founder of the e-patient movement, but I’ve looked back at the vision he published and how it’s come true – and I’ve thought about why, a lot. This new book by 30 year old Bertalan “Berci” Meskó MD, PhD is in the same league. (Disclaimer: having never met Tom, I’m talking about the vision as he expressed it in his writings, which is all I have to go on.)

Happily, the BMJ (formerly British Medical Journal) liked the following review well enough that they published it on the BMJ blog. Below is that text, slightly modified.


“My Health: Upgraded”
is a clear vision from
a young futurist

In my work to understand how medicine saved me from Stage IV renal cell carcinoma in 2007, yet so often falls catastrophically short, I’ve looked for causes of both success and shortfall. More than anything, I’ve seen that “the progress of progress” depends on whether we correctly see, or fail to see, the latest and most important new patterns that alter what’s possible and what direction we should head in.
[Read more…]

Filed Under: books 1 Comment

September 21, 2015 By e-Patient Dave 4 Comments

USA Today article on “secret malarkey” of healthcare pricing

Photo of USA Today article 9-21-2015The medical costs and price shopping story I wrote about last Tuesday appeared today in USA Today: Health care costs are a medical mystery. (Nice play on words – usually “medical mystery” is about diagnosing a disease, and this dysfunction sure could use some sleuthing!)

I’d love to see this coverage taken to the next level. The text and the bar chart talk about the crazy variation from city to city – an angioplasty costs four times as much in Sacramento as in Birmingham – but I know lots of people who just shrug and think “Well, Sacramento must be more expensive.” The thing that really gets savvy consumers going is when the same thing costs wildly more in the same city.

[Read more…]

Filed Under: Best of 2015 4 Comments

September 17, 2015 By e-Patient Dave Leave a Comment

Great three minute KTBY news segment on this Alaska trip

Recently I posted about my tour of Alaska this week, and boy, is the local community taking to the e-patient message!

Tuesday morning’s event was a breakfast meeting with the Commonwealth North policy forum. Local TV station KTBY sent reporter Caroline Flinn, who put together a pretty spectacular spot-on three-minute segment about the event, and tying it to the upcoming free public event Friday night.

For regular readers of this blog there’s nothing new here, except that this is a chance to see and hear some faces and voices of members of the movement, for instance Deb Kiley N.P., PhD, the organizer and co-ringleader of this whole trip along with Kathe Bouche and others in attendance. Watch for the cancer patient who took matters into his own hands after the docs said all they could do for his cancer was palliative care.

Did I mention that I love seeing this movement spread and take root everywhere??

Filed Under: Events Leave a Comment

September 15, 2015 By e-Patient Dave 8 Comments

Article in USA Today soon with my opinion on costs, and online advice

Photo of e-Patient Dave
Photo by Zack DeClerck for USA Today. (Click to link to article)

I was interviewed recently by USA Today reporter Laura Ungar of the Louisville Courier-Journal. The story ran Monday 9/14 in that paper and will be in the national USA Today soon. (I expected it on Tuesday 9/15 but it’s not there.)

The subject is summed up perfectly by the headline: Wildly varied health costs a national mystery.

Regular readers of this blog are familiar with my years-long series of posts Let Patients Help: Cost-Cutting Edition, especially my efforts to shop responsibly to get a skin cancer treated. If you’re not familiar with it, and you have the stomach for it, sit back with a cup of your favorite beverage and start digging.  (For a shorter version, read the final post, which is pretty unsettling.)

Why do I ask you to read it? Because I believe this is important to the future of health(care) in America. We must put an end to this crap. Providers, give us the facts! Tell us what things will cost, so we can decide what’s important to us!

Good providers who are trying to do a good job at a good price simply cannot win our business in an environment that, 9 years after the original article in Health Affairs, is still best described as that article’s title did: “Chaos behind a veil of secrecy.”

Can you believe that this situation is tolerated and nobody is getting busted? As I told Laura in the interview:

There can be no explanation other than some secret malarkey going on. …

I feel disempowered and disrespected, because aside from the incredible cost crunch we’re all experiencing, it’s a downright sin that my family can’t readily find out what the options are and what the costs are.

Remedy: information!

[Read more…]

Filed Under: cost cutting edition, Patients as Consumers 8 Comments

  • « Previous Page
  • 1
  • …
  • 37
  • 38
  • 39
  • 40
  • 41
  • …
  • 102
  • Next Page »

Click to learn about Antidote’s clinical trial search engine:

Subscribe by email

Thanks! Check your inbox or spam folder to confirm your subscription.

News coverage

Click to view article


     

    


     
     
 
   
     
     
    


Archives

Copyright © 2025 e-Patient Dave. All rights reserved.